This #DisabilityPrideMonth I want to remind everyone that Black disabled ppl exist, that ableism is not the same as racism, that racism affects the way Black ppl experience ableism, and that you don't experience the same things we do, and that's not bad to acknowledge
Black disabled ppl represent a huge portion of disabled ppl, are often denied healthcare and diagnoses, are abused and unalived more, and are part of this community and need their concerns addressed with disability advocacy as well. #DisabilityPrideMonth
Telling Black folks to move over for disabled ppl, stomps right into racism. The belief that Black ppl can't be disabled is racist, the refusal to recognize that we exist, that we have different needs, that we have different experiences, are also racist #DisabilityPrideMonth
No one is saying you don't suffer under ableism, but it doesn't mean you can't be racist, & it doesn't mean you're experiencing the same suffering as racism. Most importantly, you saying that ableism is the same as racism, acts like disabled POC don't exist. #DisabilityPrideMonth
Disabled Black folks are constantly having to repeat this over and over again and it's about time there was some kind of reckoning over the racism and antiBlackness of the disabled community. Ya'll don't even care about us in your advocacy and it shows. #DisabilityPrideMonth
But you will use our stories and deaths to further your goals, while leaving us behind. It's a repeat of the overall landscape of politics and social justice. Use Black ppl and then refuse to even acknowledge their existence and shut the door in their faces #DisabilityPrideMonth
You use our stories for writing op eds and pieces advocating for "disability rights" that really do not consider the unique needs of Black folks, and you reject us otherwise, all while demanding we work the hardest out of anyone. It's bs #DisabilityPrideMonth
This is getting some traction so support disabled Black ppl, we struggling out here
C/app: spooniewolf
V/mo spooniewolf
And I'm a photographer too
soulreaverraptor.picfair.com

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More from @SingsongRaptor

Jul 5
The way that I can find people that understand why medical care is traumatizing to me on the internet is sanity saving. That ppl malign social media as the death of socializing is really bs considering how much sanity I've recovered via internet friends and kind souls
I only know one person irl with trigeminal neuralgia and she doesn't need a dentist, so like, who would understand that traumatizing experience I had with teeth stuff irl? Nobody. Most irl ppl are neck deep in ableism. I'd be super isolated without social media
I've got more irl support than a lot of disabled ppl I know, but it's still isolating, when most of them do not *get it*. Whether it's from privilege or ableism, they don't get it. My hubby be tryna give me advice on handling drs when he's a health cis man
Read 7 tweets
Jul 4
My disabled ass has a dentist appt tomorrow & I really need rideshare there. The public transit routes are a bit too hard for me to navigate in this heat and in my wheelchair & I desperately need this appt. It's looking like 35 bucks one way
C/app: spooniewolf
V/mo: spooniewolf
Can I tell yall how much I hate my trigeminal neuralgia right now? This appointment is to see the oral medicine specialists so we can discuss how to handle my triple rare nerve pain so I can get the deep cleaning I really need since it's been like a decade since I last had that
It's hard to want to see a dentist when my last experience with dental care (getting wisdom teeth pulled) was so wretched, so I'm really grateful to the care and compassion I was treated to at the dental school, esp cuz it was them that got me in to see the specialist so fast
Read 7 tweets
Sep 13, 2020
I don't know why I'm having so many thoughts about the term "noncompliant” today. Part of my issue with it is that it reveals how much HCPs start an interaction by disbelieving marginalized patients. The more axes of marginalization the more disbelief.
An example: every neurologist and ER doc I've met asks me if I have diabetes if I mention my nerve pain and paresthesia. They assume the cause is that bcuz I'm fat and Black and most HCPs hold the inaccurate belief that Type2 is caused by fatness and bad diet.
I'm not diabetic, I'm not prediabetic, nobody in my family has diabetes, they ask bcuz they make assumptions about me and my diet based on bias. They don't believe me when I tell them what my diet is like. They over test me for diabetes.
Read 18 tweets
Sep 13, 2020
I hate the term "noncompliant" as a patient. It strongly implies a willful refusal to heed the advice of HCPs and it's unevenly applied against patients and is frequently weaponized by HCPs. Drs esp refuse to acknowledge any barriers pts may have to compliance
The threat of being labelled noncompliant erodes the trust of patients and is often used to coerce marginalized pts into treatments they can't sustain or that they know will harm them at worst and do nothing at best. It prevents pts from seeking help for problems as well
I've been coerced multiple times into doing tx that I know I can't do or that I know will be harmful or unhelpful. Or I just flat out lie, bcuz either I've tried it before or I know my barriers to access will go ignored and I'll be labeled noncompliant for shit I can't control
Read 11 tweets
Aug 26, 2020
The really hard thing about being disabled and poor is that you feel like a huge asshole when lots of people give you great suggestions and you have to turn 95% of them down bcuz you don't have the money or space and probably can't handle the cleanup or setup
Society goes out of its way to make you feel like a whiny, ungrateful wretch who isn't trying or just wants to complain bcuz you've either already tried something or have reasons you can't try something or don't think it'll work or be worth the effort or money
It doesn't help that I've always been on the receiving end of verbal and emotional abuse bcuz "it must not be that bad" if I'm not doing what other ppl think I should be doing or trying, esp in regards to my mental health or disability.
Read 12 tweets
Jul 12, 2020
#BlackLivesMatter be like: stop killing us! Let us live free and in peace! Give us equity! *Sees another marginalized group* hey, hey, hey, them too, give alla dat over there too. Disabled lives? Hell yeah we care, we got them too!
#DisabledLivesMatter :
We don't care about or support Black disabled ppl, their needs or movements, we pretend they don't exist, harass them for speaking up, we know nothing about Black activism past or present, but we want them to talk about our problems and work for us
#DisabledLivesMatter shows that nonBlack disabled ppl don't care about Black ppl. You're angry that we're hypervisible, but the system is trying to destroy and silence us with shallow, performative bullshit. You demand that we talk about you and that we've had enough spotlight.
Read 12 tweets

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