Thread by @longcovidadvoc1

🌟Patients' Charter for ME/CFS/PVFS🌟
🌟1st aim: for patients to put their signature for their needs to the Roundtable
It will be physically & electronically sent to NICE

Idea: to share on the 18th October to clearly state what we deserve?

To Sign⬇️⬇️
docs.google.com/document/d/1XV…

🌟2nd Aim: Charter to be available to anyone who needs it (spoon saver).
It has been collectively written to help give a concise statement of the strong, supportive foundation for the medical care we deserve.

To Download, Print, Share⬇️
docs.google.com/document/d/1OE…

🌟3rd Aim: collaboratively create a Charter for #LongCovid
#PVFS (Post Viral Fatigue Syndrome) is a term applicable to ME - yet this can also include #LongCovid
#LongCovid community we need your help on this too - please sign🙏
There are many overlaps!

The Charter aims to be concise for impact.
Yet there is much more to say - an extended commentary is in the making
DMs welcome

The Charter could not have been done or improved without the offer of help, ideas & assistance of others So a huge thank you too 🙏
@HappyHoundHouse
@WoollerEmma
@DrBEvans
@JBKid7
@rupert_higham

🌟We have about a 2 week window (until 11th October) to collect signatures and for it to be sent & given time to be seen by NICE.
🌟The Charter can also be shared and RT on the day of the Roundtable (18th October) as a way to make our needs heard

RTs would be great!
@Dan_Wyke @VladVexler @MEFoggyDog @HappyHoundHouse @JBKid7 @keithgeraghty @b_m_hughes @kimmissinglife @Outlier1952 @KirstieWrites @ShaneyWright @doctorasadkhan
@PhysiosForME @DressFor_ME @MrTopple @TheChronicColab @chronicinclude
@postersandme