Thread by @TO_dpr

I spend a lot of time thinking and writing about, and advocating for #PatientPartner #compensation or #payment as part of research or other teams. I'm going to share some resources and thoughts as I've been asked lately about this 🧵.../1

For me it's best practice to offer #PatientPartners compensation (I'm going to use that term to mean the same thing as payment), and:
👉not everyone wants it - cool
👉some people will ask for flexibility in payment
👉if you don't have a budget for this, be transparent
.../2

If you're offended or defensive about my last tweet 👆re: 'best practice to offer #PatientPartners #compensation' - I'm ok with that, but you're not going to change my mind. In my experience, you represent a specific demographic that has the privilege to feel that way. ..../3

If you need some resources on principles or why #PatientPartner #Compensation in #Research, some resources:
👉@CIHR_IRSC - guidance w/o specific amts - cihr-irsc.gc.ca/e/51466.html
👉a paper I wrote w @seastarbatita @PatientCommando & K.Strain pxjournal.org/journal/vol5/i… .../4

If you need a resource on having the convo on #PatientPartner #Compensation - this can be used by #Researchers or patient partners -
👉another practical paper I co-wrote w @seastarbatita @PatientCommando & K. Strain - jospt.org/doi/full/10.25… in @JOSPT
.../5

If you need resources to guide you on specific amounts of #Compensation for #PatientPartners for different types of engagements:
👉from @NIHRinvolvement nihr.ac.uk/documents/cent…
👉from the @CIHR_IRSC funded SPOR Chronic Disease Networks diabetesaction.ca/wp-content/upl… .../6

Compensating #PatientPartners is fairly new & there are still a lot of barriers. My co-authors @ProulxLaurie @toupinak @ShobaDawson @martinusdewit and I have a preprint on this topic - we're hoping this helps break down some of these barriers - osf.io/kdpwv .../7

Happy to hear of other resources you find helpful about/for #PatientPartner #Compensation in #Research and #Healthcare and just wanted to re-share some of these again. There are lots of others out there that I haven't mentioned in this thread.../end (for now 😉)

2 more resources with concrete amounts to consider for #PatientPartner #Compensation:
👉@KidsInPain kidsinpain.ca/wp-content/upl…
👉@SPORAlliance sporevidencealliance.ca/wp-content/upl…
#PatientEngagement