Thread by @hmkyale

Your data, packaged and sold by @IBM. 'Business analysts said the data dump instantly makes Francisco Partners a significant player in the multibillion-dollar business of buying and selling sensitive information about the care of patients.’ @statnews @caseymross

@IBM @statnews @caseymross How did IBM get all your sensitive health data to sell? They bought other companies that acquired your sensitive health data. And how did they get it? Mostly from 3rd parties who obtained it from health systems, insurers, & others you trust with your data. #privacy #digitalhealth

@IBM @statnews @caseymross And what is being done w/your sensitive data as billion dollar companies buy and sell it? [well, something that makes it valuable to people who want to buy it] And can you reclaim it or get access to it? [no] And is there consequences to orgs that share your sensitive data [no]

@IBM @statnews @caseymross So what will happen next to your data that IBM sold? “It would not surprise me if they’re trying to get to critical mass to then be able to take something public or sell it to one of tother large companies already in this space,” said @thehowie, a prof @YaleMed.

@IBM @statnews @caseymross @thehowie @YaleMed And what else did @thehowie say about your sensitive health data that's being bought & sold without your knowledge or consent or agency or direct benefit: “Data itself is just incredibly valuable.” @BraveBosom @ePatientDave @HugoOC @TheLizArmy @hugohealth @MightyCasey @jsross119

@IBM @statnews @caseymross @thehowie @YaleMed @BraveBosom @ePatientDave @HugoOC @TheLizArmy @hugohealth @MightyCasey @jsross119 And @caseymross: 'But sale of its core data assets comes at bullish moment in a digital health industry that is becoming increasingly savvy at trading on patient data to build profits and new software products.’ And when he says patient data, he means your sensitive health data.

@IBM @statnews @caseymross @thehowie @YaleMed @BraveBosom @ePatientDave @HugoOC @TheLizArmy @hugohealth @MightyCasey @jsross119 And just a question… do you think that sale included your sensitive health data. I can say it almost assuredly did. Ask IBM if they just sold your sensitive health data… or ask any of the other major health data titans. They claim data on 300m+ Americans… so you do the math.

@IBM @statnews @caseymross This buying and selling of your sensitive health data is not Google and FB using data you gave them for ads and more… this is companies using your sensitive health data; data from organizations you trusted to protect your data and not allow it to be passed around as an asset.

@IBM @statnews @caseymross How much did your sensitive health data fetch? 'Under the terms of the sale — which exceeded $1 billion, according to Bloomberg’ @statnews