Binita Kane Profile picture
Jun 12, 2022 19 tweets 11 min read Read on X
To any new followers, you may see me tweeting about #southasianheritagemonth over the coming weeks. This is a passion project I co-founded with @jasvirsingh in 2020 🧵

TDLR: No one told me when I was growing up that my history was important. I want to change that 1/
In 2017 I took part in a BBC1 Docu called ‘My Family Partition & Me’. I was the first member of my family in 70yrs to go back to Bangladesh (then West Bengal) to the place where my father fled in terror from genocide & retrace my family’s footsteps 2/
Violence surrounded 'Partition' in 1947, the division of the Indian subcontinent by the British, changing millions of lives forever. A 5 minute clip to my Dad’s story here. As you can see if you watch this, it was a pretty emotional journey for me! 3/
bbc.co.uk/news/av/magazi…
After feeling to India, like hundreds of thousands of others, my family became penniless refugees & lived in abject poverty. My Grandfather, a once proud and successful man, starved & wasted away, broken and ill, he died on a cold stone floor, nursed by my then young Father. 4/ An artist's impression of J...
On his deathbed, he took my father’s hand; ‘Be a good doctor’ he said. Driven by those words, my father overcame many struggles but through begging, borrowing and the kindness of strangers he was able to study. Through sheer determination he made the path to becoming a doctor. 5/ Image
He came to the UK and worked tirelessly for the NHS for nearly 50yrs, earning an OBE along the way (the irony is not lost on me!). Like thousands and thousands of South Asian immigrants, he has contributed so much to this Country. 6/ Image
A huge impact for me was the amount of unspoken history I learned. As someone who was born, bred and educated in the UK, it felt like this momentous, defining period of British history had been hidden by a wall of silence for > 70 years. 7/ newyorker.com/magazine/2015/…
I also learnt about the British Nationality Act of 1948 which gave any commonwealth citizens the right to live & work in the UK and the significant waves of migration that followed, a critical step in the workforce that re-built post-war Britain 8/ Image
The reaction to the programme was huge. The British public overwhelmingly responded by asking ‘Why is this history not taught in schools?’ It is a very British story, decisions made by Britain 1947 have shaped my Dad’s life, my grandfathers untimely death & my very exisitence. 9/ Image
I was left with an overwhelming sense that there was more to do, this led to creating a campaign around commemoration and education. We now have a fantastic group of people working on this Nationally, led by @RajUnsworth. 10/ Image
Over a cuppa with co-founder @_JasvirSingh in 2018, the concept of #southasianheritagemonth was born. Our motto; ‘Celebrate,Commemorate,Educate. Our goal;to help people better understand the diversity of present-day Britain for a more cohesive society 11/ southasianheritage.org.uk
Launched in 2020 with the help of founding patron @anitarani (rather last minute and online due to the pandemic 😅), we were blown away by the support for the campaign. Building on this in 2021, our hastag made > a 1/4 of a billion impressions across the world in 4 weeks. 12/ Image
Until very recently this has been a 100% volunteer-led effort. We owe huge debt of gratitude to our volunteers, the public who have supported us and all those who came before us to enable this movement. 13/ Image
We of course wouldn't be where we are without the support of our incredible patrons; @itsanitarani @DrRanj @DrAmirKhanGP @BalvinderSopal @bobbyfriction @Bobby_Seagull @BabitaTV 14/ Image
This year we have a brilliant programme planned and are excited to be having in-person events for the first time, alongside an online calendar to support our 2022 theme ‘Journeys of Empire’. Please let us know about your events by registering here; southasianheritage.org.uk/events 15/
I am also delighted that we will be launching our Schools Toolkit this week, focussed on the 75th anniversary of Partition. Keep an eye on our website for this. A project extremely close to my heart. Thanks in particular to @rkmoyna and @willgupshup for their contributions. 16/ Image
Finally, we live in divided times, there has never been a stronger argument for engaging the public and young people in particular, in the history of Britain and South Asia, to critically challenge and inform peoples' thinking about our beautifully diverse communities. 17/ Image
For more information, visit southasianheritage.org.uk and follow @SAHM_UK. Thanks to anyone who got to the end of this epic thread and to all the beautiful humans who continue to support #southasianheritagemonth, we couldn't do it without you END/ Image
Of all the silly mistakes to make, not tagging the right @_JasvirSingh has to take the biscuit! Sorry Jas 🤦🏽‍♀️
Also the wrong @rrunsworth 🫣
I’m blaming the desktop version of Twitter….
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More from @BinitaKane

