I've tweeted you all through my mother's death. We buried her this morning and I want to share my eulogy with you all so you can know her in life, not just in the indignities of death... Please indulge me.
A eulogy for my Mother in a 🧵... 1/
My mother was elegant, discriminating, funny and complex. The ultimate critic, she could pick apart a novel, an art exhibit or your outfit with equal ease and strength of conviction.
Her attention to detail was, at once, her superhuman strength - her ability to recall and recount the trim on a dress she bought in 1958, the tuna salad from the luncheonette in Far Rockaway, an exchange with a sixth grade teacher, a dish served by a friend fifty years ago.
I’m sitting in a hospice room on death watch waiting for my mother to take her last breath. That said, I have a few thoughts about death that I want to share. And, trigger warning, it won’t be easy to hear… but we can do hard things.
My mother is almost 82 and is over 2 years into a stage 4 cancer diagnosis with a 6-9 month life expectancy.
“Our members are getting denied disability every day and this is a recognition of the wrap-around services that we are going to need to provide to all survivors of COVID.” 1/ #LongCovidabcactionnews.com/news/coronavir…
“And it’s not the end of the line either. It is a good first step. I worry that it’s a bit toothless because we still don’t have a diagnostic code for long-term COVID, said Diana Berrent, the founder of the organization @Survivor_Corps.
She’s preparing to lobby at the Capitol.
“We need long-term COVID care centers throughout the country. I could go on and on. We need a billing code. We need a name,” Berrent said.”
“In my opinion, CDC should be tracking all consequences of breakthrough cases, not just hospitalization and death,” Akiko Iwasaki, the Yale University immunology professor at the forefront of long COVID research, said in an email.” @VirusesImmunity@YaleMed
“Even mild or asymptomatic infection can lead to long COVID. Tracking this on a national scale would be very informative.” Iwasaki is one of the only experts to have stated outright that fully vaccinated people can still get long COVID.”
13 breakthrough infections were after Pfizer. 8 developed Long-term Covid.
10 breakthrough infections were after Moderna. One was hospitalized. 3 developed Long-Term Covid.
7 breakthrough infections were after J&J. One was hospitalized. 5 developed Long-Term Covid.
After surviving the concentration camps of WWII he faced a year of isolation w/ tuberculosis. It was his year of isolation that he credited for saving his life a second time and opening his mind to the world of poetry and literature.
Samuel Pisar wrote in his memoir, “Thanks to tuberculosis, thanks to literature, I would be reborn once more.”