1. I feel very sad and angry, having watched Graham McPhee's funeral this afternoon. All these years gone. I want to share a section from the interview we did with him. "Bob (Courtney) was helping a number of quite eminent people get to grips with the complexities of it because
2. it's a very tangled study. I mean it’s terrible, but it’s tangled. And there are lots of things in it that you can use. He was trying to get lots of people to understand it better. There was a lot of people reacting against the PACE study, so another friend Janelle Wiley
3.andI volunteered to put all their ideas together in a detailed analysis of what was wrong. We tried to get in touch with the editor of the Lancet, we tried to get in touch with one of the authors of the PACE Trial, they just ignored us, then we tried to get in touch with a
4.deputy editor of the Lancet, and another of the PACE Trial authors, again they ignored us. So then we tried journalists, MPs … we had a long list of people to try both here and in America. They all ignored us. I think only two people responded – one was the Countess of Mar...
5. I think that was what really shocked me, not that the PACE Trial was so bad, that was a big shock, make no mistake, it was so bad it really shocked me, but the fact that we couldn’t get anyone interested and we’d tried all sorts of people. People who were scientists,
6. people who were psychologists, the Royal Statistical Society, the Science Media Centre. All these people .. and they’d either not respond or they’d say it’s not a good time at the moment. Or it’s not really our thing, I’m rather busy with something else...
7. And you think, you’ve got a quarter of a million people ill with this disease, you’ve got 5 million pounds on this study and it’s so bad… and you’re not interested!!! I found that really difficult to take." Graham McPhee. @johnthejack @sjmnotes @TomKindlon #MECFS #MedEd
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