I'm on a dating hiatus bc I can't deal with potential partners who don't feel the gravity of the pandemic. No I will not go out to eat, or go indoors anywhere, or kiss you, or be close with you, when you're not taking the same precautions I am to save my own life. 1/4
Unrelentingly for the past two years it's felt like dates have, on the whole, simply decided that my day-to-day life in isolation (except for work) is not enough. There's always the "well how long do you want to zoom/talk on the phone/chat without meeting?" 2/4
When I answer - until I feel safe again - that's never satisfactory. Which is fine that's their prerogative. But it's still hurtful. My life is fun and purposeful and delightful even without in-person socialization/intimacy. Partnership does not require physical presence. 3/4
Starting to wonder if I can only ever move comfortably in disabled circles. And wondering if I will ever find a partner capable of valuing my life regardless of my bodily limitations. 4/4 #DisabilityTwitter

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More from @Nicole_Lee_Sch

3 Jan
I'm teaching a #dishist course this term. I'm anxious and scared about teaching for all the pandemic reasons (and desperately hoping we make the switch to remote through spring break). Nevertheless, this is the course I needed when I was dx with a disability at 19. 1/4
Almost a decade later I now get to introduce students to disability history. To help disabled students reclaim their past. To teach others how to be informed allies. To talk about the precedence of ableist policies. And hopefully to dream of a less ableist future. 2/4
Things are not good at all. But I'm finally becoming the person I needed in undergrad. I'm not a great teacher, I'm still really struggling to adjust to teaching in a high stress situation, but I'm here and I'm trying. 3/4
Read 4 tweets
31 Dec 21
If you are presenting at in-person only conferences, which didn't offer accommodations to scholars with children, or scholars with disabilities, or scholars who are high risk right now - you are contributing to academic ableism. 1/4
I really just want non-disabled scholars to acknowledge that some career choices, like in-person conferencing, have an impact on those of us who CAN'T choose to go. Moreover you may be burdening local health sectors with cases that you bring into the new space. 2/4
When you take advantage of opportunities that are not available to all of us in the academy, you actively tell disabled scholars (and many other groups) we don't belong, that our research doesnt matter as much, and that we'll just have to press pause while you speed on ahead. 3/4
Read 4 tweets
24 Dec 21
People are going to the ER to get official medical documentation because they know that the medical system, and the govt, will fuck them over should they ever need to claim disability. 1/3
Including statements like:
1. You didn't have COVID
2. You didn't seek proper care and developed chronic symptoms
3. You don't meet the clinical criteria for long COVID 2/3
If the medical system took patients at their word people wouldn't feel pressured to go get documentation. And if disability claims weren't dependent on doctors deciding that you are/are not disabled based on a vague and arbitrary set of criteria people would stay home. 3/3
Read 4 tweets
23 Dec 21
I'm concerned with all the talk we have about hospital overcrowding. Yes overcrowding for acute care management for COVID patients depletes the system. But for disabled patients, the system was ALREADY broken and overcrowded. 1/6
Lists to get in to see specialists in chronic illnesses and comorbidities are already endless for us. It's common to wait at least a year per specialist, and with an influx of millions of disabled individuals with long COVID, those wait times will get even higher. 2/6
Treatment options and research is currently being halted, delayed, or terminated in order for the system to focus on acute COVID-related demands. And so we have very few treatment options on the horizon. I was closely following so many clinical trials that just stopped. 3/6
Read 6 tweets
20 Dec 21
Got the classic "rare disease" line of questioning at my gyno today. Please for the love of God stop asking chronically ill patients who coordinates our care. No one does. No one. They just splice up our bodies piecemeal and send us to the next specialist. 1/4
When I had my "best" care I had a: geneticist, pain mgmt dr, cardiologist, neurologist, neurosurgeon, a GI, a GP, one orthopedist for each joint (which back then were hips, shoulders, hands), a bracing specialist, a PT team, and a gyno. 2/4
That's 13 drs. None of whom spoke to one another, coordinated care, or ensured their recommendations didn't clash with those of my other specialists. My GP just wrote numerous referrals but couldn't coordinate care bc they *were not trained to do so.* 3/4
Read 5 tweets
14 Dec 21
To everyone writing "sadly we couldnt convene" for whatever conference/program/lecture - please stop. Why are we not celebrating what we have achieved together? Why is there this overlay of remorse and regret? 1/4
I want to see "thank you everyone for attending our programming virtually this year. We:
- reduced our carbon costs by x
- made programming more accessible for caregivers, disabled individuals, parents, academics outside the academy, and the public
- decreased costs by x 2/4
- limited food waste
- increased our use of access tools like real time captioning
- recorded our work to increase accessibility and impact
- Created an archive that can sustain conversations
- saved our attendees x costs" 3/4
Read 5 tweets

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