1/7 Why I care about #MECFS : My husband had the illness since 2012 when he was infected with the Epstein-Barr virus and had glandular fever. He searched 3 years for a diagnosis. Went to every doctor there is: physicians, neurologists, internists, hematologists, even oncologists.
2/7 Everyone told him "Your blood and body is fine, it must be psychological." Only through sheer luck, a hematologist knew a professor at the university of Heidelberg, who then told him about #MECFS. But german doctors and authorities won't acknowledge the sickness.
3/7 He cannot work as a chemical technician at @merck_de anymore, because it is in shifts and physically too challenging for him. He was put in many different positions at the company, but none would fit, because his new managers couldn't cope with him.#MillionsMissing
4/7 He is exhausted easily, has #BrainFog and cannot concentrate for longer periods of time. He has often flu-like infections or migraine and is on sick-leave a lot. He has trouble with his sleeping pattern and constant muscle pain. #MECFS
5/7 But he is not recognised as a disabled person in Germany. For german authorities it is just a "sleeping disorder". Co-workers and others are calling him lazy or say he is just pretending. #MECFS
6/7 After 10 years and countless occupational integration meetings ("Berufswiedereingliederung"), my husband can finally make a vocational re-training as software developer. It starts end of this month. #MillionsMissing
7/7 Because most people who give it their all for increasing awareness for #MECFS are sick themselves, I want to help out as good as possible! If I can do anything to help @MECfsFundraiser or anyone else, feel free to contact me! :)
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