there are some guides circulating on what to do if you are infected with COVID. many of them are helpful, but few address the possibility of #LongCovid. So, I figured I'd share some tips for the acute phase of a COVID infection that account for potential long-term symptoms
1) test early, test often: accessing testing can be hard af (especially during a surge + holidays, and especially if you're sick and struggling to drive and navigate bureaucracy). As tempting as it may be to say ok I'm symptomatic, I'm just gonna stay home, no need to test...
a positive COVID test result serves as a COVID diagnosis for many clinicians, and will likely make it MUCH easier to access care for long-term symptoms should you develop them. patients w/o initial tests have experienced more gaslighting from clinicians⬇️ businessinsider.com/long-covid-pat…
2) don't push yourself: Even mild cases can lead to #LongCovid, and pushing past fatigue + exercising too much, too early, can exacerbate health issues. If you feel like resting, rest! @MEActNet has more resources on rest + pacing for post-viral illness theguardian.com/commentisfree/…
3) track your symptoms: if your symptoms persist for over a month / you develop #LongCovid it's likely you'll witness your symptoms change over time. It's helpful to have a log of what you've experienced so you can accurately convey your symptom trajectory to care providers...
When I was sick, I texted myself every day w/ updates on my symptoms. Other patients prefer apps or google spreadsheets. That being said, it is not always easy to keep track of these things while sick – consider identifying a caregiving team of friends + family who can help.
4) mindset: remember that while you can take steps to try to improve long-term outcomes from COVID infections, there is no way to *guarantee* a swift recovery from a Covid-19 infection. You are not doing anything wrong, nor are you to blame, if you develop #LongCovid.
finally, please note that all of these suggestions are limited in a world where testing access is difficult, healthcare systems are flawed, and necessary workplace protections aren't in place. many don't have the privilege to spend time seeking out testing, or resting.
and if you do develop #LongCovid, know that there is a big online community providing emotional support, guidance + validation. @itsbodypolitic has a pinned thread w/ support groups + orgs around the world, and more resources can be found here: wearebodypolitic.com/resources
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woke up today in LA w the goal of getting tested (to be safe, no known exposure/symptoms). I've spent >half my day looking for free testing sites nearby, w/o luck. I'm insured, have flex work hours, and am an expert on COVID. if it's this hard for me, there's a big fucking issue
the LA county website mainly directs to CVS stores (none of which have available appointments). when I went to the CVS near me to ask, I was told to log on at midnight tonight when appointments for thurs would become available (for about an hour before they are all booked).
I'm aware of + continuing to research a variety of options (and will update here and on IG once I figure out a sustainable solution for weekly, free, reliable PCR testing in LA), but I feel a sense of overwhelming despair rn at how many deterrents there are to getting tested
One year ago today, I developed my first symptoms of COVID-19. Over the past 12 months, I have battled issues ranging from severe GI issues to debilitating menstrual periods, started the @itsbodypolitic support group, and have helped to shape the media narrative around #LongCovid
some key takeaways from this past year:
1. I am strong af. But, I can't do everything alone. There is power in community, and strength in asking for help.
2. Economic and white privilege played an enormous role in my experience being easier than many other patients'...
I was mostly able to access care when I needed it. I was able to quit paid work and live off my savings when I needed enormous amounts of rest. I credit my (mostly full) recovery to that time I spent resting and pacing.
here's an end of year writing recap that doubles as a resource list! bc when I got COVID in March, I pivoted to writing almost exclusively about COVID patient issues, starting two days after I was discharged from Mt. Sinai, with this @nytopinion piece: nytimes.com/2020/03/23/opi…