Thread by @Healthy_Control

1/n
“Seven years ago, when I started talking to people with ME/CFS, I was puzzled and cautious about claims made around trials and treatments. After having talked with many hundreds of patients and their carers ...

https://twitter.com/Healthy_Control/status/1450035494398664706

2/n "...(I have no close contacts with ME/CFS and no 'competing' interest in the disease), listened to dozens of academic colleagues describing their work and views and read hundreds of papers, I have come to a clear conclusion."

3/n "The patients' claims are entirely plausible, factually accurate and intelligently expressed, including in several excellent peer-reviewed articles. My colleagues’ claims are mostly hot air, in some cases clouded by deliberate obfuscation."

4/n "I am not so much shocked as saddened that so many of my colleagues should advocate returning to a nineteenth-century approach to medical evidence where clinical experience is considered more relevant than careful analysis of formal trials."

5/5 "NICE has produced an excellent guideline. It deserves everyone's support and should be published immediately.”

Prof Jonathan Edwards, Emeritus Professor of Connective Tissue Medicine, UCL, UK
18 October 2021
#pwME #PublishThatGuideline @NICEComms