woke up today in LA w the goal of getting tested (to be safe, no known exposure/symptoms). I've spent >half my day looking for free testing sites nearby, w/o luck. I'm insured, have flex work hours, and am an expert on COVID. if it's this hard for me, there's a big fucking issue
the LA county website mainly directs to CVS stores (none of which have available appointments). when I went to the CVS near me to ask, I was told to log on at midnight tonight when appointments for thurs would become available (for about an hour before they are all booked).
I'm aware of + continuing to research a variety of options (and will update here and on IG once I figure out a sustainable solution for weekly, free, reliable PCR testing in LA), but I feel a sense of overwhelming despair rn at how many deterrents there are to getting tested
update: I've managed to book tests w three diff sites / companies for tmrw, wed, and thursday. I'm doing tests daily bc I was w/ more people than usual last week (outdoors ofc, but still) and I want to have backups if these sites don't work out the way I want. will report back!
Just to be clear (since this is getting attention):
1) I was looking for free PCR tests nearby — there are some rapid and self admin’d tests (less reliable) that I’d have to drive 40+ min to (which is obv what I’m doing now)
2) multiple tests is recommended for accuracy! We…
should not be in a situation where test scarcity means people who are not yet symptomatic are being shamed for testing multiple x to confirm negative status — testing regularly over the course of 10 days after potential exposure is a best practice for accuracy
Finally, test accessibility issues are not new. If you’ve followed my work during the pandemic you know I talk about this a lot. My experience this week seemed worth highlighting given the current surge + fact that this city is supposed to have easily accessible widespread tests

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More from @fi_lowenstein

22 Dec
there are some guides circulating on what to do if you are infected with COVID. many of them are helpful, but few address the possibility of #LongCovid. So, I figured I'd share some tips for the acute phase of a COVID infection that account for potential long-term symptoms
1) test early, test often: accessing testing can be hard af (especially during a surge + holidays, and especially if you're sick and struggling to drive and navigate bureaucracy). As tempting as it may be to say ok I'm symptomatic, I'm just gonna stay home, no need to test...
a positive COVID test result serves as a COVID diagnosis for many clinicians, and will likely make it MUCH easier to access care for long-term symptoms should you develop them. patients w/o initial tests have experienced more gaslighting from clinicians⬇️ businessinsider.com/long-covid-pat…
Read 9 tweets
13 Mar
One year ago today, I developed my first symptoms of COVID-19. Over the past 12 months, I have battled issues ranging from severe GI issues to debilitating menstrual periods, started the @itsbodypolitic support group, and have helped to shape the media narrative around #LongCovid
some key takeaways from this past year:

1. I am strong af. But, I can't do everything alone. There is power in community, and strength in asking for help.

2. Economic and white privilege played an enormous role in my experience being easier than many other patients'...
I was mostly able to access care when I needed it. I was able to quit paid work and live off my savings when I needed enormous amounts of rest. I credit my (mostly full) recovery to that time I spent resting and pacing.

3. Recovery is not linear...
Read 6 tweets
22 Dec 20
here's an end of year writing recap that doubles as a resource list! bc when I got COVID in March, I pivoted to writing almost exclusively about COVID patient issues, starting two days after I was discharged from Mt. Sinai, with this @nytopinion piece: nytimes.com/2020/03/23/opi…
On April 13, I wrote a follow-up in @nytopinion. It's one of the first reported pieces on what we now call #LongCovid, and it connected me with many of you...nytimes.com/2020/04/13/opi…
around that same time @rabbisabbi and I co-wrote a piece for @itsbodypolitic about how to support a friend with COVID. Sadly, still very relevant today: wearebodypolitic.com/bodytype/2020/…
Read 11 tweets

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