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Comrade Kira Nerys Profile picture
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Jan 15,, 6 tweets, 2 min read
This is a nightmare. The CDC Guidelines are already effectively law bc the DEA arrests Drs for violating them. The terrifying thing is a national PDMP database- a healthcare surveillance system which shares your medical info with law enforcement without your knowledge or consent
Prescription Drug Monitoring Programs sound reasonable (esp to people who still say "opioid crisis"). Just a record of your recent prescriptions, Drs, & pharmacies, right? But these state systems are Trojan horses w a danger lurking inside- NarxCare, a predictive risk algorithm
So what is NarxCare? It's a proprietary black box algorthim- a corporation owns it, profits, & determines access to healthcare with it. The people whose lives are devastated by the decisions the algorthim makes cannot see how it functions, & cannot examine it for errors or bias
How does NarxCare determine what care you deserve? Your PDMP data + criminal justice, EMS, electronic health records, medical claim data, & other unknown sources are used to produce predictive & overdose risk scores- the (alleged) likelihood you'll OD or misuse prescription drugs The Narx Report includes a ...
CW: SEXUAL ASSAULT
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@jenndoliva is doing important work around PDMPs and the intersection of health, drug, and privacy policy, and the opening of this article demonstrates exactly how devastating PDMPs/NarxCare can be for patients w chronic pain: papers.ssrn.com/sol3/papers.cf… Image
NarxCare is one of many proprietary algorithms that have ever-increasing control over our health, credit, even our freedom. Speaking of credit, in 2020 Equifax acquired Appriss (NarxCare) for $1.825 billion & renamed it Bamboo Health. Can bad credit be considered a red flag now?

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More from @Deezovariez

Comrade Kira Nerys Profile picture
Jan 18,
A major struggle of late diagnosed #ADHD &/or #autistic ppl is realizing that a massive chunk of your life has been spent just managing symptoms, trying to make them acceptable so you can be accepted, or so you can feel at ease in your body. While everyone else was just... living
I can't imagine the bandwidth I'd have if I weren't constantly monitoring my frustration levels, if I didn't have to hide under weighted blankets or melt down to innocuous noise. ADHD & autism come w many positives. But this isn't a world built for us, it's openly hostile to us
I can't imagine not revving up (pacing while daydreaming to get myself motivated before a task), it's always been a part of me. I cherish my imagination, it's one thing I actually like about myself. But goddamn it eats up a lot of time & often leaves me frustrated & dejected
Read 4 tweets
Comrade Kira Nerys Profile picture
Jan 17,
Feels like a lot of #ADHD & #autistic women get misdiagnosed w anxiety, or their anxiety is seen as the primary condition, rather than secondary to ADHD/A. Psychs told me my rocking, swaying, skin picking, fidgeting was all anxiety. Prolly bc they couldn't explain it w depression
I'm constantly forgetting things, losing or accidentally destroying things, not paying attention when important information is being explained, I struggle big time with transitions & staying on task. So basically I've been in trouble my whole life. Of course I'm fucking anxious.
I'm always forgetting important things or leaving them to the last possible second. Even watching a show I enjoy, my partner will make a comment about it & I suddenly realize I have no idea what's happening bc I was thinking "whatever happened to the good taco truck" or something
Read 10 tweets
Comrade Kira Nerys Profile picture
Sep 13, 2021
Diversion is often just patients who are most likely to be considered human beings in a Doctor's office- white, financially stable, employed, privately insured, cis, abled, preferably male- keeping their loved ones alive bc the medical system refuses to do so. We keep us safe.
Poor & marginalized ppl often have no choice but to stay alive, stay stable & functioning, off of the good will of people higher up on the socioeconomic ladder. You're uninsured or can't access effective treatment, so you covertly beg for help & hope that someone steps up for you
Rx drug diversion is almost certainly saving lives right now. The issues ppl seek drugs for- pain, ADHD- don't disappear if left untreated. Ppl are saving lives by diverting rx opioids, stimulants, even antidepressants to loved ones, instead of leaving them to seek illicit drugs
Read 9 tweets
Comrade Kira Nerys Profile picture
Sep 13, 2021
In retrospect getting impatient waiting for a taxi (an hour late when I left) & being so restless/uncomfortable that I walked nearly 3 miles home w a raging kidney infection, was prolly impulsivity? Usually anxiety steps up to stop impulsive me, but I just didn't care last night
I was mad abt the taxi, mad my partner insisted I go last night instead of going today (he was trying to help, I was in bad shape). I think the meltdown circuit got activated & adrenaline was like "fuck it, I'll get you home." I might've had other options, but didn't think abt it
That's how impulsivity can be for ADHDers. Sometimes impulsivity meets a valid need in an unreasonable/unhealthy way. Sometimes impulsivity sees a problem & pushes you in the direction of whatever you thought of first, bypassing more suitable options to get the desired result
Read 4 tweets
Comrade Kira Nerys Profile picture
Sep 12, 2021
I can only imagine what my medical records say. I used to go to appts & explain my issues through quips & comedic hyperbole. Being entertaining is a masking behavior ingrained by decades of undiagnosed ADHD, but later I discovered it's considered a red flag for "drug-seeking"
Although it feels like the moment I was diagnosed w bipolar (in a low-income clinic, rarely seeing the same disinterested provider twice) I became a "drug-seeker" regardless. I had been getting 30 5mg pain pills a month, that's when I got cut off, didn't put it together til now..
And at the time that was totally fine, I didn't argue, my pain from the initial back injury was finally improving, so makes sense. But then a few years later the undiagnosed endometriosis pain intensified. I was working a low wage job, made like $100 too much a month for Medicaid
Read 17 tweets
Comrade Kira Nerys Profile picture
Sep 12, 2021
I'd add that even if a person is using daily they may not need substance use disorder treatment. A person who uses opioids may be managing untreated chronic pain. Someone using meth may not be able to access ADHD medication. One-size-fits-all treatment is a poor fit for many PWUD
If a person has chronic pain that doesn't respond to ibuprofen, they luck into finding a safe supply of heroin or Rx opioids, they use a dose comparable to prescribed doses, their QoL improves, and they aren't using compulsively, how does that person benefit from SUD treatment?
If an ADHD patient can't access meds in a doctor's office but they can buy Adderall, they take it as if prescribed, they aren't using compulsively, and their life improves, how would that person benefit from SUD treatment? Their issue isn't SUD, it's untreated ADHD
Read 4 tweets

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