Thread by @lbrownster

Trigger warning for #LongCovid #medicaltrauma
A thread of 6 tweets. This is the first time I’ve spoken publicly about my #LongCovid

(1/6)
If COVID is the war, then #longhaulers are our veterans and we must take care of them!
-@dianaberrent, founder #SurvivorCorps

(2/6)I was diagnosed with Long COVID in April of 2021 and due to my significant cognitive impairments and treatment resistant depression, I became unable to work.

(3/6) If you or anyone you know is suffering from #longcovid please reach out and I can help you try to navigate the broken healthcare system so you don’t make the same time wasting mistakes I made.

(4/6) For instance, I thought I would receive treatment instead of endless testing. I waited a year to meet with the @northwesternmedicine Long COVID research director only to have him cancel on me twice (after the year wait) Research participation does not equal treatment.

(5/6) I’ve been gaslit by so many in the medical community because my symptoms don’t fit neatly into a diagnosable/treatable disease.

Please don’t leave comments telling me how sorry you are—I know you are?❤️ It will only make me feel worse to know you are worried about me.

(6/6) Instead, please DO tag a friend or share this with anyone in your life who would benefit from seeing it. Like my “cousins” with #mecfs we are among the #millionsmissing