Ok talk time. I went to London coffee festival today. The brochure said ‘all levels are wheelchair accessible’. I was sent up stairs to enter (I have a paralysed lower leg and use mobility aids - I can just about manage stairs). Once inside I was in pain and needed to
use a lift - I couldn’t manage any more stairs. I am DISABLED and require accessibility. I asked 4 different people where the lift was. All of them passed me on to the next person. The final security guard laughed at me, pointed to the stairs and said
‘here you go, much quicker’. He could clearly see I had a walking stick and a leg brace but just laughed in my face and mocked me. I stood with a disgusted look on my face and spoke back to him - and all the others. For them to just legit offer me no solution at all
They told me ‘oh well I have seen people on this floor in wheelchairs so there must be a lift’ - but did nothing to accommodate me. I honestly cried lol. I’m sorry but I cried. The blatant disregard for me and my needs - because what? What is it? I don’t look disabled?
So I had no choice but to struggle up and down the stairs? I haven’t felt like this for so long. And to top it off? I was invited here? As VIP and press? Ok - here’s your press - you don’t give a shit about disabled people.
when you add this to the fact when I arrived in London at a ‘step free access’ station & walked to the lift it was closed off ‘out of service’ I legit cba. What’s the point lol. I’m tired. I’ve put on a smile all day to enjoy my time with my able bodied friend but I hurt inside.
I really promise you guys I tried to fight, I said it was so wrong, I said I AM DISABLED. And nothing was done at all - no care at all. I was a nuisance! One person said, ohhh I saw that thing in your hand, thought it was an umbrella ha ha ha. No.
Looping back round to this - not all disabilities can be seen, I should have been allowed the accessibility I needed simply by asking it, regardless of whether I had my mobility aids, a wheelchair, or no visible aid at all
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Hi buds. London coffee festival messaged me apologising on Instagram
I’ll text back in 3 days I think I’m tired atm lol no offence and only a bit bitter and all that but feeling the damage is done currently. Always room for progress and time for improvement but I am a bit drained with it now
It’s great that when we speak up together and unite as disabled people stuff does get done but it’s just still shit that in those situations in public when you don’t have the #NEISvoid besties who understand you to help out, people don’t care. Sigh. Love u all thank you
Cropped the name cos it was very quickly deleted but. My parents ‘ALLOWED’ me to be sectioned for 3 months because neither one of them is a doctor. And they trusted what the doctors told them, why wouldn’t they? Isn’t that a doctors job? Don’t ever question my family’s actions.
My parents drove an hour every day to visit me and stayed in that psychiatric ward waiting room in despair for days in a row when I refused to see them and didn’t know who they were. They watched me dying in front of their eyes completely helpless. My parents did nothing wrong
You think my mum wasn’t awake every single night trying to find some sort of answers and make some sort of sense of it? She was told BY PROFESSIONALS to go and work out why I’d had a mental breakdown and so she put all of her energy into that. Sorry but this has made me so cross.
Since im cross today. @bumble why have you removed this photo from my account LOL? This is the fourth time you’ve removed my fully clothed pics from my profile? Hello? Do you want me to stay single? It’s been seven years guys
@bumble they’ve just informed me that ‘at least one of the photos on my account borderline violates the guidelines’ can you guess which one it could be? this so circles back to the issue we’ve been discussing here all day. If you are curvy, you’ll always be objectified
Anyone who’s on bumble, I guarantee whilst your swiping you’ll have seen girls wearing crop tops, shorts, lace bodysuits, tie front tops etc - but those are all fine of course... but me fully clothed with cleavage? ABSOLUTELY NOT. NAKED. VIOLATION.
Today is the most important day of my year, #WorldEncephalitisDay 2021. #Red4WED
Encephalitis is the rare brain disease I had age 20, which was misdiagnosed as being a mental breakdown, left to worsen for 3 months in a psychiatric ward and ultimately led to me becoming (1/9)
permanently disabled, both visibly and invisibly.
It may be hard to imagine if you are a newer follower that there was a time just a few years ago that I couldn’t walk, talk, read or write – and by just looking at my pictures on Instagram, you’d probably have no idea that(2/9)
I am living with an acquired brain injury which has completely altered the direction and path of my life. I choose to speak about Encephalitis wherever I can, because I know that despite the fact that there are hundreds of thousands of cases of the disease worldwide per year(3/9)
lol someone just replied to the pic of my burn scar on my bum with this and I oopidoopidooooo. Why do some men?
Hey by the way. Scars aren’t ugly at all. They just aren’t. And also, if you think my scar is ugly then I am so sorry for having a brain disease and a big seizure and burning my bum on a radiator pipe I WAS CATATONIC SORRY silly ME
I’m so bored of all the nasty comments about my disability and body etc online atm. I’m replying to everything from now on with sorry for having a brain disease SILLY ME LOL