Discover and read the best of Twitter Threads about #disability

Most recents (24)

Med Schools offer almost no instruction in the world's #1 cause of working-age disability. It'd be like Dental Schools not covering cavities.

7 words diagnose most #migraine: Recurrent #pain w/ hypersensitivity &/or nausea. 60% of patients go undiagnosed. #MedicalTwitter #PCP Image
#Migraine is PROGRESSIVE. A 40% diagnostic rate condemns some to lifelong #disability: Late diagnosis & ineffective treatment of acute #migraine are leading risks for continuous migraine. #PCP #MedicalTwitter mdedge.com/jcomjournal/ar…
🔴HOW DOES THIS CHILD GO 8 YEARS WITHOUT A DIAGNOSIS? She has textbook ICHD-3 #migraine! 1>sudden hypersensitivity (smell) 2>throbbing #pain 3>nausea 4>need for bedrest

She might've avoided #disability w/ early diagnosis & treatment. #PCP blogs.webmd.com/my-experience/…
Read 10 tweets
requirements for coverage of mental health services & habilitation services for people w/intellectual & developmental disabilities, expansion of home & community-based services options, protections against disability discrimination, and
(thread 2)
#MentalHealthAwareness @AAPD
expansion of the reach of mental health parity are essential to the health, independence, & self-sufficiency of Americans w/disabilities.

Judge Barrett’s record also raises other serious concerns for people w/disabilities
(thread 3)
#MentalHealthAwareness
@AAPD @NDRNadvocates
as well. For details, you can
👉rd the letter👈 that @AAPD & MORE THAN 50 OTHER #DISABILITY ORG.'S sent to the #Senate opposing her nomination: bit.ly/2HuoCAy
🗽SPREAD THE WORD🗽
(thread 4) #MentalHealthAwareness
@MauriceBenard @NDRNadvocates @RoyCooperNC
Read 7 tweets
Okay, folks, I want to lay down an explanation for why I've been missing these last 2 weeks & out of sorts the last 2 months,

I think the many folks that I've disappointed by flaking deserve an explanation:

1/ #chronicpain #disability #MedTwitter
This is a strange medical tale, & I still do not have an answer as to why even after visiting the ER multiple times & seeing a ton of physicians,

I've been disabled for 13 years, this is one of the hardest ones I've fought

2/ #chronicpain #disability #MedTwitter
Over the summer I developed these intense itching symptoms, like hot flashes all over my body that would last days & sometimes weeks,

the itching would be so intense that it wouldn't let me sleep, & no amount of medication or lotions or treatment seemed to make a difference,

3/
Read 13 tweets
***Emergency Help Needed*** ***5 AISH Clients***

We need your help. When people contact us they have already exhausted each and every possible option for assistance and they NEED HELP NOW!

I have been given permission to share some info from the AISH Clients asking us for #Help
I have had 5 calls just this afternoon/evening from AISH clients who did not receive #AISH & have been frantically get ahold of their respective workers or even get a return phone call from the intake worker on call. #Help

Here are their stories: #YYC #CalgaryCares #Alberta
Client 1: Elderly gentleman with a walker and mobility issues. Is unable to go to the foodbank or travel due to medical issues. Has special dietary needs but AISH has cut off some of his benefits. NEEDS A SMALL FOOD HAMPER

#FeedYYC #FoodSecurity #FoodHelp #Alberta #Abpoli #Ableg
Read 11 tweets
#embodiment #DisruptedEmbodiment #NonNormativeEmbodiment #ChronicIllness #disability #derealisation #depersonalisation #BodyMind #disidentification

I think the way this article talks about disidentification w one’s parts vs. “centering” is gesturing towards something...
...that feels relevant, even though you’re describing a *physical* part that you’re disidentified from, and the article is talking in terms of psychological concepts.

journal.workthatreconnects.org/2018/07/20/ide…
I think some of Margaret Price’s work, esp “The Bodymind problem and the Possibilities of Pain” could perhaps also be useful for you to think with, here? (@PriceMargaret, what do you think?) onlinelibrary.wiley.com/doi/abs/10.111…
Read 4 tweets
Ppl coming at me like "you don't understand about CRISPR." Perhaps. But you're talking to someone who traveled to Tierra del Fuego to be closer to #Darwin. Wrote a sci-fi novel on genetics with #PeterSinger and #JamesWatson as characters. Just pubbed: disabilityvisibilityproject.com/2020/10/06/a-v…
This is behind a paywall but maybe @APublicSpace wld make it public since we're in a CRISPR moment? Megan! Brigid! Consider making public? "A Valentine to Darwin" apublicspace.org/magazine/detai…
The book: "Anne joins four others with disabilities at the Colony, a Long Island research station, where they will be paid to stay on site and provide stem cells for research efforts headed by geneticist Engel Deeter." I ❤️Soft Skull softskull.com/dd-product/the…
Read 5 tweets
Listening to Christine Gordon of @ReadingsBooks launch @Jacinta_Parsons’s book “Unseen” - a book not just about the events of enduring & #chronicillness but also about its #complexity. JP hopes that she has captured something of the nuance & diversity of the #LivedExperience...
@Jacinta_Parsons says the path to dx is an underappreciated & often lengthy aspect of the experience of chronic illness - it’s not necessarily an easy path to getting a diagnosis & treatment.
When the change in your health is incremental it can take years from the onset of symptoms to eventual diagnosis. I am fascinated w the transformative power of the diagnostic moment #crohns #socdx
Read 35 tweets
#OpEd on the #CoronaVirus in the #UK: @michael75lewis

The #Covid19 pandemic is widely out of control around the world, where countries had a degree of success in stemming it’s rapid spread, they were led by women or took a truly ‘whatever it takes’ approach to solving the issue. Image
But even those countries are now struggling to contain the virus.

