Journalists on the #longcovid and #disability beats: Protest scheduled outside White House on Mon 9/19 at 12pm. Dozens disabled by #mecfs and post-viral illness may be arrested as they sit down to rest. Great visuals, and a window into a major story. millionsmissing.meaction.net/protest2022/
This is a direct action in the style of how ACT UP raised the alarm about HIV starting in the 1980s. New pandemic, similar playbook: putting bodies on the line to calling for more medical research, clinical trials, education campaigns, and economic support for patients.
#MillionsMissing refers to millions of #mecfs patients missing from their lives, and millions (billions, really) of dollars in lost wages missing from the economy. Millions more patients could go missing due #longcovid. What's needed is an urgent, ambitious national action plan.
About half of those with #longcovid could have #mecfs, Highlighting this fact -- along with the right types of research -- is key to helping us navigate the labor shortage, and empowering millions with post-viral illness to keep pursuing their dreams of career and family.
I've been on the board of @MEActNet since 2015, and am proud to see the org out front leading, staying true to its roots, calling for innovative policies, and pointing the way for a brighter future. This is what I signed up for on day one.
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