🚨Living with Covid #Access2Antivirals 🚨

Antiviral treatments are available to the 'Severely Immunosuppressed' a subset of the Clinically Vulnerable who remain at high-risk despite up to 5 vaccine doses.

🧡will cover how Vulnerable groups can access antiviral treatments.
1/ #Access2Antivirals  We often cannot access essential antivir
Early antiviral treatment is a vital tool to prevent severe outcomes in high-risk people.

Currently only a small group who have poor immunity following vaccination are allowed to access them.

Please look through this list to see if you qualify:

england.nhs.uk/coronavirus/do…

2/ Please follow the link in Tweet   * too many words
The 'Severely Immunosuppressed' group is smaller than those offered 5 vaccine doses & includes some never flagged as CEV.

So...
1) What should you do if you have Covid and DO qualify for antivirals?

2) What if you are Clinically Vulnerable/50+ and DON'T qualify on the list?

3/
What should you do if you have Covid and DO qualify for antivirals?

1. Make sure you have lateral flows at home. If you qualify for antivirals you can still order lateral flows for your own use.

gov.uk/order-coronavi…

4/ Check if you are eligible to order rapid lateral flow tests
2. If you, or a member of your household, have Covid symptoms you* should test.

*Keep testing for a few days, especially if at all symptomatic. Try to Isolate / HEPA / ventilation & FFP3.

3. Even a pale positive on lateral flow is still a positive.



5/
⏳️Your 5 day timer starts from your symptom start date⏳️

4. Report your result online.
(must be an NHS ordered test kit)
gov.uk/report-covid19…

In theory, this should be enough to trigger a referral.

Our experience shows you should also contact your GP or 111 / 119.

6/ GOV.UK  Report a COVID-19 test result  When was the test tak
Ask to be referred you to your local Covid Medicines Delivery Unit (CMDU) for triage. (They should not refer you to each other.)

5. The CMDU should contact you within 48hrs.

If they do not, or you are on day 5, you need to follow it up.

Do not give up!

7/ NHS   Covid Medicines Delivery Unit (CMDU)
6. If during triage you are told that your symptoms are too 'mild' refer them to the guidance.

8/

england.nhs.uk/coronavirus/do…
7. If you are told they only consider patients until day 6 or 7 refer them to this pathway.

By day 6/7 you would be limited to Remdesivir or 'off-label' (where a medicine used in a way different to that in the licence) access to the other treatments.

9/
england.nhs.uk/coronavirus/do… Please use the link.
⚠️ BEWARE of WEEKENDS ⚠️

Weekend access is generally poor. It appears to be a postcode lottery.

We are worried about the availability of services over the upcoming 4 day Bank Holiday weekend.

Some areas will offer treatment on day 6/7, but this is far from optimal.

10/
8. If you are refused treatment and you do qualify you need to take it further try escalating within the hospital via your specialist team / PALS but be prepared to take it all the way to your local MP if all else fails by day 5.

nhs.uk/nhs-services/h…

11/
We have heard that 10-15% of people who DO qualify can access these antiviral treatments.

Put another way, it means 85-90% can't access the antivirals.

We are highly concerned about this number!

12/
What if you are Clinically Vulnerable/50+ and DON'T qualify on the list?

The only possibility is accessing treatments via the Panoramic trial.

Lots of people can qualify for the trial but only 450 participants are added daily, of which only 225 are given the treatments.

13/ Who is eligible to join PANORAMIC:  You are currently experi
The demand has been high, due to the current surge.

However, this is currently closed for Easter...

It also appears to close over the weekends.

14/ Thank you for your interest in the PANORAMIC Trial, we are n
The Panoramic trial has a screening process and either your GP, or a study nurse or doctor will assess your eligibility and ask for your consent.

If you do qualify you will have a 50:50 chance of being offered antivirals, which should arrive the next day.

15/ Chronic Respiratory disease (including chronic obstructive p
Even if you don't receive the antivirals you will need answer questions online for 28 days and answer 3 phone calls to discuss with the trial team on days 7, 14 & 28.

16/ Taking part in the study will involve answering a few questi
We believe this constitutes health rationing.

Those 75+ should have been added to the antivirals list.

Plus, since treatments are already proven safe and effective for all Clinically Vulnerable / 50+, they should all have #Access2Antivirals through GPs and emergency GPs.

