Before Covid, I had a huge amount of faith in the CDC. I am a pro-science person and I believed that they would act in accordance with the science to protect public health. Let's outline all the reasons that I no longer believe that.
Why on earth did they do this? That they insisted masking was unnecessary made me believe that they already understood Covid transmission. I thought they knew that it wasn't airborne and that it wasn't being transmitted by asymptomatic people. Turns out they didn't know anything.
Despite the utter lack of data, even in March as things were locking down, they continued to insist that no one needed to wear masks. Like an idiot, I believed them. (Spoiler, I caught Covid in March 2020 and am still sick so thanks CDC!)
It took them weeks to finally say, yeah, maybe people should wear masks. Oops. Even then, they insisted that cloth was just fine. Only medical professionals needed N95s. It wasn't until many months later they began to discuss mask efficacy and how cloth was not cutting it.
2) A huge part of the whole masking fiasco was the belief that Covid was spread via air droplets versus aerosols and an associated continued reliance on social distancing as a way to prevent transmission. In 9/2020, the CDC accidentally posted that said Covid is airborne.
Within 2 days, it was taken down as a "mistake" because "data do not suggest the coronavirus is spread primarily through the air." Thousands of scientists around the world were begging the CDC and WHO to acknowledge that covid is Airborne.
In March of 2022, Biden stepped away from CDC language to confirm that Covid is airborne. 2 full years after Covid hit the US, the CDC was still refusing to use appropriate language on aerosols, now well established as the primary source of Covid transmission.
3) Testing. When I got sick in 2020, I was told I couldn't test because I had no exposure (I hadn't been to China nor was I exposed to someone who had been to China). Here's a look at the early roll out of testing. science.org/content/articl…
4) In March 2021, the CDC said that you no longer needed to mask or distance if you're vaccinated! Hurray! I was so relieved. I thought that they must have good data that vaccines prevented transmission! Turns out nope, there was a drop in transmission but not 100%.
At the time, new variants were spreading rapidly and many experts warned that we didn't know how well vaccines would work against those variants. But rather than pull back on their recommendations, they went full let it rip mode.
Breakthrough infections were deemed rare. Even if you did get it, if you were vaccinated it would likely be "no worse than the flu." The Omicron death toll has long ago surpassed the Delta death toll. It was more mild, but significantly more transmissible apnews.com/article/ap-int…
These are just the main things that the CDC got wrong. Each of these caused untold harm. I can understand that they lacked power under Trump, but where is the messaging on Long Covid now? On clean indoor air and ventilation? The support for mask mandates as cases rise?
I no longer have any faith in them as a public health organization and I no longer trust anything they say. I know there are scientists at the CDC doing everything they can, but as an organization it has gone horribly wrong and we need a place to turn for accurate information.
I'll add some of the other major "mistakes": variants will evolve to be less deadly (BA.5 looks scary), vaccines will protect you from long covid (15% reduction), infection+vax=super immune (or you can get reinfected with every variant), we're now "living with Covid!"
ETA: some people have pointed out that the CDC has failed many other diseases. I knew first hand about the nightmarish way they dealt with HIV/AIDS but I blamed Reagan for all that. I was totally unaware of the ways they borked ME/CFS and Lyme. Now I see how wrong I was.
ETA2: some people seem confused about my position. I believe Covid is far from over and that #LongCovid is going to disable millions of Americans and decimate our economy. I want everyone that can to vax/boost and wear N95 masks or better.
I want a Clean Indoor Air Act providing ventilation and filtration to all public indoor spaces, especially schools. I want the dang @CDCgov to step up and push for those things. Finally, I want accurate information from them about Covid and things like Monkeypox.
A note on Monkeypox: It certainly looks like they're repeating the exact same mistakes. Restricting testing, downplaying the potential risk to the public, denying that it could even possibly be airborne. I have no idea what the reality is, but I have no faith in their response.
Sadly, instead of listening to the CDC, I listen to people like @edyong209 whose coverage of Covid, and now Monkeypox, is always amazing. theatlantic.com/health/archive…
ETA2: Lots of folks have pointed out 2 other big CDC mistakes that I'll add for a more complete list. 1) The idea that people could return to work at 5 days. Studies show people are contagious a median of 8 days after symptom onset. The CDC's messaging was a disaster on this one.
The basic take away by the general public (and bosses everywhere) was that, after 5 days, it was fine to return to work or school without any further testing. This was completely wrong and has contributed to continued the spread of Covid.
2) The CDC switching away from community spread maps to show hospitalizations instead. Out of curiosity I went and looked at the 2 maps for today.
The map on the right shows “community levels” and is the map they suggest people use to evaluate covid risk. It's a measure of hospitalizations in an area. The problem with this is that hospitalizations are a lagging indicator, 1-3 weeks behind things like positivity rates.
The map on the left is "community transmission" which is a much more accurate depiction of the general levels of Covid out in a community. And this is an under count given the new reliance on rapid tests. Experts suggest this # should be multiplied by 8 or 10.
The good news is that, thanks to vaccines and some level of natural immunity, a much smaller % of people infected end up hospitalized. But, high transmission still leads to much higher numbers of hospitalizations and death and people need to know a wave is coming.
And then there is #LongCovid. Even the CDC agrees that 1 in 5 people who have Covid will develop some form of long covid. There are now hundreds (maybe 1000s?) of studies showing damage done to the brains and vascular systems of people with even mild covid.
People need to understand when Covid numbers are rising in their area if they want to avoid infection or reinfection if for no other reason than to avoid Long Covid. Put bluntly, the CDC obscuring transmission data is contributing to the rise of people with #LongCovid.

