A man "working on behalf of the Office of The President" @CVSHealth called me outta the blue 2x last week wanting me to explain my TWEETS.

Listen as I'm told execs & @KarenSLynch herself review recordings & the 'case' they compile on me & other PBM Caremark insured patients.🧵
2) I do hope @KarenSLynch gets involved to get Eliquis back on Caremark national base formulary. As @FortuneMagazine 'Most Powerful Woman in Health Care' I haven't understood why her company couldn't negotiate a favorable deal with @bmsnews so patients have covered access.
3) Eliquis & Xarelto retail for about the same price.
My local Walgreens: Eliquis $617, Xarelto $620.Data below from @P4AD_ It's always a bit odd when 1 company raises their price within days of the other to match. 🤔 @bmsnews @JanssenUS Point is, note the retail costs.
4) Now note the rebate (kickback) to PBMs from pharma on these same drugs, average 66.5%. (source @SSRHealth @DrugChannels). As I've said, the ONLY reason Xarelto would be exclusively preferred over Eliquis on a formulary is due to a much higher rebate. No clinical reason.
4) When Caremark dropped Eliquis from formulary, 150,000 patients at high-risk for cardiovascular events already stable on it were forced off or had 2pay the full retail price. We don't get the rebate!! After 8 years on Eliquis switch to Xarelto, warfarin or pay $617mo my choice.
5) Yet for my condition Eliquis (apixaban) has been shown to have less recurrent clot & risk of major bleeding. I nearly died of a clot. My dad died of a bleed. I fear both. I advocate so care decision made between patients & their doctors based on clinical data are honored.
6) It's simply fact that Caremark decided to drop Eliquis from formulary for non-medical reasons. In doing so, they removed a top therapeutic for the prevention of stroke & DVT & that's why doctors, patients & 16 nonprofits are speaking out to get it back on formulary.
7) I won't rehash it all, but see this thread for the backstory on the Eliquis drop & Caremark's calls to me last week based ONLY on my TWEETS of a @FOX13Memphis story. I'm very concerned about the disregard of my medical record privacy.
8) @KarenSLynch by now you've reviewed 'my case', know patients are having stroke, bleeds simply because CVS got a better rebate from @JanssenUS than @bmsnews. What are YOU going to do about it to get Eliquis back on formulary for ALL patients nationally to prevent more harms?

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More from @BethWaldron

Apr 10
Please help.

PBM CVS Caremark cold called me 2x because of my TWEETS about their Eliquis drop & resulting patient harms. A 🧵

Please RT & tag your elected leaders, media, ANYONE who can help protect patients.
#TwitterRx #MedTwitter #CardioTwitter
2) For those new to the Eliquis CVS Caremark coverage issue, take a moment to read my patient story & the issue explainer I published in @RPTHjournal : onlinelibrary.wiley.com/doi/full/10.10…
3) I never gave CVS social media my phone number, subscriber number or permission to access my medical records or contact my insurance plan manager. They did ALL this before cold calling me about a TWEET I made re this @FOX13Memphisnews @FOX13Mandy story fox13memphis.com/news/local/doc…
Read 25 tweets
Jan 31
I filed a @FTC report on CVS Caremark practices forcing 150,000 heart patients off Eliquis over the pleas of 16 national nonprofits. Patients are captive PBM consumers in need of federal protection. Investigate @linakhanFTC @FTCPhillips @RKSlaughterFTC @CSWilsonFTC @FTCWATCH
@FTC @linakhanFTC @FTCPhillips @RKSlaughterFTC @CSWilsonFTC @FTCWATCH Here's what the American Society of Hematology said to CVS Caremark:
"gravely concerned"
"serious impact" on patients
"ASH urges CVS to reconsider"
They cite clinical data showing ⬆️bleed risk ⬇️ outcomes.
hematology.org/-/media/hemato…
And here's 14 additional nonprofits urging CVS to reverse course because:
"this abrupt change will be dangerously disruptive for patients"
"unquestionably exacerbate health equity concerns that exist in cardiovascular care"
static1.squarespace.com/static/56e6efd…
Read 6 tweets
Jan 29
.@JCScottPCMA you say PBMs advocate for patients by ensuring drug access, yet when CVS Caremark dropped Eliquis from formulary it forced 150,000 stable heart patients off their effective therapy for non-medical reasons. Have a position @pcmanet? 16 nonprofits do. #StopTheSwitch
Here's the letter the American Society of Hematology sent Caremark. They also met with execs. Still Caremark went 🤷‍♂️
"gravely concerned"
"serious impact" on patients
"ASH urges CVS to reconsider"
They cite clinical data showing bleed risk, outcomes
hematology.org/-/media/hemato…
And here's 14 additional nonprofits urging CVS to reverse course because:
"this abrupt change will be dangerously disruptive for patients"
"unquestionably exacerbate health equity concerns that exist in cardiovascular care"
Still CVS went 🤷‍♂️
static1.squarespace.com/static/56e6efd…
Read 13 tweets
Dec 31, 2021
In hours, I & 150,000 patients will be forced off the life-saving blood thinner our doctor ordered. Since @CVSHealth leaders would meet with top docs last week about it but not patients, I want @AlanLotvinMD to know one they are hurting. This is my life. THREAD.
Please amplify.
2) Here’s the house—er single wide trailer—I grew up in on a dirt road in eastern North Carolina. No silver spoon here. My dad worked at a meat packing plant 21 years doing maintenance. Strong work ethic. Never lacking for love. ♥️
3) Family raised a little livestock on the side $. I loved the goats best. This is Lollipop. I took her to Show n’ Tell at school in first grade. 🐐😍
Read 32 tweets
Dec 30, 2021
While grateful Caremark met with top clinicians, I'm angry CVS is choosing to ignore their medical expertise & is charging ahead in 24 hours to take stable patients off the anticoagulant which their doctors prescribed, ignoring #patientsafety. Disgraceful.
I also note that I & patient groups have tried to speak with CVS leadership for weeks without success. Our only methods then have been to resort to letters, petitions, and tweets like this. How can a company have such power over patient lives & yet we have no access?
This is the very situation in which consumers--patients in this case--need government to intervene & provide protection. We are powerless & do not have the ability to change PBMs. They are practicing medicine over us without our consent & over our doctors orders.
Read 4 tweets
Dec 30, 2021
1) Good evening.
Tonight's #CVS Caremark #PBM topic:
Prior authorization & filing exemptions for patients. Caremark is touting this to clinicians as a way patients currently on #Eliquis can remain on it after Jan 1. It's complete BS.😲 Here's why---->
THREAD
2) CVS Caremark's 'Executive Escalation Team' has been working with me to explore ways I & other patients can remain on Eliquis. I will use myself as example. I've been stable on Eliquis for 8 years. Here's what my exemption process will look like:
3) trial and failure of warfarin will not be required as a condition for approval (whew...did warfarin for 10 years & I NEVER want to go back!)
Read 13 tweets

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