The @RCPhysicians @bodgoddard opposition to @NICEComms ME/CFS treatment guidelines is comes from physicians who refuse to accept GET being removed. This slideshow reveals what physicians running NHS CBT-GET treatments really think about ME/CFS. twitdoc.com/upload/maxwhd/…
1. they view ME/CFS as a functional somatic syndrome, not a biological illness. twitdoc.com/upload/maxwhd/… ImageImage
2. they link Functional Syndromes to Somatisation - often without any evidence, I've looking at this - ie patient accused of overly focusing on bodily symptoms (as a psychological problem) linked to psychological factors (causes/triggers) Image
3. Actual disease is dismissed and reframed in terms of hpochondriasis - illness seeking behaviour and false belief of serious illness/disease. Image
4. Past history of 'hysteria' often associated with illnesses impacting females, and malingering - often thrown into the debate on functional disorders like CFS/ME - by the very physicians stopping @NICEComms produce new guidelines Image
The cause of ME/CFS according to Dr Turner-Stokes , @bodgoddard childhood issues, emotional issues, anxiety, drs over investigating, families blamed for reinforcement, lack of social support. - all total unscientific narrative I have shown to be unsupported. ImageImage
The organic side of ME-CFS - the biology - well Dr Turner-Stokes its an "organic nubbin" only ie small to nothing!!! thats whats some so-called experts in this field are advising @NICEComms Image
Warning this slide may upset: please do read this one @RCPhysicians @bodgoddard Are physicains claiming ME/CFS patients gain from having ME/CFS? I think this slide should form the basis of some complaint on this @NICEComms. "unwanted sexual attentions" really? Image

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More from @keithgeraghty

11 Sep
Should Prof Black's 2008 Report on Work p14, 'that CBT should be used to return sick people to work', be considered as a strong pro-CBT bias for her to Chair a @NICEComms ME treatment guideline review, that recently downgraded CBT and GET use in ME/CFS? assets.publishing.service.gov.uk/government/upl…
I wonder what the ethics of using CBT as a return to work tool are in totality, perhaps some bioethics/philos experts like Dr Blease or others might investigate this trend @crblease - it seems to eminate from ME/CFS and be a template eg is cancer treatment a return to work tool?
Recap why Prof Black is too conflicted imo to chair the @NICEComms ME treatment guideline table
1. Ex-president of Royal College of Physicians (who now oppose the guideline)
2. heavily promotes CBT and BPS model
3. worked with PACE author
4. advisor to DWP who funded PACE trial
Read 4 tweets
10 Sep
I agree with Peter White that drs should not tell patients with ME/CFS that it is an incurable disease, because data shows some people get better, some improve, many dont; equally drs shouldn't tell patients GET is safe and effective, neither statement is true. Word games.
PACE author Peter White often uses a photo of a female patient with ME in a wheelchair feeding a horse in talks to drs, asking "whats wrong with this picture"? He panders to drs ignorance of medically unexplained symptoms -eg "why cant this patient walk, muscle tests are normal"?
..what follows is White's explanation of why patients might have ME, their beliefs, and behaviours. The story given to drs is not supported by science, but simply rests within a grand biopsychosocial model of all illlness. as I've detailed in a few of my papers. a CBT model.
Read 7 tweets
9 Sep
How could @NICEComms appoint Prof Carol Black at the Chair of the roundtable to sort of the mess after some drs blocked dropping GET as a treatment for ME/CFS? Carol Black is a colleague of the PACE team lead Prof Peter White, where is COI screening and independence test here?
A few facts I found on google search: Prof Black is an advisor to UK Gov/DWP, was involved in the implementation of the "Biopsychosocial Model' in reforms, and was part of a team for the DWP working with PACE trial lead author Prof Peter White, both DWP advisors on disability.
Here is a screentshot I found on google of Prof Black PACE author Prof White and DWP Medical Advisor on a team sent to Sweden to advise the Swedish Gov on what they were doing in the UK re disability reforms using a biopsychosocial approach.
Read 6 tweets
30 Aug
@NICEComms have delayed publication of their ME/CFS guideline due to opposition by @RCPhysicians @bodgoddard
Dr @alastairmiller3 advisor on ME/CFS & LongCovid podcast makes claims about ME/CFS recovery using GET that are not factual. see tweets below
1. he says "PACE had bad press" no, many many academics wrote detailed reviews of PACE trial data and methods. His basically misleads on this podcast that it was somehow just bad press coverage. He fails to tell watchers of a post-hoc reanalysis done on PACE.
2. He fails to tell watchers of his close connections with the PACE team, including working on their trials, eg GETSET, and he fails to tell watchers of the Longterm follow results from GETSET showing poor results, that GET wasnt any more useful than GP care.
Read 5 tweets

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