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More from @ECooperAuthor

Jun 9
The general public doesn’t seem to know that Covid is airborne, that reinfection is common, that the vaccinated can get it, that Covid is a vascular disease with serious neurological complications possible, that #LongCovid is common and can disable anyone including the vaxed.
How can we expect people to accurately assess their Covid risk when they don’t understand such basic information? Public health like the @CDCgov has failed so spectacularly during this pandemic I sometimes marvel at how badly this has been bungled.
We’ve abandoned parents to let them sort through mounds of conflicting information on their own with no clear guidance on the often frightening data about the potential horrific health consequences of Covid.
Read 11 tweets
Jun 8
Life with #LongCovid: I've had a great few months where I felt like I was really starting to heal. Today, I'm back in bed, crashing though I don't know exactly why. Yesterday, I was able to write, talk on the phone, I got things done. Today I'm having trouble walking or speaking.
To be fair, I did a lot yesterday (walked up and down stairs 6 whole times, played with my son and puppy, took my son to an art class, did almost a hour of writing, called a pharmacy to work out a snafu with meds) but not so much that I would expect this massive crash.
I've tried to emotionally prepare myself that this could happen, but I was feeling really hopeful that I was actually recovering. After 1.5 years of no hope, I was feeling slightly better and let myself imagine that maybe I would, one day, get back to my "old self."
Read 8 tweets
Jun 7
I feel like we should be talking more about the GAO report on #LongCovid that stated, "The full magnitude of health and economic effects [of Long Covid] is unknown but is expected to be significant." a 🧵 gao.gov/products/gao-2…
What is the GAO you ask? The US Government Accountability Office is a non-partisan agency that uses data to evaluate how much something is gonna cost us. That's it. Their mandate is to, "improve the performance of government, ensuring transparency and saving money."
After reviewing the data available on #LongCovid, the GAO concluded that it, "has potentially affected up to 23 million Americans, pushing an estimated 1 million people out of work."
Read 11 tweets
Apr 7
I want to talk about the hot button topic of exercise and #LongCovid. I had an interaction with a doctor recently and when I said I had long covid, she said I should be on a graded exercise program to "start healing." The thing is, I have been getting better. 1/
In the last 2 months, I've been able to do some VERY light movement and it isn't sending me into a crash (yay!). I think doctors and the public see me doing a bit of exercise, and they think that's why I'm improving. And yes, it is certainly helping me 2/
build back some of strength that I'd lost being stuck in bed for so long. But, until I had a basic level of health, all exercise did was send my body into a full on crash, and I mean stretching for less than a minute would put me in bed for a day or two. 3/
Read 11 tweets
Mar 14
Since so many people asked for details about treatment in my last #LongCovid thread, I thought I'd do a detailed thread on it. I'll start by saying that this was with guidance from my doctors. I know medical care is inaccessible to many but please be cautious.
Things that have helped me the most:
- d-ribose was the first thing that allowed me to get out of bed for more than a few minutes. I credit this with turning the corner from bed bound to "just" home bound.
- CoQ10 gave me some more energy and clarity.
- NADH is the third supplement that has made a real difference in my energy levels.
- B1 and B12 plus a multivitamin
- DHA
- D+K vitamins
- Floradix for anemia
Read 12 tweets
Mar 12
On my 2 year Covid anniversary, a thread about my experience with #LongCovid and what I've learned about post-viral illnesses like #MECFS. This is me just before I caught Covid 3/20. I'd just hiked 10 miles and was having a blast. I was celebrating publishing my 3rd book. 1/ A healthy woman in her mid 40s smiles at the camera inside a
At the time I was in great shape, hiking and running regularly, working on my next book, being a very active mom, contemplating going back to do some university teaching. About a month after that photos was taken, I thought I had allergies. I felt a little tired. 2/
I knew Covid was coming but, as far as I knew, it wasn't really in the states yet. But then, a week later, I had trouble breathing and my doctor confirmed that I had Covid. I was one of the very first cases in the US. Yay me! 3/
Read 22 tweets

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