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Discover and read the best of Twitter Threads about #chronicpain

Most recents (18)
I can... Do things. #spoonielife #myspoons

(That's a GIF of ladies dancing in a studio with the caption Namaste.)
So I went to this place for an same-day urgent consult.

They gave me the pain meds I was out of - Celebrex & Gabapentin. Then they gave me a shot for my new pain and a steroid.

I feel... Brand new. 🐣

(That's an emoji of a chick still an egg.)
I take that back.

I feel like me.
Read 29 tweets
It took How Great Thou Art, Formation & Sorry to get back out of bed.

Pray for me.
Nothing you want to hear more at the doctor's office than no room to sit down and wait for the doctor.
That was maybe my best urgent care appointment ever. They're giving me a shot for my pain. #ChronicPain
Read 6 tweets
On #myspoons today I want to talk about other people's expectations & ableism about your symptoms.
The ones that plague me the most are #fatigue & #chronicpain. I went from writing 1800 words an hour, up to 4x daily?
To falling asleep while writing a single tweet. & Still needing at least 5 minutes of rest after sometimes.
Read 19 tweets
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We need to sue. At this point #chronicpain patients need a class action suit.

Sue the @CDCgov
Sue the Asterisk Administration
Sue Congress
Sue doctors who won't treat our pain.
Sue every state that hasn't legalized the sale of medical marijuana.
And where are the greedy ass pharma companies on this issue?

Why are none of the manufacturers of the medicine we need reaching out in support of our activists?
This is state-sanctioned torture. And I'm fucking fed up.
Read 4 tweets
This is a great suggestion.
Part of the reason I save my threads is to put them in a format I can turn into blog posts or essays etc.

My problem of course is being a #spoonie with #fatigue issues.
If you have an #chronicillness with chronic fatigue and/or #chronicpain that saps your energy & you're an author...
Read 7 tweets
Today #myspoons are exhausting but improving.

My mood isn't great but I may have solved the dilemma of changing my #spoonie walking regimen.
Be it so resolved- doctor's orders currently over rule my mother: I cannot walk every day, that is madness.
Not even Naomi strut on walkway speed. Issa no.
Read 12 tweets
All day long it has felt like someone is pulling a huge pin through my left hip into my right hip & back out the other side.

Just 1 of several fun issues. #ChronicPain
I thought moving around more might help. Just made me have to walk like Frankenstein’s monster. πŸ‘πŸ½ #sexy #bonepain
I need to know other humans felt like this and woke up the next day. Spoonie fam? Give me hope?
Read 4 tweets
Some people are curious how not having my full course of meds keeps me from working full time.

This is where I'll start the story of #myspoons today.
Not that I owe them shit. But maybe you or a #spoonie squad member of ours might find it relevant or helpful.
So in a nutshell, the less pain I'm in? The more I can do.

"But Tinu" some y'all say, "If your work is mostly digital, aren't you good as long as you have a laptop & a computer connection?"

Haha nawl!
Read 22 tweets
🐰 #chronicPain self care suggestions 🐰
🐰 give yourself 30 minutes with your TENS machine. if it takes longer, that's perfect too.
🐰 take a hot shower or bath. really hot (or cool if you prefer). really long. no scrubbing. just enjoy.
Read 22 tweets
I wonder who even listens or cares when I post about #ChronicPain outside the #spoinie and disabled community.

I really do.
Of course I know why I do it.

I'm trying to humanize people whose #ChronicDisease may not be apparent.

It's sad that humans don't naturally want to save an abstract life.
I know that hearing other people's story extends the life of #myspoons. So I share mine in hopes of doing the same for others.

And to be a part of #shareourpain & lots of other reasons.
Read 25 tweets
The amount of added pain I get when I go downstairs & heat up dinner so I can take meds...

Meds I can't take on an empty stomach. That cause weight gain. #Fibro
But if I wait, the timing of other meds will be off. So will my sleep. Weeks of cascading errors. #chronicpain
The agony is exhausting to the point that I'm not only no longer hungry, I'm nauseated.

By the time I recover my food will be cold as usual.

#SpoonieProblems
Read 6 tweets
Type foggy. So I'll tell you about #myspoons then it's off to bed with me.

#brainfog
Today #myspoons were supportive. I received support from others via Twitter.

We committed & shared stories. I only wish I had the energy to respond when the original poster began to vent.
If you ever become a #spoonie with #chronicpain, #fatigue or other conditions that cause you to become #housebound, you may find yourself searching for community, support, tips or other types of help.

The web can provide that.
Read 12 tweets
Doctors are no longer a driving part of the #OpioidHysteria. They never really were. Why why why are we still getting these stories instead of what’s really going on? Alt facts much? How very Trumpian. News media needs to take a good look in the mirror & start facing the truth.
Define β€œoverprescribing” please. 91 ppl per day die from overdoses: from what exactly? Which meds? Multiple meds or just Opioids? God I’m fucking tired of this whole bs narrative still going on.
How about the painful stories of vulnerable ppl -disabled-Veterans-elderly- being cut off from #opioids & committing suicide b/c their pain is so bad?? #SuicideDue2Pain #PainKills
Read 18 tweets
I'm trying to smile through this but I keep thinking...

I'm privileged. If dealing with healthcare is this bad for me? It must really suck for others.
Not to mention how the anxiety & stress is racheting up my #chronicpain issues. So here's a rare morning summary of #MySpoons "Healthcare is Fucked" edition.
So the great plan I had last year was ended by Blue Cross Blue Shield Texas probably because it was a great plan. I was moved to a "comparable one.

Narrator: It did not compare.
Read 19 tweets
I have to be up late for work to measure certain things in real time. And I realize I haven't talked about #myspoons lately. So here we go.
Today I'm forced again to consider how the world is not built for me. I'm constantly trying to fit it. & it feels like failure.
I say "feels like" of course, because it is Not my failure. It's neglect so consistent deep that we're fooled into thinking it's normal to discount a portion of our society.
Read 31 tweets
Lots of new people, hi! A thing I do every few nights is talk about #myspoons - in #spoonie parlance it’s shorthand referencing energy.
A #spoonie is a person w an invisible #disability. You might not realize it but we’re everywhere. If you're hiding illness you might be one.
The term comes from The Spoon Theory written by Christine Miserandino (@bydls)

πŸŽ₯
Read 18 tweets
If you’re a politician (or anyone) that supports stricter laws on #Opioid prescribing but not on #GunControl don’t tell me you care abt ppl.
If you’re a politician (or anyone) that supports #AbortionBans but not #GunControl don’t tell me you care about people.
If you’re a politician (or anyone) that supports #RefugeeBans but not #GunControl don’t tell me you care about people.
Read 7 tweets
1. These are just a few of the people who were betrayed & murdered by the Gov & Doctors b/c they suffered from #ChronicPain.
2. These people were, & millions more are, disabled & being actively & maliciously denied proper medical care b/c of the #OpioidHysteria
3. that has taken over our Government, Insurers, Doctors & Pharmacies. We are, apparently, the acceptable collateral damage in the
Read 7 tweets
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Make a small donation instead. Buy me a coffee ($5) or help for the server cost ($10):
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