/END Sajid Javid   MHRAgovuk has just approved #Paxlovid, the cut
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More from @cv_cev

Feb 21
πŸ“£ What today's announcement means to us? 🧡

This account gives an anonymous voice to Clinically Vulnerable people in our support group on Facebook.

Threats now to:
Lives, jobs, freedoms + safe access to schooling & healthcare.

Join us for support πŸ‘‡
facebook.com/groups/6185063…
1/
This thread aims to share our members thoughts, each struggling with the broad and significant impacts of the announcement to be made today by Boris Johnson in the HoC.

2/ Freedom for some is being granted at the expense of freedom
"End of any freedom with covid has now been stolen for the vulnerable."

"The mental health of my children going to school will now spiral downwards uncontrollably."

3/ Our death sentence from Covid has now been set.
Read 32 tweets
Feb 19
Ultimate Freedom Day is forcing the most vulnerable into impossible situations.

How can we #StaySafe?
No testing. No isolating.

How can we judge our risks?
No ONS data, no government data.

How can we even access healthcare?
No masks.

1/

news.sky.com/story/covid-se…
With no masks and no isolating how can forced return to F2F work be viable in these circumstances?
We are choosing between #LivesAndLivelihoods

How can we send our children to school safely?
We are choosing between #educationANDlives

2/
Why is the answer ONLY more vaccines?
Severely immunosuppressed may not have made a response to 4.

Where is the real world evidence this will make a difference?
No other country is offering 5 doses.

What about the other CV / CEV?
Vaccines waning.

3/
independent.co.uk/news/health/co…
Read 8 tweets
Nov 23, 2021
Nadhim Zahawi has written to School leaders.

Focus = attendance

This is particularly concerning attendance targets are already driving many headteachers to threaten vulnerable households with fines and prosecutions.

1/

content.govdelivery.com/attachments/UK…
He emphasises the fact that schools must not use the following mitigations: bubbles or isolation of contacts.

Whilst insisting on the need to improve attendance "maximising school attendance a top priority" in a #Pandemic.

2/
Next, something we have been pushing for (if only it wasn't in that same paragraph demanding attendance). An acceptance that vulnerable children have been impacted more than others. * although no mention of children in vulnerable households.

3/
Read 19 tweets
Aug 25, 2021
🧡A letter, signed by Prof Jennifer Harries OBE, has informed parents of Clinically Extremely Vulnerable children that they are not CEV anymore.

Even being identified as needing a vaccine isn't a reason to shield.

NB/ Many (12-15) have still not received a first dose yet. 1/
Seeking to reassure parents
"Recent clinical studies have shown that children & young people are at very low risk of serious illness if they catch the virus. We are pleased to let you know that your child is therefore no longer considered to be clinically extremely vulnerable" 2/
...before the big blow...

"It is important that your child continues to attend their school or other educational settings."

* With a caveat that actually maybe your child is still CEV and "will still have to isolate or reduce their social contact".

3/
Read 9 tweets
Aug 24, 2021
With no

#vax4kids
#MasksInSchool
T&T billions supporting in-school contact tracing
HEPA
Quarantine of those taking PCRs
OR of households with +ves
Updates on Delta symptoms
Reductions in class sizes

How can CV/CEV households keep safe exposed by schools?

We need #SAFESCHOOLS
Families are in impossible situations.

We don't want to withdraw our kids and deny them formal education. We want our human rights to be conserved #educationANDlives.

#RemoteEd - extended to those isolating denied to those with households at risk.

What choices do we have?
If we take any days off we face fines, prosecutions and social services. Blunt tools aimed at those taking term-time holidays or school refusers.

Last school year, families had to battle for lives.

Even when attendance *wasn't* compulsory our members were receiving threats.
Read 9 tweets
Jul 21, 2021
There is evidence LEA's are planning to withdraw school places from Vulnerable families (again).

Some schools had been supportive.

Others had allowed people to remain On-Roll but not given resources.

Whilst many families were threatened with fines/prosecution/child services.
Education is a HUMAN right.

Life is a HUMAN right.

These are continuing to remain in conflict *for ALL vulnerable CV/CEV families* as we are generating further vaccine escape.

That is *why* CV & CEV will be offered boosters in the Autumn.

2/
Children in exam years will lose their rights to vital qualifications.

This is what will happen if your child stays at home to learn next year:

3/
Read 15 tweets

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