I agree with Peter White that drs should not tell patients with ME/CFS that it is an incurable disease, because data shows some people get better, some improve, many dont; equally drs shouldn't tell patients GET is safe and effective, neither statement is true. Word games.
https://twitter.com/ABrokenBattery/status/1436389288430682123
PACE author Peter White often uses a photo of a female patient with ME in a wheelchair feeding a horse in talks to drs, asking "whats wrong with this picture"? He panders to drs ignorance of medically unexplained symptoms -eg "why cant this patient walk, muscle tests are normal"?
..what follows is White's explanation of why patients might have ME, their beliefs, and behaviours. The story given to drs is not supported by science, but simply rests within a grand biopsychosocial model of all illlness. as I've detailed in a few of my papers. a CBT model.
Just to illustrate my point, Peter White PACE author gave that talk in 2008, he then published PACE 2011 stating GET cured 22% of ME patients, yet his most recent GETSET trial failed to show GET had any effect much greater than do nothing usual GP care sciencedirect.com/science/articl… 
the only difference between GETSET and PACE GET is GETSET had skype/phone physio but exact same exercise programme and is in fact more real in terms of what an NHS clinic offer - and was run by NHS clinics. 22% recovery in PACE v 7% usual care, is in fact just 1 patient out of 10
so between PACE and GETSET trial, White lost his 1 patient extra out of 10 who said they benefited in terms of recovery, and the usual care group recovered to the same degree. No difference - exactly why @NHSEngland @NHS should scrap GET and drs should follow new @NICEComms guide
Q why were 2 out of 10 patients deemed cured in PACE, yet almost all patients seen in the GETSET trial remained sick at follow up? how can this be? was PACE somehow different? were recovery measures different? stats should be consistent - when they are not, so we ask questions!
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