Discover and read the best of Twitter Threads about #autistic

Most recents (24)

#autistic? Stuck in #lockdown? Looking for ways to cope? Look no further. Here is my genuine, certified, bona-fide guide to surviving the shut-in when #autistic. Thread - please share. Also a little tongue in cheek...
1. If you use twitter a lot, be more proactive in curating your feed. Use the word-blocking feature to remove any topics that you just can't handle right now. Mute quickly if need be. Block if you have to. #autism #lockdowneffect
2. Set a routine for a shower or bath each day, even if you don't usually. It'll help build a new daily routine and make you feel like things are more normal than they actually are!Alternatively, enjoy the freedom of not *having* to shower! #autism
Read 23 tweets
Autism researchers (who are frequently not in the slightest autistic) seem quite obsessed with the idea that a central component of #autism is a 'deficit' in what is known as the 'theory of mind' - a posh term for understanding other people have different thoughts to you. /1
The idea is that an #autistic person doesn't understand that other people have different thoughts and feelings to your own. It's an incredibly strong position to take as, if it were true, #autistic people would be utterly incapable of any interaction. /2
I think a lot of #autism research has been constructed in such a way that has ignored some key traits of autism, and simultaneously assumed a lack of independent agency for #autistic individuals. /3
Read 12 tweets
Today is World #AutismAcceptanceDay! (Or, to some, #AutismAwarenessDay). This means you’re probably being firehosed by autism information. But how do you know if an #autism organization is a trustworthy one? Fortunately, we have guidelines & examples: 1/
At TPGA, we believe autistic people of all ages & abilities deserve to be treated with respect, have their civil rights & humanity recognized, & have access to the resources & accommodations they need. We will not support #autism orgs that do not abide by these basic precepts. 2/
We know it can be difficult to identify #autism orgs that legitimately work towards the best interest of #autistic ppl & their families, as questionable autism organizations tend to employ the vocabulary of acceptance & support—even when actively undermining those principles. 3/
Read 19 tweets
I've known I have #ADHD for 4 years. I've known I'm #dyslexic & Autistic for 2 months. This semester, I've spent enormous time/energy understanding what this means for me. I am relieved & unbelievably excited; I've found an incredible #ActuallyAutistic community through Twitter;
& for the FIRST time in my life (let that sink in) I'm seeing other people talk about experiences that mirror my own. I understand myself in a way that I have tried to find words for my entire life. (TY @SNeurotypicals @steve_asbell @autistictic @A_Silent_Child) #ActuallyAutistic
I'm also navigating grief. I now see the ways I'm called to & do invalidate, erase, & hurt myself in the "necessary" betrayal of my needs to exist in a neurotypical, "appropriate" way. Camouflaging causes negative health outcomes & creates #healthdisparities #NMHM2020 #Autistic
Read 9 tweets
This #AutismAwarenessWeek let's break down some of the most perfidious myths about #autism. Here's a list of what I think are the most harmful and unhelpful. Please share widely - we need people to know this stuff. #thread
1. #autism can be disabling. Many #autistic people see it as a disibility. However others do not see it in this way. This is a perfectly reasonable personal choice and should not be a source of confusion.
2. #Autism is not in itself a learning disability (though aspects of it can make learning harder!) However, autism can be comorbid with various learning disabilities.
Read 19 tweets
If you want to do right by your autistic kid (or any autistic person, really), then please do your best to understand and respect these eleven factors about being autistic. From this article, but this is also a thread:… #Neurodiversity #autistic #autism 1/
(1) Processing Time: Almost every #autistic person I know has their own rhythm and speed at which they process information. In my son's case, this means giving him a few beats to respond, rather than impatiently assuming he didn't understand what was said. 2/
Other processing scenarios include relying on captioning for comprehending videos or movies—even for those who can hear—or needing to record & re-listen to lectures. Disregarding processing needs can lead to #autistic ppl having their abilities or comprehension underestimated. 3/
Read 31 tweets
Your #autistic children may be finding the big shift to being at home all the time good or bad. Depends entirely on their experience of school and their preferences for routine. A thread of advice - please share. /1
Some #autistic students will be overjoyed at being home all day, but will react badly to the imposition of school work into their normal home routine. I guess they're living in 'holiday routine' mode and might be loving the freedom to do their own thing. /2
It will take time and patience to create a new normal in these situations. School work will feel intrusive and alien, and I'd expect some #autistic students will ignore it, hoping it goes away. Certainly pushing this work in them is liable to end badly! /3
Read 16 tweets
Happy Mother’s Day 🏡❤️ I’m writing a thread this morning about my concerns as an Autistic mum of an Autistic young person (plural ) during #COVIDー19 and why both my lived experiences and professional experiences lead me to believe #Autistic of all ages are sadly “high risk”
Before I begin it’s an important disclaimer that I am NOT a medical professional,and although I help boards of a social and medical nature ,this is a ponder and insight sharing of my professional support and advocacy life and my personal insights from a personal perspective...
When we see higher risk lists ,We often see Leraning Disability as higher risk . Many Autistic people have no LD but also many also have LD . Many have great abilities /jobs and areas of LD , the term LD isn’t black and white for Autistic people as our profiles are “Spikey “ ...
Read 25 tweets
🦠🧼 Should you have an #Autistic spouse /child /parent who seems to be doing strangely “ok” amongst the #coronavirus changes please bear in mind we often have emotional processing delays 🦠🧼.....
It’s quite easy to assume that due to our regular need of time alone that isolation will be easy for us ,it won’t be , many of us struggle to not be able to access the food we eat on a limited diet ,the sensory issues of more washing ,comfort of our routines being disrupted ...
...On top of this our struggles with needing predictive outcomes in a highly unpredictable time can be internally devastating for us , but we may look like we are coping ....
Read 12 tweets
Dealing with the #COVID19 crisis when you’re autistic - some advice.

