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Tamar Whyte-Jeynes 👖 Profile picture
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7 Jan, 5 tweets, 2 min read
PLS RT: Does anyone know of any #LXP (Lived Experience Professional roles ie. Peer Support Workers, Lived Experience Researchers) that have reached Employment Tribunal stage for Disability Discrimination in the UK? All I’ve heard of reach settlement before court stage #MadTwitter
Employment & Equality of #LXP’s is something that I’m trying to build understanding of because presently it is disparate and isolated by employer or even employee. I hadn’t realised til recently that there have been quite a few Tribunal applications >
> for discrimination at work, however all I have heard of where settled prior to court. I can’t find any examples of one going to Employment Tribunal Court. I’d really appreciate if people could put this out there so I can discover & collate any examples. They will be of great >
> benefit to the #LXP community in terms of being public record of examples of this type of discrimination, which may help people to make sense of any issues they face at work. It could also help people understand how to fill in forms, argue the case, access legal representation.
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More from @tamar_whyte

Tamar Whyte-Jeynes 👖 Profile picture
1 Jan
Doing a Daisy 🐈 all day today. It’s been the morn/afternoon/eve after one of the crazier NYEs in my life. But every New Years Day is a reminder of Mum. 21y, but still remembering today. The shock of learning that #Epilepsy kills. She never made a big deal/complained about it 💜>
2/ Apart from a disabled rail pass she never really seemed ill. She somehow managed 4 very strong minded kids and a difficult life. Her life got more and more difficult as her life went on and her last 7 years were very sad indeed, she was physically very disabled & very unhappy
3/ That’s the saddest thing I remember. Her being sad and having had such a shitty life, especially at the end. I think of her as a very loving Mum who was a real homemaker and an incredible cook. She could could anything. Whip up meals for a family of six out of leftovers. >
Read 17 tweets
Tamar Whyte-Jeynes 👖 Profile picture
18 Nov 21
1.Lots of feelings today. I’m in the middle of trying to officially get discrimination and inequality recognised. It’s really hard. I’m so fucking tired and sad. I want to fast forward to an open court where I get to say what’s happened and it’s done & over whether I win or not >
2. I’d have been happy with a systems change that would have addressed inequality. Most people can’t cope with how awful this process is and you never hear about other Lived Experience Professionals (Researchers, Peer Workers etc) who have raised grievances because >
3. organisations often give a settlement payment to keep it from going to tribunal. I don’t think anyone could offer me a big enough sum to do that. It would need to be so big they’d never, ever do that again to anybody because they couldn’t afford to. >
Read 9 tweets
Tamar Whyte-Jeynes 👖 Profile picture
17 Nov 21
1. Back when I was diagnosed with EUPD in 2005 I did the usual Google thing & found @Quora. I’ve never bothered unsubscribing & I keep getting email bulletins with Q&As from people who detest ‘toxic Borderlines’ and are rampant Royalists. Yet I STILL haven’t unsubscribed >
2. It winds the everlasting f* out of me, I get torn between responding to the worst of the bile & misinformation posted (bad idea: too much energy), to unsubscribe (good idea💡) or to observe occasionally (brave: a step outside my personal social media echo chamber) >
3. It’s also a reminder that even for most of the differences of opinions on Personality Disorder/‘Personality Disorder’/Trauma & it’s treatments, most of the people (clinicians/non-clinicians) taking part in these conversations care enough to do so, whether we agree or disagree>
Read 9 tweets
Tamar Whyte-Jeynes 👖 Profile picture
8 Oct 21
1. MENTAL HEALTH CHARITIES: A thread. The frustrating thing about charities & govt funded orgs is they are gagged to remain neutral. The causes, triggers & worst stressors of mental health issues are social, environmental, political. Roof over head, disability benefit, etc >
2. Yet charities can’t comment. So all the resource and funding goes to orgs who structurally are prevented from helping where it is needed most - they can try to soothe the trauma a bit but not get anywhere near stopping it. This means that the only way to really do that is by >
3. not being a charity, because if that’s what you are, you become pretty useless when govt policies lead to thousands of deaths of people with mental health conditions and you want to organise a special day or coffee morning to chat about mental health. Some organisations like >
Read 7 tweets
Tamar Whyte-Jeynes 👖 Profile picture
27 Sep 21
1.Why do clinicians not tell you about what your #epilepsy symptoms are? Just woke up from a reset sleep but it’s led to morbid curiosity Googling. Those weird head sensations I get are called ichtal headaches. There are 3 types: pre, post & ones without seizures. I reckon I get>
2/ all 3, but I’ve never heard of them before, even though I’ve definitely described them to my #epilepsy consultant. I’ve felt like a bit of a knob, trying to describe the odd sensation that I call an ‘epilepsy head’ and how I can tell it’s different to ‘normal’ or a headache. >
3/When I get asked how I can tell I always feel like I’m coming across as a hypochondriac exaggerating a symptom. There it is, in black & white, on Google, so it must be true (tbf, the sources I was reading were peer reviewed articles😜) Seriously, why don’t medics tell patients>
Read 14 tweets
Tamar Whyte-Jeynes 👖 Profile picture
13 Jul 21
1.There is something so heartening about seeing a Tweet that acknowledges that the issues #LXPs have are real & they do have an impact. Because discrimination usually isn’t acknowledged #LXPs never get to hear the words “I’m Sorry” as a genuine apology as opposed to being in the>
2. context of ‘your perception’ being skewed or ‘your feelings’ being hurt, which is like a backhanded way of being told that the way you are being treated is caused by you & not the people doing it to you. It places fault back with you, rather than being the responsibility >
3. of people accountable within organisations to change discriminatory behaviours. It lets people who lead organisations off the hook if there’s no acknowledgement an issue exists, because then there are no national campaigns to appease, no pesky equalities targets to reach. >
Read 21 tweets

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