Got the classic "rare disease" line of questioning at my gyno today. Please for the love of God stop asking chronically ill patients who coordinates our care. No one does. No one. They just splice up our bodies piecemeal and send us to the next specialist. 1/4
When I had my "best" care I had a: geneticist, pain mgmt dr, cardiologist, neurologist, neurosurgeon, a GI, a GP, one orthopedist for each joint (which back then were hips, shoulders, hands), a bracing specialist, a PT team, and a gyno. 2/4
That's 13 drs. None of whom spoke to one another, coordinated care, or ensured their recommendations didn't clash with those of my other specialists. My GP just wrote numerous referrals but couldn't coordinate care bc they *were not trained to do so.* 3/4
Stop pretending complex patients are missing a coordinator when medical education had eradicated the role and split the body into separate systems (which somehow apparently don't interact???) 4/4 #MedTwitter #MedEd #EhlersDanlos #DisabilityTwitter
I know many of us coordinate our own care. But we don't have the same power/privilege as med professionals. If I did have that power I would:
- have edited and accurate medical notes/patient histories
- have correct allergies listed
- have correct Rx listed and refills scheduled
- have edited and accurate medical notes/patient histories
- have correct allergies listed
- have correct Rx listed and refills scheduled
• • •
Missing some Tweet in this thread? You can try to
force a refresh
