What happened to the world? I had to leave the house today because I have a Western Union money order made out to me that my bank won't take via ATM anymore. Leaving my house is incredibly difficult after covid made my dysautonomia intractable & my pain levels aren't much better.
First, I went to @HEB because the website and a customer service rep told us on the phone that they could cash it. I get there in my wheelchair, after quite a bit of effort and discomfort I might add, only to be told they can only cash a Western Union money order FROM HEB. 🙄
I've never heard of such a thing but still, I call Walmart, they say they can cash it. I think to myself, maybe @Walmart will have more sane policies. I get there, get back in the wheelchair, nearly have an attack doing it, & get inside only to be told the same thing HEB told me.
Now, not only am I completely broke because I can't get anyone with Western Union to cash a Western Union money order, but I'm also nearly out of gas. We get home, and as always happens, I have an autonomic attack trying to get back up my stairs and my right arm paralyzed itself.
My family is struggling thanks to #covid destroying the economy and my health. My brother had to PayPal me just so my husband could AGAIN go out to get us the stuff we needed for dinner. The moral of the story, @HEB, @Walmart, and banks need better policies.
Life is already impossible enough. Don't make it even harder on people by instituting ableist policies. Used to be, they could cash any Western Union order from anywhere, and that would make sense, considering people send Western Union from all over the country.
Not every state has an @HEB or @Walmart on every corner, and not everyone is financially stable in the wake of all of this #covid insanity. Someday soon, I'll have money again. Does my lack of it right now make me any less deserving of being treated like a human being?
Or is that just for those everyone decides are worthy of their benevolence? Because I have to say, I'm disgusted with what the world looks like today. It was difficult before, now it's impossible. Why make your policies MORE restrictive in this climate? It makes NO SENSE.

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More from @process_x

15 Nov
On this day 8 years ago, my father died. By the end of his life, he was crippled and homeless, all because those who were supposed to help him wouldn't. When he asked his doctor to treat his pain, he told him "man up, I'm not prescribing you anything." 5 years later he was dead.
He started using a legal drug to control his pain, alcohol. His health quickly declined even further. When his time came, he had to drink just to stave off death. He took Benadryl for an allergy attack and it interacted with the alcohol in his system.
He fell asleep at the wheel of his car, while he was driving, and flipped it off a steep road. He died on impact. I still wonder why his doctor felt it was more just for him to kill himself rather than treat his pain so he could continue being a productive member of society.
Read 6 tweets
23 Sep
Just got a chance to look more at this which is also from Appriss:

Data Driven Justice Incarceration Report - Identifying Super Utilizers with Incarceration and Prescription Monitoring Data

@maiasz

appriss.com/safety/wp-cont…
If they take this down and anyone wants a copy, let me know. It's already in my repository.
Target them for what, exactly?
Read 11 tweets
22 Sep
Welcome to the algocracy. The social credit system in the West is anything but "soft" and our healthcare system has a big role to play.

#Algocrats

thehill.com/opinion/financ…
"A parallel system is developing in the United States, in part as the result of Silicon Valley and technology-industry user policies, and in part by surveillance of social media activity by private companies."

fastcompany.com/90394048/uh-oh…
"...the challenge posed by China goes beyond the question of who will maintain dominance in the data industry; it asks whether the United States will also choose to test the maximum power of data technology to control and rationalize society."

jpia.princeton.edu/news/social-cr…
Read 4 tweets
23 Jul
Ever wonder how eugenics gained hegemony in 20th century Germany? THIS is how. Over 100 million people in the US have 1 or more chronic illnesses. Amazing people think they have a right to shame others for deciding against a medical treatment. Also, Darwin was a eugenicist.
"Eugenicists felt that they were able to justify prejudiced and immoral actions under Darwin’s theories (Wiker, 2000). The segregation, sterilization, and murder of various groups was justified by some as being done for the greater good of evolution..."

eugenicsarchive.ca/discover/tree/…
"...- those groups were considered to be ‘less fit’, and by preventing their reproduction, advocates argued that the human race would improve and evolve into a better species..."
Read 9 tweets
19 Jun
"Many embedded research studies are granted a waiver of consent from patients, with the requirement that personal health information be protected from disclosure."

This means embedded pragmatic clinical trials (ePCTs) via NIH don't need patient consent.

rethinkingclinicaltrials.org/chapters/disse…
There are NIH ePCTs taking place in regard to pain and (conflating) addiction. There is also medication sparing programs for post-operative patients and for chronic pain through the HEAL initiative.

heal.nih.gov
The Pragmatic and Implementation Studies for the Management of Pain to Reduce Opioid Prescribing (PRISM) is the main ePCT taking place via the HEAL initiative. Meaning, patients are studied within the delivery model (EHR) and consent requirements likely waived via data protection
Read 14 tweets
3 Apr
This study could benefit people with #ChronicPain by helping round out the science for the safety/efficacy of LTOT. This could influence future research trajectories based on patient reports. See thread.
Some raised concerns that we don't know what the results will be, but that's how science is supposed to work. If people knew what the results would be, there'd be no reason to study. Because millions have likely been force-tapered, this could contribute to an end to the practice.
The ethical issues surrounding forced tapering stand on their own. However, having science that proves opioids aren't as dangerous or inappropriate for chronic "non-cancer pain" as some claim is also important because public policy is informed by it, whether we like it or not.
Read 5 tweets

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