The Lion & The Donkey (fable) is a good lesson in general though it does not translate to issues where donkeys are in power, in which case it’s dangerous to ignore them 1

fizikamind.in/blog/dont-argu…

#InstitutionalisedDiscrimination #MECFS #PublishThatGuideline @NICEComms @MHRAgovuk Image
In the NICE debacle:

Lion = NICE

Donkey = opposition to new guidelines (small but powerful groups)

Tiger = supporters of new guidelines

Grass = GET: Green = harmful, blue = helpful

2

#InstitutionalisedDiscrimination #MECFS #PublishThatGuideline @NICEComms @MHRAgovuk
In the NICE debacle donkeys have had influence over the media and therefore the public for years:

mrtopple.com/2019/03/18/the…

3

#InstitutionalisedDiscrimination #MECFS #PublishThatGuideline @NICEComms @MHRAgovuk
In cases where donkeys hold power/influence apathetic lions/others in power should be doing more to prevent misinformation spreading like wildfire.

Not correcting the donkeys is irresponsible

4

#InstitutionalisedDiscrimination #MECFS #PublishThatGuideline @NICEComms @MHRAgovuk
Ignoring a problem allows it to snowball & sufferers will remain at risk if the donkey’s views aren’t challenged

Patient health is & should always be the priority

GET harms pwME/CFS

The end

5

#InstitutionalisedDiscrimination #MECFS #PublishThatGuideline @NICEComms @MHRAgovuk

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More from @Turner12341

27 Sep
telegraph.co.uk/health-fitness…

Just the title of this article says it all really

Making it all about Dr Fitzpatrick and detracting from the real issue whilst affecting opinion with sensational wording

#InstitutionalisedDiscrimination #MECFS #PublishThatGuideline @NICEComms @MHRAgovuk
>“250,000 people in Britain are estimated to have chronic fatigue”

That is for the SYNDROME (has hallmark symptom of PEM)

The SYMPTOM chronic fatigue (accompanying many illnesses) is different

#InstitutionalisedDiscrimination #MECFS #PublishThatGuideline @NICEComms @MHRAgovuk Image
“chronic fatigue, characterised by extreme tiredness and generally feeling unwell”

Gross understatement for cfSYNDROME

This chronic, fluctuating neurological condition affects many body systems

#InstitutionalisedDiscrimination #MECFS #PublishThatGuideline @NICEComms @MHRAgovuk Image
Read 25 tweets
25 Sep
“Health and well-being are a top priority for us”

Will you keep this promise to your staff when you’re failing patients?

2007 guidelines STILL recommend GET

New guidelines inexplicably paused

#InstitutionalisedDiscrimination #MECFS #PublishThatGuideline @NICEComms @MHRAgovuk
“we understand the importance of creating a respectful, supportive, and transparent environment for all our employees.”

It’s curious you don’t understand the same for the ME/CFS community.

#InstitutionalisedDiscrimination #MECFS #PublishThatGuideline @NICEComms @MHRAgovuk
“Health and well-being are a top priority for us because we understand the importance of creating a respectful, supportive, and transparent environment.”

H is left out of your acronym 😑

#InstitutionalisedDiscrimination #MECFS #PublishThatGuideline @NICEComms @MHRAgovuk
Read 9 tweets

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