Most important: heed public health advice applicable to your region.

Public health is the medical specialty which deals with this issue and the public health doctors are the experts.

I’m not a PH doctor.
Wash your hands well & often
Cover your coughs & sneezes
Don’t touch your face

Travel restrictions
Social distancing
Self isolation if exposed

However, some of that advice to avoid #COVID_19 will impact us differently to non autistic people, and that’s what this thread is about
First the positives. We’re going to have much less trouble with social distancing than the non autistic population. In general we don’t casually touch, hug or kiss other people as much as NTs do. Staying home & avoiding people for a fortnight doesn’t fill us all with dread.
Read 12 tweets
Autism and anxiety - a thread.

If I can face it. Let's go. /1

#autism #anxiety
This could quite easily be summed up as 'autism and anxiety are so commonly matched as to be almost indistinguishable', but I'd quite like to pick it apart based on my experience of course. /2 #autism
For me, the overriding experience of autism at the moment is anxiety. Anxiety about work, anxiety about parenting, anxiety about stress, anxiety about everything. But it wasn't always like this. /3 #autism
Read 20 tweets
Finding solace in a favourite interest - a thread.

Please share - it might help you deal with #autistic people and understand our ways and lives a little better. As always, this is from my perspective. /1
Most, if not all, #autistic people have mega interests that they will focus their attention on, even obsess over. Some come and go, others stick around for life. And though they can be a source of stress, they are also a great solace. /2
Our Interests provide shelter in the storm of life. The general lived experience of most #autistic people will be marked by extreme stress and even trauma - our interest are a calm port in the storm. /3
Read 8 tweets
I've woken up very happy this morning. The sun is shining on a frosty morning here near Portsmouth and I'm reflecting on some very interesting and quite emotional chats I had on Twitter last night.

There's been a very simple, almost trivial, but powerful shift in my thinking.
I used to feel imprisoned by the macho male stereotype. I felt that I had to follow rules that I hated.

Now I realise that I was my own jailer, and I'd been sat in the cell with the key in my pocket, shouting to be let out.
So now I've realised that I *am* allowed to do some really quite trivial things (e.g. paint my finger nails) without that changing the fact that I'm a heterosexual male.

Do I need a label for this? Probably not. Would I say I'm #nonbinary? Well, I did last night.
Read 8 tweets
How #Autistic students can get a raw deal at school - a thread taken from my talk at the National Autistic Society conference. Please share widely if you can. /1
#Autistic students often arrive at school with their 'stress-tank' close to overflowing already, thanks to a morning of intense exposure to stressors. Too often this isn't appreciated. /2
They will have been unable to explore their favourite interest, instead being forced by time pressure to get ready for school. They will have had unavoidable social time with other children whose interactions may be bewildering to them. They'll be in uncomfortable uniform. /3
Read 21 tweets
Sometimes it's hard to be the parent my #autistic son needs me to be, & I’m always learning about best & better practices. But I wish the research that could help him was better, too.

This is going to be a thread based on a recent @AutismOAR post:…

@AutismOAR How is it that my #autistic son is nineteen years old? How is he not still the cute little dude who used to fit on my lap; how is it that he is now so much bigger than me that I am now wearing his hand-me-downs? #parenting #autism #Neurodiversity

@AutismOAR Time flies just as fast when parenting an autistic child as with any child, which is a truism I wish I’d been told when my son was diagnosed as autistic almost sixteen years ago. What else have I discovered about raising an autistic child? 3/
Read 22 tweets
Today I want to talk about how ‘Autism Warrior Parents’ Harm Autistic Kids. These thoughts are from an evergreen article I wrote for the dearly departed Establishment:…

This is going to be a thread.

#autism #parenting #Neurodiversity 1/
Parenting approaches differ, but mostly, everything we consider “good parenting” fulfills two basic needs: It makes children feel safe, and it makes them feel loved. Parents and non-parents alike tend to scorn any parenting approach that doesn’t meet these goals. #autism 2/
…That is, unless the kids in question are #autistic—in which case parents are too often encouraged to pursue approaches that traumatize & alienate their kids. I call these types “Autism Warrior Parents,” & people caring for autistic kids can learn a lot from their mistakes. 3/
Read 46 tweets
Why I class #Autism as a disability, and also why I have no problem with you if you don't.

