Oh my goodness, what I am learning about the lived experience of temporal lobe epilepsy is mind-blowing! People can be misdiagnosed with psychological whatnots for years, and be gaslighted into oblivion because of the arrogant ignorance of psych professionals! This is terrible!
This was published twenty years ago! Twenty years! I want to scream! pubmed.ncbi.nlm.nih.gov/12609265/
How many people are being misdiagnosed and misdrugged and ending up with liver problems?
And how many liver problems, for that matter, are being treated as "all in your head"? Do you know what happens when the liver stops clearing heavy metals properly, for example?
And then on top of this, people who have all this going on don't "behave" like normal people and get punished for it, resulting in trauma...
...and they get put into BEHAVIOUR therapy...
This video is making me cry. How many people have this multiple times per day and are BLAMED for being "overly emotional"? 😭 They are having #seizures! #Epilepsy!
Full video on Ray's lived experience of Temporal Lobe Epilepsy:

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More from @ekverstania

14 Dec
We need to distinguish clearly between these terms:

🔷 Disease
🔷 Disorder
🔷 Disability
🔷 Difference

The way we conceptualise and define them translates into the way we treat people, situations and conditions.

The impact on society is immense.
I'm something of a relativist when it comes to some of these: I accept that there are different models and views of some of these, and it's not so much a matter of whether they're right or wrong, but whether they are helpful or not.
And determining THAT depends on our overall life-guiding paradigm and values.
Read 4 tweets
13 Dec
Treating Sensory Overstimulation

Set a reminder for this Twitter Space to be held on 19 December (or 20 December if you're in the Far East).

The time shown is in your local zone (7 p.m. for me in Johannesburg/Harare/Cairo time).

twitter.com/i/spaces/1BdxY…
This time I WILL be taking questions and comments.
Read 17 tweets
13 Dec
A HORROR STORY [THREAD]

Once upon a time, an autistic person was found screaming.
So the Experts put him in ABA.
After two weeks, he was still screaming.
Read 6 tweets
13 Dec
My bag was gone. Phone, everything. They left my wallet on a bench in the mall, flayed, with just some business card I've had in there for ages. I lost my ability to speak as a stumbled towards the busy supermarket. Could just say, with great difficulty, "Police. Police."

But...
I knew that the police would not recover my money, my cards, everything else.

And on top of it all, I had forgotten where I was staying, the name of the hotel.

And then I woke up! I woke up! Haaa, relief after waking from a nightmare is such a nice way to start the day!
I tried to go back to the dream after that so that I could catch the thieves, but I had to decide whether I would do it from the top, swooping down from plan view, or from below, which seemed more complicated but more realistic... So I dozed off in indecision over the plot.
Read 6 tweets
12 Dec
#ThisIsProfoundAutism:

A deliberate, systematic silencing of the people most likely to be labelled that way, and an attempt to prevent them from helping others like them.
#ThisIsProfoundAutism: It's about power. It's about denying the agency of people who cannot talk, for the sake of power and money.
#ThisIsProfoundAutism: It's about holding up the self-injurious behaviours of profoundly marginalised people as an excuse to deny them agency and repeatedly abuse them using #ConversionTherapy. #FollowTheMoney

autisticstrategies.net/nonspeaking-au…
Read 4 tweets
6 Dec
What autism topic do you want me to cover next in my Sunday Twitter Space?
FWIW, the cooking one would be aimed at people who are exhausted, brainfogged, executively dysfunctional or dyspraxic, who are trying to eat as nutritionally as possible, with sensory issues around food, and with food sensitivities.
The sensory overstimulation one would be about the various categories of sensory overload and the cofactors (based on my learning to date), and how I've kept my own sensory overload in remission for 6 years, and what results others (adults and children) have achieved.
Read 6 tweets

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