Five years of #LongCovid and still no sign of a cure.

In this short video our members share the reality of this life altering condition.

On this #InternationalLongCovidAwarenessDay we raise the alarm that more needs to be done.

Millions are suffering.

#LongCovidAwareness Research, support & effective treatments are urgently needed.

Lives, health, careers, education, financial stability, homes & relationships are all being lost.

Anyone can develop #LongCovid

The only way to prevent it, is to stop the spread of #Covid

#LongCovidAwarenessDay

Difficult watching Dr Lisa Ritchie (IPC) @covidinquiryuk today.
We advise a trigger warning ⚠️ for this post & if you plan on watching it later.

#COVIDInquiry #LongCOVID #LongCOVIDAHPs #COVIDIsAirborne #AGPs #COVIDIsNotOver #CleanAir #LongCOVIDGroups #LongCOVIDKids #PPE #IPC Dr Ritchie agreed when asked
"What was known about #COVID was informed by #SARS (referring to SARS-Cov-1)"

#CovidInquiry #LongCOVID #LongCOVIDAHPs #COVIDIsAirborne #AGPs #COVIDIsNotOver #CleanAir #LongCOVIDGroups #LongCOVIDKids #PPE #IPC

Week 2 of hearings for module 3 at @covidinquiryuk starting with Kevin Rowan (TUC)

Regarding RIDDOR:

"I think there's significant underreporting in all aspects including the long term impacts of #COVID"

#CovidInquiry #LongCOVID #LongCOVIDAHPs #LongCovidGroups #CleanAir TUC responding to HSE evidence on the purpose of RIDDOR

#CovidInquiry #LongCOVID #LongCOVIDAHPs #LongCovidGroups #CleanAir #COVIDIsNotOver #COVIDIsAirborne

The final episode of the #LongCOVID Video Series is now live 🎥🤩🎬🍿

#Exercise

See the video, audio only, transcript, details for translated closed captions, the team involved, and how to access the full video series, by clicking 👇

longcovid.physio/long-covid-vid…
Access the video on @YouTube

New Episode of our #LongCOVID Video Series released today 💙

⚖️ #Pacing ⚖️

Click on link 👇 to watch video, listen to audio only, or read transcript (audio as text).

Thank you to all involved 🙏🏻💙
@fisiocamera

longcovid.physio/long-covid-vid… @LindsaySkipper @sunsopeningband @julialmv @CenterRes @LisaAMcCorkell @OT_Skiff @kirrabrean @MichelleBull4 @SammieFMc

@4Workwell @scrippsresearch @DePaulU @patientled @PhysiosForME @LongCovidKids @visible_health

@fisiocamera

🚨New Release Today🚨

Safe #LongCOVID Rehabilitation

Created by @LongCOVIDPhysio in partnership with @fisiocamera

Clink on link below 🔗👇 to access video with closed captions (which can be translated), audio only, and written transcript.

longcovid.physio/long-covid-vid… This video received consultation from @LindsaySkipper @sunsopeningband @4Workwell @LauraTabacof @MountSinaiNYC @KellyOBrien25 @UofTCOVIDRehab @SimonDecary @USherbrooke @DrMark_Faghy @DerbyUni

And peer reviewed by @LongCOVIDPhysio executive board

New Video Released Today🎉

“Impact of #LongCOVID on Day-to-Day Life”

This 5th instalment of the Long COVID Video Series, in partnership with @fisiocamera, has been co-produced with people living with Long COVID, sharing their stories

longcovid.physio/long-covid-vid… Thank you to the participants of Somerset #LongCOVID peer support group, who shared their stories of how Long COVID impacts their day-to-day lives, and Physiotherapist Liz Truman @NHSSomerset who supports the group.

Long COVID Physio International Forum #LCPForum recordings from Day 1 are now available 💙 🧵 #LCPForum Day 1 open and welcome with @darrenabrown @PTPintcast @ThePhysiFro & Dr Richard Nielsen @RMUoHP

What role does your identity have in your care?
@DrMarciaPT - if I wasn’t a PT in the system, I wouldn’t have understood how I was being seen and treated in the medical community. @chiluvs1 I had to speak up for all those out there who didn’t have the ability to do so. What would happen if I stay quiet? Something I’m saying will create change for somebody.

What does disability mean to you? @haziethompson - 1) The physical things that affect your ability and autonomy. 2) There’s the bigger scope used to exclude people from public life, a diminished capacity makes you unable to participate in society. @chiluvs1 Disability means restricted access. Becoming a teacher gave access to healthcare, government, politics. I was accepted as a Black Woman. Then I learned as a disabled woman I had restricted access. Doctors restricted my care as a Black and disabled woman.

According to @CenterRes, pacing is doing as much activity as possible without causing an increase in symptom. Per @sunsopeningband it involves staying within an envelope of one’s ability. It’s a balance of resting with managing day-to-day activities. Much of society isn’t setup for pacing, however.

Tomorrow! We begin the Long COVID Physiotherapy International Forum #LCPForum! Before we get started in 1 day, we want to thank 🌟EVERYBODY🌟 supporting, involved and working behind the scenes. Thank you 🙏🏻 #LongCOVID #FBLC #GlobalPT We also want to wish everybody a fantastic #worldPTday today, which on this day last year @WorldPhysio1951 provided #LongCOVID resources available in over 60 different languages longcovid.physio/quick-access

In 2 days we begin the Long COVID Physio International Forum #LCPForum. We have an incredible lineup of speakers, so check out the full programme👇. There’s still time to register #LongCOVID #FBLC #GlobalPT
longcovid.physio/forum-programme @ThePhysiFro @ekstokes @SimonDecary @LisaAMcCorkell @NHSLeader @LongCOVIDEurope @nickayes4 @BreathewellPT @JonesFio @OnTapPhysio @SueYFC @DP_Gross @IppokratisAnge1 @MVGutierrezMD @racheltarrant5 @sunsopeningband @herlifeinpixels @Know_HG @MelindaWMaxwell @AlyssaaErinn

@guardian Two million people in UK living with #LongCOVID, say studies @ONS
theguardian.com/world/2022/jun… @Independent UK #LongCOVID cases hit record high of 2 million @ONS
independent.co.uk/news/health/co…

New #LongCOVIDPhysio video series released today on “what are common #LongCOVID symptoms?” … part 1 👇 (and part two in the thread 🧵 below) “what are common #LongCOVID symptoms?” … part 2

#LongCOVID has long told the story of the vascular nature of #COVID (thank you Lauren for your incredible art) [all images described in tweet or AltText] #LongCOVID #LongHaulers have talked of the vascular effects of #COVID since Spring 2020, when many felt first-hand the multi-system viral effects

#WorldPTDay is amazingly busy on social media today, showing how much our #GlobalPT community cares about the needs of ppl living with & affected by #LongCOVID … so here’s a SUPER 🧵 of threads
1/n What is #LongCOVID in over 50 different languages #WorldPTDay
2/n

https://twitter.com/LongCOVIDPhysio/status/1435470501544087557

#LongCOVIDPhysio formed in November 2020 and as a group we’ve achieved a lot in this time. So what have we been doing in the context of #LongCOVID? A thread 🧵 longcovid.physio Firstly we provide loads of free resources with huge diversity of topics, including what is “#LongCOVID” longcovid.physio/longcovid