A thread on #BPD and #Pain (my special interest) from an expert in both.
We (BPD sufferers) have a paradoxical relationship with pain.
We are quite tolerant of acute pain, especially when it's self inflicted.
When it comes to chronic pain we are unusually intolerant 1/10
#BPD IS emotional dysregulation. We also have a paradoxical relationship with emotions, feeling extremes whilst simultaneously being unable to label the feeling.
This concept is unusual for anyone to comprehend, us only becoming aware ourselves when "woken" to our diagnosis 2/10
Chronic pain is often a trigger for people with BPD (a start of a cascade of synapses that snowball to meltdown)
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(one more time!) Paradoxically, whilst we have chronic pain we're able to ignore the acute pain in the moment
In fact we inflict it ourselves without realising 3/10
Research exists about how self harm aids us. It is a maladaptive response to emotional dysregulation (like the often associated EDs).
The acute pain derived from chronic pain - is subconscious. We become addicted to self-harming behaviour & it helps us regulate our emotions 4/10
So let's paint a picture with this information.
A person, unaware they are mentally ill, causing self harm without realising due to a lack of interroception and slowly walking towards being triggered by unmanaged acute pain that is exacerbating chronic pain 5/10
All because of chronic trauma that has never been assessed or addressed.
Because the people charged with protecting you were absent and nobody ever caught the ball that was dropped 6/10
1 of the (dumb) acronyms used in DBT is PL.E.A.S.E where the PL stands for Physical iLlness (I told you it was dumb)
The management of PL is often interpreted as managing comorbid medical conditions
I'm capitalism we've been conditioned that physical pain is a low priority 7/10
If you are a like me and struggle with #BPD I'm here to impress the importance of managing your musculoskeletal pain
This is exceptionally difficult for us because:
We struggle defining feelings & pain. If you can't define something how do you manage it? 8/10
Part of definition is communicating severity. We 'over feel' chronic pain (and yes it's as painful as it sounds) which confuses professionals
If you are like me you have struggled to find somebody who understands all of the above 9/10
I'm hoping these words help you communicate what's happening to you and help you find the right people to guide you back to health
You deserve the right healthcare 💞
10/10
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Fear of Abandonment - when you're autistic you confuse social interaction easily. If you drive people away simply being your self you start to fear being yourself...
And the abandonment.
1/9
Unstable Relationships - when you don't understand your neurodivergence you think everyone thinks like you.
They don't.
This causes relationship instability, especially because you're autistic and don't know it. Shouldn't everyone love your special interest like you?
2/9
Uncertain Self-Image - your entire life people have tried to mould you into what society expects of you - except that isn't you.
This results in a complete inability to see your self as inherently acceptable. So you shift it.
(this term is really quite offensive and stigmatising, if you don't have this disease you're not allowed to use it at all in this context)
A short thread!
I'll present a bunch of common thoughts from a lived experience, common responses and how you can respond instead to create better outcomes for everyone involved.
Borderline: Why did you do that thing? (Concern & Confusion)
Common response: I wanted to, stop trying to control me, why does what I do matter so much to you?
My current understanding of COVID pathophysiology!
First, wtf is pathophysiology? Why that’s where
- pathology (disease process) &
- physiology (cellular biochemistry)
…collide!
A thread on why I haven’t stopped wearing an N-95 yet.
I’m comprehending that the only way to communicate the importance of avoiding COVID one has to comprehend why.
COVID is airborne vasculitis. So what? Well that’s never happened before.
Why is it scary? Heart and blood vessel health is one of the main purposes of healthcare.
Pathological damage to the human body is not “reversible” it is managed and there are limits on our ability to manage, especially when confronted with a new disease process.
We take time developing effective responses.
The question is how is COVID affecting blood vessels?
It is commonly done in groups with guidance. Please seek medical help for excessive distress.
5 modules
Dialectics - The Forest
Mindfulness - The Sea
Distress Tolerance - The Storm
Emotion Regulation - Within
Interpersonal Effectiveness - Heart/Brain/Soul
Plans aren’t actions, repetition creates foundation (ie: you need to learn the alphabet before you learn to read)
Module 1 - Dialectics - The Forest
Dialectic is a word rooted in philosophy and is defined as:
- The art of investigating or discussing the truth of opinions
- Inquiry into metaphysical contradictions and their solutions
I have broad understanding of what COVID does and my disease (BPD)+ ND helps me process things into easier to understand information.
I'll probably get things a bit wrong and annoy people but my approach is better safe than sorry.
A short layman thread on COVID pathophysiology.
Catching COVID doesn't mean you can't catch it again. In fact, you're more likely be infected again.
If people claim otherwise I would ask their approach to unacceptable levels of global infection destroying our healthcare system.
New healthcare takes SO LONG to train.
COVID attacks your endothelial tissue. This is the lining of blood vessels (literally every part of your body), cellular scarring is a thing and our body works best with smooth lines (scars make wiggly lines & ⬇️efficiency, ⬆️ tension over time).
Seriously it's like I need to write a list of the people who care and respect for me and frequently refer to and update said list.
I wish I didn't experience this but it's a symptom and not a choice. As you can imagine this has lead to me frequently querying people who I considered to be close to me about what I might have done to upset them and why they don't care about me anymore... when of course I never