Joining a #LongCovid online support group is definitely something...a 🧵[thread]
Listening to people who were able bodied experiencing disability for the first time definitely brings up so serious feelings for me, anger, frustration, annoyance 1/8
Listening to people who were able bodied experiencing disability for the first time definitely brings up so serious feelings for me, anger, frustration, annoyance 1/8
I just want to sit in the middle of it all and shout and the want to shout "some of us live like this all the time and no one cares!? Now you can finally see what that feels like."
But I don't want to dismiss anyone's very valid feelings about having their mental and 2/8
But I don't want to dismiss anyone's very valid feelings about having their mental and 2/8
Physical health stripped away from them.
They are now part of the Disabled community, *my* community. But they bring with them so much shame and unhappiness. Feelings I totally understand and are valid but are very difficult to listen to as a long term Disabled person. 3/8
They are now part of the Disabled community, *my* community. But they bring with them so much shame and unhappiness. Feelings I totally understand and are valid but are very difficult to listen to as a long term Disabled person. 3/8
It's like having our space invaded by people, who for the most part ignored us and now want help, support and love now that *they* are chronically ill.
It doesn't really work like that tots. 4/8
It doesn't really work like that tots. 4/8
But I sit and I listen and I see myself and my other chronically ill friends reflected in what they say, how they say it, the emotion that comes with it.
The grieving of your previous ability, body and self.
Its painful to read and there's no answer to people's 5/8
The grieving of your previous ability, body and self.
Its painful to read and there's no answer to people's 5/8
Questions of "why me?" "Was it that one time I forgot to wear a mask at the shop?" "When will I go back to the way I was?".
None of these answers are clear or easy. And for most of these people we won't go back to how we were, ever. 6/8
None of these answers are clear or easy. And for most of these people we won't go back to how we were, ever. 6/8
This is us now, in all our extraordinary struggles with the most mundane of tasks. Strugglijg, drowning in a world which doesn't have the resources to help even if they wanted to. 7/8
Covid has created another group of Disabled and chronically ill people with no support, no answers and with such poor mental health.
I am angry. I am beyond angry that Disabled people are just so dispensible in our world.
/end
I am angry. I am beyond angry that Disabled people are just so dispensible in our world.
/end
@threadreaderapp unroll please!
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