Sandra Schwob Profile picture
Software developer from Leipzig, hobby baker/cook, Japan/Korea fangirl, into LARP, new home in Darmstadt. Working at Merck. Fighting for ME/CFS awareness!
Jan 13 7 tweets 4 min read
1/7 Why I care about #MECFS : My husband had the illness since 2012 when he was infected with the Epstein-Barr virus and had glandular fever. He searched 3 years for a diagnosis. Went to every doctor there is: physicians, neurologists, internists, hematologists, even oncologists. 2/7 Everyone told him "Your blood and body is fine, it must be psychological." Only through sheer luck, a hematologist knew a professor at the university of Heidelberg, who then told him about #MECFS. But german doctors and authorities won't acknowledge the sickness.