Forty years ago today, Christy Brown died at the age of 49. He was the author of four novels, and three collections of poetry. Here is a thread on Brown, and what his work has meant to me as a disabled writer.
In his lifetime, Brown feared he would be remembered by My Left Foot, a book he published in his early twenties. By the time his bestselling debut novel, Down All the Days, appeared 16 years later, he called My Left Foot 'the bleating of a naive cripple.'
Today, the thing Brown feared so much in his life has come to pass. He's now remembered, if at all, for My Left Foot, a book that he regarded as apprentice work, and the subsequent film that's nothing but inspiration and pity porn.
All my life, Christy Brown has been a constant presence. He was often the only reference point people had for CP. Whenever I'd tell people I had CP, they would nearly always reply, 'like Christy Brown?'
Far from being an albatross, Brown's life and work have been a guiding light for me, as well as a warning about the ways disabled writers can be mistreated by the literary world, even in death.
When his debut novel appeared in 1970, John Banville wrote in the Irish Times that the book 'will surely stand beside Joyce.' Reportedly, after reading the novel Samuel Beckett said, 'what vitality!'
The novel was a bestseller. In one day alone, the publisher sold 1,500 copies. Brown wrote in a letter to his brother that he feared he was 'a literary freak, a one book man.' Here was the affirmation he needed. He was a writer, and not only that, but a great one.
Two more novels appeared in his lifetime, alongside three collections of poetry. A Collected Poems, alongside another novel, were published posthumously.
The response to his debut novel was ecstatic, but the ableist responses that Brown would get from critics for the rest of his life also began to appear. Time Magazine wrote, 'how he even manages to shift the key on his typewriter amazes me.'
Even from beyond the grave, Brown's work was belittled. Here is the headline of one review of his Collected Poems, 'Poems from a Left Foot.' All his life, Brown was infuriated that many critics focused on HOW he wrote, rather than focusing on WHAT he wrote.
At first, obituaries acknowledged Brown's literary achievement, with almost all the major paper obituaries remembering him as the author of the bestselling, critically acclaimed smash, Down All the Days. Then, just a handful of years later, Brown's legacy changed forever.
When My Left Foot, the movie, premiered, it ensured that the very thing Brown so despised would come to pass: My Left Foot, a book he effectively disowned, would become his legacy. Of his seven books, only one is still in print. You guessed it: My Left Foot.
Even as a teenager, I sensed that there was more to Christy Brown than anyone was letting on. And so, book by book, I read every word he ever published. One of my most prized possessions is this, a signed edition of his first collection of poems.
Ever since, Brown has been a foundational writer for me, both due to the sheer panache of his words, and as a cautionary tale about the ways the literary world can mistreat and misrepresent disabled writers, even after they're gone.
I've written about Brown many times, but unfortunately no paper wanted to publish anything to commemorate his achievement on the fortieth anniversary of his death. I'm not going to lie, it is disappointing. If it's not about My Left Foot, editors don't want to know.
No twentieth-century disabled writer continues to be as wildly misrepresented as Christy Brown.
If you take nothing else away from this thread, let it be this: Christy Brown was so much more than My Left Foot. He was a genius, a word I don't use lightly, and a pioneer of disabled literature.
Because my tweet scheduling didn't go through when it was supposed to, I need to post a correction! Christy Brown died forty years ago, on the 7th September. But the gist of the thread still stands. I also want to mention that Brown was also a painter!
My Left Foot, the film, ends with Brown getting married and a happily ever after. But the truth is much sadder. Brown died after choking on a piece of lamb chop, and many of Brown's siblings believe that Brown died because his wife didn't watch him carefully enough during meals.
TW abuse
It was also found that Brown had significant bruises on his body, with all signs pointing to Brown's wife having been abusive. In his later years, Brown's frequent depressions worsened, and his alcoholism deepened.
In a poem, Brown wrote, 'god grant me this, when I die it will be under an Irish sky.' Brown didn't get his wish. He died in Somerset, isolated from his family and the country he adored.
One of the peculiarities with talking about Brown is that he's at once very well known, due to My Left Foot, but also profoundly unknown, as his best literary achievements are almost entirely forgotten.
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I have a Google alert for the word 'disabled' and a story about 'benefit cheats' landed into my inbox. This line from the story is utterly chilling: 'days before and after the home assessment of her level of disability, DWP investigators secretly filmed her at the supermarket.'
I'm not going to link to the story, but it's from the BBC News site. Just an idea, but if broadcasters gave the same space to the thousands of disabled people who are denied benefits, people might actually have a better bloody idea of what it's like to be disabled in England
Combine that line with the fact that police forces actively share information on disabled protesters with the DWP, and you get a truly terrifying picture.
How did I not know that Atos, the very same organisation that regularly destroys disabled people's lives, are a leading sponsor of the paralympics and have been for years?
Looking into it more, Atos, who's benefit assessments regularly force disabled people into poverty or suicide, have been paralympic sponsors since 1992. Disgusting would be an understatement.
Alt text: My Death by Tim Dlugos.
'when I no longer/feel it breathing down/my neck it's just around/the corner (hi neighbor)'
Dlugos was writing from the height of the AIDS epidemic, an epidemic that would claim his life in 1990, at the age of forty. This poem really seems to nail what I'm feeling so much these days: that sense of being hunted by forces beyond your control.
For like the two people who stick around for my poetry content, I appreciate you xoxo
So, let's recap: 1,200 scientists have signed a letter published in The Lancet, saying that the lifting of all restrictions on Monday is an 'unethical experiment' that encourages new covid variants.
Meanwhile, I and every other disabled person I know has been haunted by the fact that 60% of the UK's Covid deaths are disabled people. Just yesterday, it was reported that people with learning disabilities are eight times more likely to die from Covid than their peers.
What does the new government guidance recommend for disabled people to do? 'Avoid the indoors and the unvaccinated.' Just as we have been throughout the entire pandemic, disabled people are being ignored, while we make up a majority of the UK's covid deaths.
Can you imagine posting a trash take like this while 60% of the UK's Covid deaths are disabled people? Just say you care more about your holiday than disabled people's lives.
It's certainly been an...experience to find out just how many people value their trip to Spain more than my life
Can you imagine having the nerve to say that nondisabled people are being discriminated against in the pandemic, when disabled people make up a majority of Covid deaths, DNRs are still being issued, and we're being ignored in the vaccine rollout? Good lord
Ever since the news came out last week that a majority of Covid deaths in the UK are disabled people, I've been able to think of little else. Despite making up less than 15% of the population, disabled people make up 60% of the UK's Covid deaths.
I've been wondering why I've been so desolate, sluggish, and unable to concentrate. Watching eugenics become casually mainstream might have something to do with it.
Disabled people in the UK have been living with a certain amount of background terror for over a decade now thanks to Tory rule. But I've never seen so many people say, on national platforms, that my life is expendable as much as right now. It's incredibly hard to take.