A thread. Please read and share. Thank 'ee kindly. /1
There's a lot of argument about the status of #autism out there, and whether it should be classed or seen as a disability. Things can get rather heated (which in autistic people's case tends to mean awkward silences and then a minor meltdown in private later). /2
Some people argue it is a disability, others argue it should not be viewed in that way. Each have very valid reasons. I fall into the former camp as I believe it to be a disability. /3 #autism
Read 18 tweets
So, time to more thoroughly explain some of my positions here. Please share if you can.

First - why do I think ABA is abuse? /1 (takes a deep breath...)
Applied Behaviour Analysis is a form of training that is 'done to' some #autistic people in an attempt to modify their behaviour and 'help' them operate in a neurotypical environment. /2
It is heavily based around the concept of conditioning, whereby children are conditioned by rewards or sanctions to modify their habitual behaviours. This can be, for example, praising them for not stimming. /3
Read 11 tweets
#Autism and Parenting an infant school child - a thread.

Please read and share as you wish - reply too!

Let's dive facefirst into the morass that is trying to cope with the stress of taking a child to school every day... /1
Routine - oh goodness me I like routine, as I think a lot of #autistic people do. I live for routine. Threaten my routine and I freak out big style. Break my routine and... well... I'll not be particularly chuffed with you.

But children. In the morning. Oh. My. God. /2
My morning routine has been much the same this past 400 years or so. There is so little variation, in fact, that I'm pretty sure I could be used as some cosmic constant for astrophysics.

But these days I have to incorporate the huge will and cheeky disposition of a child. /3
Read 14 tweets
I’m the mother of a high-support #autistic young adult. I’m going to give it to you straight about antivax disinfo: why it’s nonsense, why it’s dangerous, & why it’s hurtful—especially to people like my son.
This is going to be a thread.

#autism #VaccinesWork #Neurodiversity 1/
I want to talk about a critical aspect of vaccine advocacy, which is understanding how vaccine-autism misinformation hurts the amazing people in the #autistic communities in general, and people like my wonderful, happy, autistic son specifically. 2/
If more people understand that #autism is nothing to be afraid of & is part of human diversity—if we share more messages about accepting #autistic people like my son, who need significant support but also have unrecognized abilities and have always been part of our society… 3/
Read 35 tweets

—yep, it's time for more thoughts

One of the strangest things of living with autism, and knowing that you live with it, is the weirdest disconnect it gives you (well, me but I tend towards disassociation in such conversations)

I know I'm #autistic

I know that I'm different from others

To borrow from elsewhere; A Stranger in a Strange Land

And yet almost inevitably I hear from others that they couldn't guess I'm autistic, or that I'm "not as autistic" as somebody else

I loathe that

There's so many reasons to loathe it

On an external point of view, how allistic people view autism is on the old, highly discriminatory, highly unreliable (and down right racist) view that autistics can be divided into two groups: the intelligent and the not-intelligent

Read 24 tweets
#Autism and #Depression - a very personal thread. Despite that, please share widely as it might help folk.

All based on my own experience. /1
It's an interesting thing that mental health is so universally taboo, as it means our mental health gets progressively worse. So, following in the example of people like @matthaig1 and @Sara_Rose_G, I'm going tk be pretty open and honest about my poorly little brain. /2
Please be aware that I'm not classing #Autism as a mental illness. Because it isn't. I'm talking about the black dog - depression.

It's shit. /3
Read 15 tweets
Dear #edutwitter, particularly those of you in Mainstream Secondaries: our closed group is full of current crises for Yr7 girls, diagnosed #autistic and also awaiting assessment, who are absolutely breaking. Harming, not eating, in full blown panic mode, anxiety attacks 1/
... showing signs of potential co-occurring debilitating serious MH conditions like OCD & eating disorders. Some have been rejected from #CAMHS following referral. Some have been accepted but the waiting lists are so very very long. We’re asking for increased awareness of the 2/
...disparate experiences of #autistic pupils in secondary, but in particular #AutisticGirls.

As hugely committed teachers we know you’re also probably on your knees professionally & personally, that you have so much responsibility to fulfill. And we thank you for all you do 3/
Read 8 tweets
Here's my latest* update to my vetted collection of Twitter Disability and Chronic Illness hashtags. Please share it!

Thank you :-) Graffiti background. Foreground in black letters on a  white background to the left reads “Twitter Disability and Chronic Illness Hashtags”<br />
This collection is current as of 01.30.20, previous Twitter update 09.11.19.

There's a PDF version coming up this weekend, to be posted to my Kofi profile. I'll add the link toward the end when it goes up, after the questions, where you can also sign up for email updates.
This version has added

- community suggestions,
- mental health hashtags,
- Medical crowdfunding hashtags,
- and a section for cancer-related hashtags.
Read 84 tweets

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