ICYMI people in pain & PWUD have been harassed, endangered, and killed because of poorly designed drug policy. The ivory tower drug war perpetrated by the iron triangle of inept bureaucrats, interests, and Congress has now reached into healthcare targeting our most vulnerable.🧵
Some love to claim science can fix all our problems but in the case of drug prohibition, which now affects our sickest, those using low/no evidence "science" to justify such policies have already unleashed unprecedented harm on the American people and destroyed population health.
A "vaccine" is not a tool for PWUD to "overcome opioid addiction." Not only does this border on unethical, but it'll also be used to continue justifying deadly policies that now impact sick and injured patients. It's also likely to result in more suicides.
A "vaccine for addiction" that makes drug use more difficult is simply one more path-dependency justified by the unholy trinity of industry, academia, and their friends within government to maintain/increase resources. This has been the status quo for 40 years with awful results.
Your claim that PWUD "need all the tools in the toolbox" to "overcome opioid addiction" using "replacements like methadone, blockers like vivitrol, counseling and healthcare, and antibodies to help out of rehab" is beyond naive. It borders something else entirely.
In fact, your naive claims cross directly into enabling a greedy system that will continue to harm countless American taxpayers. One that kills with impunity. Their interventions using our tax $$$ have made things infinitely WORSE. How long are we expected to bankroll failure?
Your other claims concerning people in pain are similarly naive. CDCs Rx guidelines were not supposed to be weaponized either but they were. I'm sure that isn't the stated goal for this "vaccine" either, but that's exactly what will happen. It'll be exported to pain patients.
Because use is conflated w/abuse. Those of us who pay attention to drug policy know this. Tools and language have & will be weaponized for profit. If you don't recognize the trends after what's transpired in the wake of the CDC "guidelines," then you're NOT paying attention.
How we "treat drugs of abuse" and policy should be simple. #HarmReduction should be employed. Because if we don't? Instead of 100k dead in 1 year, we're going to see a whole lot more. And these are just the deaths we KNOW about. These policies have FAILED repeatedly for decades.
In the wake of the CDC guideline, patients have been rationed out of the healthcare delivery model. How? By building those "guidelines" directly into clinical decisions support & other systems. This is the health IT ecosystem. A system that was built for surveillance & rationing.
They call this a "learning health system," except it rations out undesirable patients based on immutable characteristics and histories such as (medical/other) drug use. Interoperability and all the rest of it aren't yielding healthier people, better care, or smarter spending.
It's yielding poor health outcomes that aren't even being tracked. Those who haven't been rationed out of the system are being studied without their knowledge or consent in many cases (ePCTs & CER), while this system "learns" how to further discriminate & erect barriers to care.
You add something like "opioid vaccine hesitancy" to the list for predictive analytics and we're going to see discrimination and poor health outcomes on a level never before seen in history. Results will be even starker than those seen in the wake of CDCs unscientific guidelines.
Your claim that an opioid "vaccine" wouldnt "cut into patients access to all iterations of opioids" borders on ridiculous in light of recent history. Your claim that "patients could still use fentanyl" shows your complete lack of knowledge of the current climate/policy landscape.
Maybe you're completely unaware, but pain patients can scarcely access ANY analgesics or even basic primary care now. This includes cancer & hospice patients. We're denied access for fear of "addiction" affecting around 1-3% of the entire population (< than 1% for pain patients).
As a writer, you should already be attuned to these facts. It's much more likely people with chronic health conditions/pain will be the ones pressured to take this "vaccine" on the condition of continued care using modalities that have already been proven largely ineffective.
TLDR

Scientific curiosity has a dark side. An "addiction vaccine" will be leveraged by an out-of-control bureaucracy bent on waging war on Americans. All with help from the National Academy of Sciences (NAS).
The NGOs under NAS need to be reigned in after advising our federal government to build this discriminatory "learning health system" that brought this war on people to the doctors office. Their FACA exemptions should also be viewed with the deepest suspicion & legally challenged.

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More from @process_x

6 Dec
People with intractable pain are more likely to need LTOT. Things like CBT are NOT going to work and haven't worked for these people and most of them have already tried everything else. Why are we spending billions on research without acknowledging this monumental difference? 🧵
People don't understand that pain is a nuanced topic. There are people who haven't developed chronic pain yet, those with chronic pain at the beginning or middle of their journey, and then there are intractable pain patients. Why isn't research catching onto this?
There should be very structured research strategies taking these differences into account. Maybe @NIH and @PCORI can explain why these differences are not being acknowledged. We need research on LTOT too and what is comparative effectiveness research without a comparison?
Read 10 tweets
5 Dec
NIH is allocating $270M additional funding for pain & opioid research. The researchers don't pocket this money. While I don't agree with research at the bedside without the knowledge/consent of patients & then using it to further restrict access, let's not spread misinformation.
Bad things are happening, but let's keep things in perspective. Researchers do not pocket millions in grants. The money goes toward studies which then influence the practice of medicine. This is the detail we should be focusing on. Here is an image detailing the process: Image
The policy driving the response to the OD crisis as it relates to HC is the CDC's 2016 guideline, however, federal research is certainly going to change the way medicine is practiced. That is the point of embedded pragmatic clinical trials & comparative effectiveness research.
Read 12 tweets
23 Nov
In case you weren't aware that the purpose of the electronic health record (EHR) is to leverage patient data for research, check out what the NAM has to say about the learning health model in “Digital Infrastructure for the Learning Health System."🧵

nap.edu/catalog/12912/…
"The ability to draw broadly from anywhere across the globe to provide relevant insights for health and healthcare improvement is a long-term goal for the learning health system."
"Meanwhile, the ability to learn from the experiences of other countries and to apply health information technology (HIT) for biosurveillance can actively facilitate progress toward this and other goals."

Note: It's unclear what these "other goals" are.
Read 11 tweets
15 Nov
On this day 8 years ago, my father died. By the end of his life, he was crippled and homeless, all because those who were supposed to help him wouldn't. When he asked his doctor to treat his pain, he told him "man up, I'm not prescribing you anything." 5 years later he was dead.
He started using a legal drug to control his pain, alcohol. His health quickly declined even further. When his time came, he had to drink just to stave off death. He took Benadryl for an allergy attack and it interacted with the alcohol in his system.
He fell asleep at the wheel of his car, while he was driving, and flipped it off a steep road. He died on impact. I still wonder why his doctor felt it was more just for him to kill himself rather than treat his pain so he could continue being a productive member of society.
Read 6 tweets
15 Nov
What happened to the world? I had to leave the house today because I have a Western Union money order made out to me that my bank won't take via ATM anymore. Leaving my house is incredibly difficult after covid made my dysautonomia intractable & my pain levels aren't much better.
First, I went to @HEB because the website and a customer service rep told us on the phone that they could cash it. I get there in my wheelchair, after quite a bit of effort and discomfort I might add, only to be told they can only cash a Western Union money order FROM HEB. 🙄
I've never heard of such a thing but still, I call Walmart, they say they can cash it. I think to myself, maybe @Walmart will have more sane policies. I get there, get back in the wheelchair, nearly have an attack doing it, & get inside only to be told the same thing HEB told me.
Read 8 tweets
23 Sep
Just got a chance to look more at this which is also from Appriss:

Data Driven Justice Incarceration Report - Identifying Super Utilizers with Incarceration and Prescription Monitoring Data

@maiasz

appriss.com/safety/wp-cont…
If they take this down and anyone wants a copy, let me know. It's already in my repository.
Target them for what, exactly?
Read 11 tweets

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