@TheSleepCharity I am unsure what you have been informed on the proposed Disorder "Pathological Demand Avoidance". However, it is a highly controversial & severely contested topic.
@TheSleepCharity You have probably been told by the PDA Society, "Pathological Demand Avoidance" is a form of the autism spectrum, which would be a misleading description of it.
@TheSleepCharity Recently, three independent reputable parties have considered the evidence base for PDA, concluded that there is no evidence to suggest what features are associated with "Pathological Demand Avoidance", or what it is.
@TheSleepCharity The previous two tweets are screenshots & links to the position of @BPSOfficial & @NICEComms on PDA. One should note that they equally respected divergent opinion on "Pathological Demand Avoidance".
@TheSleepCharity You should also note there is debate over PDA being seen in non-autistic persons, which is also supported by recent systematic review.
@TheSleepCharity It should not need to saying, that only viewing "Pathological Demand Avoidance" as a "Profile of Autism" intrinsically discriminates against non-autistic persons with PDA.
@TheSleepCharity Thank you for time, and I hope you have not been mislead on the nature of "Pathological Demand Avoidance", and its current ongoing debates, by certain disreputable parties.
For the record these are questions I am awaiting a response from Development Group members from.
It is widely acknowledged in the PDA literature that it is not in the main two diagnosed manuals. I have email confirmation that It PDA was excluded from the DSM-5, by the Neurodevelopmental Disorders Workgroup...
... It is widely recognised, including in the DSM-5 anxiety is not a feature of autism. It is argued PDA’s demand-avoidance is driven by anxiety, and it is developed and maintained in a negative reinforcement cycle...
@PDASociety As the charity is at present failing to explain how viewing PDA as a "Profile of ASD" conforms to the DSM-5 autism & NICE autism guidelines, I am struggling to see how how this is helping the charity to help others. Some clarification is needed.
@PDASociety At present this a literal example of how "PDA Profile of ASD" is being used to control various autism stakeholders.
Should be noted charity has on its website PDA is part of the autism spectrum.
@PDASociety Without the requested clarification, it can be viewed as misleading the public on PDA. Especially when independent parties have reviewed the evidence, stated no evidence to suggest what PDA is & equally respected divergent opinion PDA.
Curious, if many of us would bother with/ care about such non-autistic social intrigue over how you sign a letter/ email communications.
For the record, the next two tweets discuss the possible implications of how Boris addressed the Speaker of House of Commons, & how Boris signed the letter.
PDA theory suggests more distressed a person is, more likely they are the escalate through these features.
The reason is, that these social avoidance features are anxiety based RRBIs, which are meant to be developed & maintained through a generic negative reinforcement cycle.
Is there any professors/ senior academics in autism studies based in the UK who are sympathetic to autistic perspectives & agenda?
Tangent, off the top of my head many are based in non-Russell Group unis. I admit this is based off the top of my head & could be an unrepresentative sample.