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Diana Zicklin Berrent 🧣 Profile picture
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Jan 21 • 6 tweets • 4 min read
"As I've talked to people who are experiencing this, there are some who just find no peace. Their bodies are no longer under their control and these symptoms are creating a living hell for them," - @hmkyale
1/
 #LongCovid @TODAYshow
today.com/health/do-coro…
"I've talked to maybe five or 10 people who have contemplated taking their lives because the symptoms are so severe."
2/
"The idea for the paper originated with the harrowing experience of Heidi Ferrer, a television & film writer who "had severe manifestations of the sensations of vibrations" the authors wrote. She found the symptoms intolerable and died by suicide at 50 in May 2021."
3/
 @NickGuthe
"Researchers at Yale School of Medicine and the University of Pennsylvania School of Medicine partnered with @Survivor_Corps, an online support group of 180K COVID-19 survivors, to collect the stories from people who reported such sensations."
/End

@YaleMed @katiecouric
Heidi's (@GirltoMom) #LongCovid story told by her husband @NickGuthe:
theguardian.com/commentisfree/…

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More from @dianaberrent

Diana Zicklin Berrent 🧣 Profile picture
Jan 3
My husband took my kids to eat indoors at a restaurant tonight and... 🤯🤬🤯
OMG I've been out of town for two weeks and he just admitted to taking them to dinner indoors Every. F*cking. Night. I don't know whether to be angry 🤬 or cry 😢
Since so many of you need a reminder....
Read 4 tweets
Diana Zicklin Berrent 🧣 Profile picture
Nov 19, 2021
Covid is also a neurological disease 🧠 Covid is also a neurological disease 🧠 Covid is also a neurological disease 🧠 Covid is also a neurological disease 🧠

Counting the neurological cost of COVID-19 | Nature Reviews Neurology nature.com/articles/s4158…
“By analysing data from 55 countries, they identified 41 neurological manifestations that can occur in conjunction with COVID-19.

Up to one-third of individuals with COVID-19 were estimated to exhibit at least one of these manifestations.”
“Without proper care and treatment, patients with these neurological manifestations might be permanently debilitated.

Moreover, the continuation of neurological symptoms in long COVID could overwhelm already fractured health-care systems.”
Read 4 tweets
Diana Zicklin Berrent 🧣 Profile picture
Nov 8, 2021
Champions like ⁦@NickGuthe will ensure that⁩ Covid cleans up the organ donation system like HIV for the blood industry.

🙏 ⁦@RoniNYTimes⁩ & ⁦@nytimes⁩ for carrying out Nick’s promise to ⁦@GirltoMom⁩ to use her story to save others. nytimes.com/2021/11/07/hea…
“If a deceased donor may have had long Covid and tested negative for Covid, however, the organs would be taken, Dr. Kumar said: “If we start turning down everyone who has had Covid in the past, we’d be turning down a lot of organs.”
“Before she died, Ms. Ferrer chronicled her ordeal in meticulous notes left on her phone: “Covid toes” that made her feet so sore she could not walk. A tremor that made her body shake violently. Pain in every limb. Relentless insomnia and despair.”
Read 5 tweets
Diana Zicklin Berrent 🧣 Profile picture
Nov 7, 2021
A thread 🧵 on #LongCovid and chronic diseases…

Could long covid unlock clues to chronic fatigue and other conditions? - The Washington Post ⁦@washingtonpost⁩ ⁦@FrancesSSellers⁩ washingtonpost.com/health/2021/11…
“Could endemic covid leave millions disabled with long-haul symptoms every year, creating a growing public health crisis?”

“Maybe this is a chance for us,” said Krumholz, who is working with colleagues to design rigorous, broad-based studies. @hmkyale
1/
Among his fellow researchers is Akiko Iwasaki, a Yale immunologist and principal investigator at the Howard Hughes Medical Institute, who lists five hypotheses that she believes could explain the biological underpinning of long covid.”
2/
 @VirusesImmunity @YaleMed
Read 12 tweets
Diana Zicklin Berrent 🧣 Profile picture
Nov 1, 2021
.@NewYorker published a piece on #LongCovid last month that drew significant and well deserved criticism. In response to our fierce objections to @DhruvKhullar's reporting they devoted today's ENTIRE Letters section to responses from me and @NickGuthe. newyorker.com/magazine/2021/…
My Letter to the Editor:

The New Yorker’s article on Long covid, in which I was a central subject, was a profound affront to everyone suffering the long-term sequelae of even mild and asymptomatic cases of covid-19 (“The Damage Done,” September 27th).
1/
The piece included no interviews with doctors or scientists directly investigating Long covid, and no interviews with patients battling the disease.
2/
Read 19 tweets
Diana Zicklin Berrent 🧣 Profile picture
Oct 30, 2021
A photo 📸 thread🧵of Day of the Dead - when the veil between the living and the dead is at its thinnest.💀

Oaxaca, Mexico 2018
#DayOfTheDead #DiaDeMuertos Image
Image
Image
Read 20 tweets

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