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More from @LongCOVIDPhysio

Sep 9
What role does your identity have in your care?
@DrMarciaPT - if I wasn’t a PT in the system, I wouldn’t have understood how I was being seen and treated in the medical community.
@chiluvs1 I had to speak up for all those out there who didn’t have the ability to do so. What would happen if I stay quiet? Something I’m saying will create change for somebody.
@AshantiRN I thought I was immune to medical gaslighting as a nurse. My color and my sex trumped that. “Don’t gaslight yourself…don’t second guess your experience because a doctor told you so.”
Read 4 tweets
Sep 9
What does disability mean to you? @haziethompson - 1) The physical things that affect your ability and autonomy. 2) There’s the bigger scope used to exclude people from public life, a diminished capacity makes you unable to participate in society.
@chiluvs1 Disability means restricted access. Becoming a teacher gave access to healthcare, government, politics. I was accepted as a Black Woman. Then I learned as a disabled woman I had restricted access. Doctors restricted my care as a Black and disabled woman.
@ninachigbo in the African world, you are not allowed to say you can’t do something. As a Black Woman, mother, etc. you are expected care for other people. There is no acceptance for invisible illness. You must deal with it.
Read 6 tweets
Sep 9
According to @CenterRes, pacing is doing as much activity as possible without causing an increase in symptom.
Per @sunsopeningband it involves staying within an envelope of one’s ability. It’s a balance of resting with managing day-to-day activities. Much of society isn’t setup for pacing, however.
Per @julialmv , using a wearable was the most beneficial thing to me! I thought I was resting and pacing, but the data showed otherwise and I needed to scale back.
Read 5 tweets
Sep 8
Tomorrow! We begin the Long COVID Physiotherapy International Forum #LCPForum! Before we get started in 1 day, we want to thank 🌟EVERYBODY🌟 supporting, involved and working behind the scenes. Thank you 🙏🏻 #LongCOVID #FBLC #GlobalPT Long COVID Physio Internati...
We also want to wish everybody a fantastic #worldPTday today, which on this day last year @WorldPhysio1951 provided #LongCOVID resources available in over 60 different languages longcovid.physio/quick-access
Registration is still open to join us live or access recordings on demand #LCPForum
longcovid.physio/forum
Read 4 tweets
Jun 1
@guardian Two million people in UK living with #LongCOVID, say studies @ONS
theguardian.com/world/2022/jun…
@Independent UK #LongCOVID cases hit record high of 2 million @ONS
independent.co.uk/news/health/co…
@SkyNews Two million people in UK estimated to be suffering from #LongCOVID, Office for National Statistics @ONS says
news.sky.com/story/covid-19…
Read 7 tweets
Mar 16
New #LongCOVIDPhysio video series released today on “what are common #LongCOVID symptoms?” … part 1 👇 (and part two in the thread 🧵 below)
“what are common #LongCOVID symptoms?” … part 2
Check out the video in full #LongCOVID common symptoms video on our website👇 including transcript (audio as text)
longcovid.physio/long-covid-vid…
Read 7 tweets

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