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charlos Profile picture
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Apr 24 • 4 tweets • 2 min read
I have an idea. Let’s not tell anybody. At all.

“The ⁦@UCLA⁩ researchers studied 1,038 people enrolled in the UCLA COVID Ambulatory Program. Researchers found that 309 of them developed #LongCovid.” webmd.com/lung/news/2022…
I definitely don’t see any reason why any journalist would need to ask any public health official why this information is not incorporated into any public health messaging about infection risk.. #LongCovid
Let’s be real - the reality is 1 in 10 are simply going to be sh*t out of luck with an incurable life altering disability with no outlook & that’s a fair price to pay for ordering coffee & jumping on the bus with no mask. #LongCovid
#PublicHealth

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More from @loscharlos

charlos Profile picture
Apr 23
#LongCovid is the most common adverse effect from infection.
The absolute **most conservative** estimate is that #LongCovid happens to 1 in 20 vaccinated breakthrough infections.

A medically rare event is 1 in 1000.
The latest data shows:

- #LongCovid lasts at least a year for 85% of people

- 2/3 need reduced work hours or cannot work at all
Read 5 tweets
charlos Profile picture
Apr 23
“I just thought I was going to be fine,’..Instead, the teen grew sicker. He suffered lung inflammation, body aches, fatigue. He struggled to walk a block without tiring… Korn ended up missing much of eighth grade as he continued to endure #LongCovid”latimes.com/california/sto…
“He once prided himself on his recall but now comes up empty when asked about things that came up in class just days before. ‘I could remember that I went to math class on Monday,’ he said. ‘But I couldn’t remember what I learned.’”
“We don’t know what, exactly, biologically causes it. We don’t know how to prevent it. And we don’t know how to treat it,” Dr. Michael Peluso, an assistant professor of medicine at @UCSF #LongCovid
Read 7 tweets
charlos Profile picture
Apr 20
🚨Important Announcement!

#TeamClots has just launched an initiative to scale their #MicroClots testing across the globe.

I have a few thoughts on why I think this is one of (if not the) most important next steps for helping #LongCovid patients 1/
kernls.com/projects/diagn…
We're in dire need of a biomarker & diagnostic, and #MicroClots is the most promising to date. So far it has a 100% detection rate in patients & yet to be disproven. Even if it falls short of 100%, it's now clear it's going to be a critical test for all #LongCovid patients. 2/
This initiative will allow @resiapretorius and her team to develop a methodology to replicate the #MicroClots test in any lab in the world. The implications of this **cannot be overstated** 3/
Read 19 tweets
charlos Profile picture
Apr 19
It's now explicitly clear the @CDCgov is deliberately lying to the public about #LongCovid

This past week revealed they are *well aware* of its alarming rate and severity, yet still no public warning & now airplanes are good to go. This is so damaging & horrifying. 🧵1/8
Last week, evidence surfaced of the @CDCgov discussing their studies showing "a substantial proportion of Covid survivors will have life altering disabilities" -- and that #LongCovid will have a major impact on the health care system. 2/8
Here's an account from a #LongCovid patient advocate with first hand knowledge of @CDCgov position on Long Covid based on recurrent meetings with their staff. 3/8
Read 8 tweets
charlos Profile picture
Apr 18
“This provides really strong evidence we need to be studying antiviral therapy in this context as soon as possible," said Deeks, adding that he has heard of yet another anecdotal case at UCSF in which a #LongCovid patient's symptoms cleared after Paxlovid. reuters.com/business/healt…
“Dr. Steven Deeks, a professor of medicine at the @UCSF & an expert in HIV cure research, said drug companies tend to discount single-patient case studies. But such instances have helped drive HIV cure research & Deeks thinks these Paxlovid cases could do the same for #LongCovid”
“Scientists caution that these cases are ‘hypothesis-generating only’… but they lend support to a leading theory that #LongCovid may be caused by the virus persisting in parts of the body for months, affecting patients' daily lives long after acute symptoms disappear.”
Read 8 tweets
charlos Profile picture
Apr 16
Why is the ⁦@guardian⁩ the only media outlet in the world with the courage & guts to report on #LongCovid on a regular basis?

“LongCovid sufferers need a large-scale recovery trial, fast-tracked to offer them answers about treatments” theguardian.com/commentisfree/…
“People with #LongCovid led the charge to identify, characterise and trigger a research agenda for the new condition through hard work and proactive social media networks. Their attention (and wrath) is now focused on impatience to test potential treatments.”
#LongCovid patients feel really abandoned not just by their government & medical institutions, but also by reporters, journalists & the media. The response has been abysmal. People with any sense of moral clarity really need to start stepping up, and pressing the issue.
Read 5 tweets

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