When I advocated in front of @VaHouse for my nonspeaking child, his peers, and their teachers, I didn't realize I would be going up against @autismspeaks and @CASProviders

a thread (1/) #IStandWithNonspeakers #ListenToNonspeakers A screen shot of a Zoom wai...
A modest, but meaningful bill, HB 1047, was brought forth by Delegate Tran yesterday.
(2)
lis.virginia.gov/cgi-bin/legp60…
The bill would protect nonspeaking students by ensuring that -

a student's need for AAC wouldn't be used as a reason to segregate that student,

school staff receive training to support the student before school starts,

IQ test results wouldn't be used to deny access to AAC
These are basic protections already put in place under IDEA. But they don't happen.

This is why the bill was brought forth... Because nonspeaking students are segregated at an alarming rate, and many aren't even offered AAC. (4/)
Yesterday, I went to speak in favor of this very modest bill. I was joined by several others, including our state's education association @VEA4Kids, because our teachers WANT training to support their nonspeaking students. (5/)
After we spoke, @autismspeaks and @CASProviders gave nearly identical testimony about their concerns for the bill. You can watch what happened here:

Our bill starts at 9:46. They start speaking at 10:06
(6/)
virginiageneralassembly.gov/house/chamber/…
Are they against nonspeakers gaining access to communication?

Are they against inclusion for nonspeakers?

Are they against teacher training to support nonspeakers?

Because that was the entirety of this bill.

And now the bill is dead. (7/)
So before you "light it up blue" this April, and before you get a team together for one of their walks, just remember...

Autism Speaks advocated AGAINST protections for my son, his nonspeaking peers, and his teachers in Virginia yesterday. (8/)

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More from @notanautismmom

Dec 10, 2020
This is a thread about being an #AutismMom. It's off the cuff, in no particular order, and not meant to be judgmental. I am in no way perfect and don't pretend to be... (1)
As parents, we advocate for our children no matter what... autistic or not. That's our job and we'd have it no other way. (2)
20 years ago it was the year 2000. The internet was relatively new and social media was nonexistent. Sure there were chatrooms and message boards... But most people were still getting information slowly through conferences and periodicals. (3)
Read 25 tweets
Jun 25, 2020
If your message as a religious leader cannot be interrupted by an #autistic child...

To the point of asking that family not to return to worship...

Maybe you should change your message.
I’ve heard from too many parents this week who say they aren’t welcome in their place of worship anymore because the leader isn’t “able” to accommodate them.

How defeating is that? How isolating?
How can we expect our schools to accept, accommodate, and include our #autistic children when our houses of worship don’t?

Religious leaders influence the values of our society as a whole. Some of them are setting a very low bar.

#DoBetter
Read 8 tweets

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