When #AutismAwarenessMonth is a time of year that thousands of Autistic people hate the most, you have to consider the question:
"Why?"
If you don't already know the reasons, this is a thread for you.
April is a month when allistic people are the loudest in speaking over Autistic voices; when Autistic ppl watch progress unravel while being bombarded by people with good intentions & able1$t impacts who double down on the harm they cause instead of letting Autistic people lead.
April is a month of able1$t puzzle pieces, functioning labels, pseudoscience, talks of "cures", vaccine disinformation, "epidemic" fearmongering, Autism Speaks propaganda, tokenisation & exploitation of Autistic ppl, inspiration p0rn, saviourism, & more. Rinse & repeat each year.
If the Autistic people you encounter this April seem angry & bitter, & you feel even the slightest urge to tone-police them, halt & ask yourself:
"What context am I missing/dismissing here? What aspects of Autistic lived experience & culture am I overlooking?"
Autistic people are often highly sensitive to perceived injustices. So when Autism Awareness Month has an impact that countless autists feel is unfair, it can be extremely hard for us to let it go. The helplessness & frustration generated can be genuinely traumatic.
It hurts to know that no matter how strongly you advocate, someone without your marginalised lived experiences feels entitled to talk over you - & will likely get praised for it.
It's no wonder why every April hundreds of Autistic people reach month's end burnt out & distraught.
Many Autistic people are choosing to step away completely from Autism Awareness Month this year, out of self-preservation. And I really encourage Autistic people to prioritise self-preservation, as we can't develop meaningful, creative change if we're running on empty. But...
It disgusts me that Autistic people are being forced to remove ourselves from conversations ABOUT us, by the very "allies" who claim to want what's best for us. How is it allyship if it supports the same systems that disproportionately harm the people you "care" about?
Autistic disability-justice efforts are currently 10 steps ahead of where mainstream autism awareness needs to be.
If you consider yourself an "ally", try to show it by learning from, centering, heeding, & amplifying diverse Autistic voices all year round; not just in April.
This Autism Awareness Month, I'm posting whatever I want whenever I want. I'm blocking & deleting whoever I please. I'm saying no to people who want to tokenise & exploit me for the benefit of their own platforms. This month I'm prioritising Autistic well-being, including my own.
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Many people are pushing for the relabelling of #AutismAwarenessMonth to #AutismAcceptanceMonth, the reasoning being that we are past the need for awareness & that acceptance is more important.
I disagree. While well-intentioned, I believe that this perspective has a major flaw.
Because autism awareness spear-headed by non-Autistic people has been persistently more harmful than helpful, I get why many Autistic people want to distance themselves from the mainstream approach to autism "awareness". I'm one of those people!
However...
When people say "We don't need autism awareness anymore, we're past that!" I have to ask: Awareness for whom?
True acceptance cannot come about unless awareness is done RIGHT. Awareness is still direly necessary, particularly for more marginalised demographics.
To the non-Autistic "autism parents" who get defensive at Autistic people like me when we point out your impact, claiming that we "don't know parenthood" so have no say - you know Autistic parents of Autistic kids exist, right? So why do I see you speaking over them too?
You deserve community & support. Your child deserves deep understanding of & respect for Autistic culture. Autistic parents of Autistic kids can help you to access both.
So why don't you learn from them? Where does your cognitive dissonance & defensiveness truly stem from?
The pattern of speaking over Autistic voices in conversations about things that disproportionately impact us has a name btw.
This isn't to say that this is always the case. But I've noticed that some of the loudest "autism parents" are the ones who enforce this pattern the most.
Whenever I see people (including many Autistic people) saying things like "autism isn't a disability", it's extremely clear to me that they are centering a very narrow lived experience of autism that is heavily sheltered by privilege. [A thread]
One reason why so many "autism parents" tend to instinctively shut down Autistic people online is because the Autistic people who are dominating online conversations about autism are disproportionately more protected by certain privileges than the children of these parents...
These parents fear their children's more marginalised experiences are being erased. And they're right. For e.g., Autistic non-speakers are rarely deferred to by other autists online in convos about dissolving systemic barriers. Yet lack of AAC access is a HUGE human rights issue.
I had an Aspie Supremaci$t ranting in my comments last week because I spoke about how Autistic people are far more likely to be trans than allistic people, and how supporting trans Autistic people is important for Autistic liberation.
He insinuated that "aspies" are separate from & inherently better than everyone else. Accused other Autistic folks of making themselves "victims" by speaking out against harmful systems. Said "aspies" are often ryt-wing due to (what he insinuated was) superior thinking. No joke.
I'd consider it almost comedic if it weren't for the fact that people like him are very, very common, and that they take their active alignment with systems of oppression for their own self-preservation very, very seriously.
Demand anxiety/avoidance is common with autism. So much so that "Pathological Demand Avoidance" (PDA) has been increasingly recognised as a sort of "profile" of autism. While I'm opposed to the pathology paradigm, this is something that influences my life deeply, & has for years.
Autistic people tend to have highly sensitive threat responses - think "fight/flight/freeze/fawn"... This is relevant in the context of demand anxiety. What might cause an autist's nervous system to flip into survival mode could just be another casual task for someone who's NT.
Demand anxiety can be triggered by demands & *perceived* demands, even if self-imposed. For me personally, as soon as I feel like something is a demand, that I have to comply, & I don't have full choice/autonomy, my whole being will become intensely resistant towards that thing.
Dissolving institutional ableism in education would benefit ALL students.
It'd benefit all *teachers* as well.
But the education system is designed so that reform is unsustainable; the very foundations are ableist. Abolition & imagining fully new possibilities must be the goal.
Students' learning thrives in contexts where there's connection & acceptance of differences.
How can they thrive when the teacher-student ratio is high as 1:40?
When teachers are burnt out?
When what's taught is rigidly applied without room for those whose minds are different?
Some neurodivergent/disabled students are able to receive an individualised education plan to make their education more accessible to their needs.
But what if ALL students' education were accessible to their specific needs?
Accessibility should be the default, not the exception