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May 10 • 8 tweets • 3 min read
Slide 2 of our "Seven Slides for Physios": How serious is ME?

References and further reading 👇

#MEAwarenessWeek #CPD #physiotalk @thecspstudents @thecsp
Definitions of severity and more detailed information on ME in general can be found here:
onlinelibrary.wiley.com/doi/full/10.11…
Quality of Life reference:
bmjopen.bmj.com/content/bmjope…
Another quality of life reference:
ncbi.nlm.nih.gov/pmc/articles/P…
Employment status of people with ME
ncbi.nlm.nih.gov/pmc/articles/P…
With regards to definitions of severity from slide 2: we appreciate there is some discrepancy between our slide and the reference provided.

There is no single descriptor of severity agreed across the literature, which reflects the complex nature of ME

(cont)...
... our slide combined severity definitions from the ICC, the 2021 Mayo Clinic consensus (mayoclinicproceedings.org/article/S0025-…) and the ME Association book for clinicians. Apologies for not making this clearer

(cont)
... these categories often cause debate, which highlights how difficult it is to accurately apply labels

The slides purpose is to highlight the range of impact on pwME and that severity can fluctuate. Hopefully we achieved this 😬🤞 /END

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More from @PhysiosForME

Physios For ME Profile picture
May 11
Slide 3 of our "Seven Slides for Physios": Post Exertional Malaise

References (there's a lot... and they are just a small selection) and further reading below 👇

#MEAwarenessWeek #CPD #Physio
@thecspstudents @thecsp @WorldPhysio1951 Image
Further reading on PEM:
journals.plos.org/plosone/articl…
A short video describing PEM:
Read 11 tweets
Physios For ME Profile picture
May 9
Slide 1 of our "Seven Slides for Physios": What is ME, and why do you need to know about it?

Resources and references in this thread 👇

#MEAwarenessweek #CPD #Physio
@thecsp @thecspstudents @WorldPhysio1951 Image
More information and links to resources and a free CPD module for health professionals can all be found on our website:
physiosforme.com/what-is-me
A series of short films by @DialoguesMECFS gives an excellent overview for those who prefer to learn through this medium
dialogues-mecfs.co.uk
Read 4 tweets
Physios For ME Profile picture
Jan 31, 2021
Awareness of post exertional malaise is so key to preventing harm and yet we are still seeing obvious ignorance from medical professionals, or missed opportunities to spread the word when prominent figures are given a platform. 🧵/1
Patient example in our inbox today: #LongCovid since March. Advice to stop-rest-pace from #pwME led to stabilised symptoms. HR Monitoring allowed yoga & small walks. (Learn more here: physiosforme.com/heart-rate-mon…) /2
Consultant told patient it’s been 10 months and it’s time to “get back on your feet”. Referred to LC rehab. Reassured they’d seen some people with PEM and would go extra slow. Rehab programme described as "very gentle GET". /3
Read 8 tweets
Physios For ME Profile picture
Dec 16, 2020
We have now submitted our response to the NICE draft guidelines for ME.

The full response can be downloaded, along with a summary of our main thoughts, on our blog post here.

physiosforme.com/post/physios-f…
Summary of the summary: Overall, we are pleased with the tone and content of the Draft Guideline.
NICE are now advising against the use of structured exercise programmes for people with ME - something all #physio should be aware of
Read 5 tweets
Physios For ME Profile picture
Jul 25, 2019
This felt like a very relevant study about PEM but... no matter how much googling we did we still couldn’t fully understand it! So we asked the author directly 🙂 👇
mdpi.com/2075-4418/9/3/…
During exercise or triggering that is over the patients limit they seem to get a gastrointestinal barrier leakage. This most likely is due to two separate things: 1) the ability to provide energy; and 2) GUT blood supply reduction after continued exercise.
It would appear short burst activity may be more beneficial. Once the Gastro blood barrier is breached we see a change in renal function resulting in metabolite and electrolyte loss and this depletion results in a failure to recover as the available metabolite are low.
Read 6 tweets

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