Jul 21
In 2021, I went public with these images of my daughter’s platelets. One curious, brilliant paediatrician went away and tried to replicate findings in other children - 2 years later, here is his controlled study showing platelet hyperactivation in #longcovidkids 🧵

Image
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Danilo’s team took paired blood from a children with LC and healthy controls and processed them on the same day. They used flow cytometry to look at the platelets in a ‘resting’ state and when stimulated with compounds which should cause platelet activation.
They found that in LCKs, platelets were activated in the resting state (ie when they shouldn’t be).
This means that blood is in a ‘coaguable’ (pro-clotting) state in these kids.
Read 14 tweets
Apr 8
A huge thank you to everyone who used their energy to travel to Manchester or Sheffield to take part in this study of #microclots in #longcovid

**Preprint, not yet peer reviewed**

Some interesting findings 🧵 1/
Firstly, close attention needs to be paid to the methodology. This is not something that can be set up in any old lab (certainly not yet anyway) and samples need to be carefully processed by people who know what they are doing 2/ Image
After 3 years of painstaking work Prof Dalton @cazd45 and team have developed a method to automate the counting of microclots. This is a good thing as it reduces the manual work involved and will help to standardise results and in time scale up testing 3/
Read 12 tweets
Jul 22, 2023
A 🧵for #SouthAsianHeritageMonth on why the campaign is needed.

I was told by a colleague and good friend (white middle aged man) that ‘I see racism everywhere’ and ‘by focussing on identity I am sewing division’. Also, that referring to him as a ‘white man’ is offensive (1/5)
I wish the campaign didn’t have to exist but by the end of the conversation, I’d had every trope that people of colour face when talking about racism.
It was deeply upsetting to hear it from a friend, who would be mortified at the thought that he might have racist ideology (2)
There is a big difference between conscious racism and the deeply ingrained, hard-wired thinking that develops from living in a society where structural racism exists.
Campaign like ours open up a space for these conversations (3)
Read 7 tweets
Jun 26, 2023
Of all the things I thought I would do in my career, I didn’t think it would be getting involved with cases of children being denied life-saving treatment, or very sick children being removed by court order from their parents due to ‘factitious illness and FND’ 1/
I’m utterly horrified at what is happening to some children with #longcovid. History repeating itself - this has happened for decades to kids with #MECFS. These kids desperately need care and treatment.
When will the medical profession wake up? 2/
How many more children and young people need to die before action is taken? It’s one of the biggest scandals in medical history and no one talks about it within medicine. It’s devastating to walk with the families going through this 💔 3/
Read 8 tweets
Apr 1, 2023
Thanks to @StaceyPooleITV there’s been a focus on #LongCovidKids in the media this week.
Whenever @NHSEngland are asked for a statement re:Long Covid, it states ‘we have invested £X million’.
I want that taxpayers money to create value for patients, the system and clinicians 1/
Who is currently winning?
The patients? No
The healthcare economy? No
Clinicians? No
U.K. workforce? No

So let’s measure proper outcomes for those three things to ensure that money is being invested in the right place 2/
.@Sunny_Rae1 and I have talked a lot about this. We believe we Post-viral illnesses need to be defined as a specialty with clinicians trained in the underlying pathophysiology.

Patients are then seen by experts who can deal with multisystem issues, treat, support & monitor
3/
Read 7 tweets
Mar 15, 2023
I posted this in May 2021.

4 trips to Germany & 12 months of treatment, she has managed to do a handstand again (3 seconds!)

Not exercising yet, but otherwise able to live her life carefree.

With the right support and care recovery is possible (1/3)

#LongCovidAwarenessDay
This was filmed just over a year ago (Jasmin from 3 mins), she has since started High School full time and had no time off.

This time last year she was largely housebound and needing a wheelchair for distance (2/3)
Here’s a 10min talk I did for @TheWHN outlining her journey and how we got here.
Key points; there’s lots we can do with the right tests, expertise, courage & a leap of faith.

#TeamClots doing what we can to drive research. Making good progress 🤞🏽(3/3)

Read 4 tweets

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