#SpoonieChat do you say you are chronically ill, disabled, or both? why? whats the difference? to me chronic illness is any chronic health condition. it doesnt have to cause discomfort or interfere with your life #NEISvoid #DisabilityTwitter #chronicpain #chronicillness #spoonie
disability is when you have a permanent or temporary condition that negatively impacts how you interact with your environment. it can be acquired or congenital- and dynamic, stable, or progressive in presentation. there are many models of disability: mainly the social and medical
I am disabled due to a chronic illness & also due to the cumulative impacts of 15 different mental and physical conditions. between undiagnosed adhd & asd, and official eds, neuropathy, pinched nerve, costochondritis, asthma, lung damage, rib slipping, crps, migraines, headaches
some of my conditions are stable in presentation, many are dynamic, and eds is both progressive & dynamic. I labeled myself as only a #spoonie until I needed a wheelchair, lots of medical care, accessibility accomodations, and a caretaker. then I accepted the label of disabled
the line between disability & chronic illness is hard to determine medically. some things also blur the lines. if a disability is perfectly controlled by medications is that person still disabled? id say yes as their life depends on that med & if it disappeared they would die
before you comment about disability & chronic illness not being the same: I know the 2 arent synonymous thats why I wrote a lot of comments distinguishing disability & chronic illness. I had someone request I foster more conversations around c.i. so that's what I'm trying to do
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