In the UK, @BorisJohnson implemented the full national #lockdown in March - I myself have been #shielding since the 20th of March and although shielding was paused on the 1st of August - I have continued to
(mostly) shield since - I have only been out for urgent medical treatment and a few basic supplies - because of having brittle #asthma I cannot return to work or spend time out in the community until it is safe to do so.

The lockdown was lifted too quickly, @RishiSunak stated in
Read 16 tweets
Story time. So, like, 10 years ago, I was confronted by a seemingly unmovable object: the sudden onset of a physical and neurological impairment, my path to #disability. I thought that was the worst year. Then 2020 happened...( 1/9 )
Before the turn of the new year, the college at which I’d worked chose to not extend my contract — a move that I still take offence toward for the underhanded way they approached it: the last hour on the semester’s last day without forewarning. ( 2/9 )
In any event, I fell back onto my side gig as full time as someone with intractable #pain is able. And I LOVED it. Working tech theatre is amazing. Sure, the hours suck, and higher pay is always desirable, but I was at least being treated with respect & dignity. ( 3/9 )
Read 10 tweets
Every time McConnell's lips move, he lies. McConnell himself has voted SIXTY SEVEN TIMES to overturn the #ACA. His state is among those petitioning to end the #ACA as an unjust law. The law protects #PreExistingConditions. It comes before #SCOTUS mid-November. Barrett will vote.
Trump filed to have #ACA struck down on June 25, with specific attention to the #PreExistingConditions clause of the law. If Trump thought #AmyConeyBarrett would vote against him, he would never have nominated her. This is how a 6-3 #SCOTUS begins: ending healthcare for millions.
You can read the PDF of the case at supremecourt.gov.
Read 5 tweets
1. It's #Acta day! In 9th edition of our Gender Newspaper, we are grateful to @ranjanakumari of @CSR_India for writing the editorial. In this #thread we'll list all the people we featured.

Read Acta 9 here: ungender.in/wp-content/upl…

Earlier editions: ungender.in/acta/
2. In this edition of #ConversationWithLeaders, we feature @aparna_devi & @heathergupta

From Ungender's desk, @shwetawrites's Twitter thread on gendered products, #PoSH blogs by Karan Arora.

Read Acta 9 here: ungender.in/wp-content/upl…

Earlier editions: ungender.in/acta/
Love our #gendernews, #disability and #DiversityandInclusion news roundup? We've compiled the best of these headlines for you. Headlines from @Poynter, @SheThePeople, @FeminismInIndia, @ZDNet

Read Acta 9 here: ungender.in/wp-content/upl…
Earlier editions: ungender.in/acta/
Read 4 tweets
Getting ready to live tweet the last day of the #DisabilityRC hearing into the use of psychotropic medication and chemical restraints.

It's been a tough week, so if you need to mute this thread of the hashtag, we do understand.
If you feel impacted by anything you read here today, remember you can always call Lifeline on 13 11 14.

You can also call the National Counselling and Referral Service (specifically set up to support people impacted by anything related to the #DisabilityRC) on 1800 421 468.
We have been very disappointed so far with the lack of people with disability giving evidence at this hearing, and we'd like to start this thread today by sharing three blogs written for us by people with lived experience of the mental health system. #DisabilityRC
Read 83 tweets
Dr Barrington draws attention to this well written open access commentary #MedTwitter #Neonatology #Disability #QoL A good life cannot be predicted from a brain scan!
Neonatologists often stare at seeming disasters early in the life of a newborn. Parents are distraught and ask how the road ahead would be? We are tempted to carry out tests and scans, lean on our personal experience and give our opinion: This itself has consequences 2/n
Research in keeping with the World Health Organization’s definition of QoL (a child or parent’s perception of their life) shows that disability severity has little relationship to life quality 3/n
Read 9 tweets
Getting ready to live tweet the #DisabilityRC again this morning. Thanks to everyone following along this week. Some of the testimony is confronting to hear, and we appreciate everyone engaging with us this week.
As always, if you need support, you can reach Lifeline on 13 11 14.

You can also call the National Counselling and Referral Service, set up to support anyone impacted by anything related to the #DisabilityRC, on 1800 421 468.
@FrancesPWDA is live tweeting this morning's #DisabilityRC sessions. You can follow the thread here:

Read 72 tweets
When I see people taking the time to learn how to alt-text their media #Accessibility #DisabilityTwitter #Disability 1/7
On a serious note, please make sure to alt text your media! Disabled people make up the world's largest minority. You should care about accessibility because disabled people matter, but on a more selfish note accessible media guarantees that more people engage with it! 2/7
Writing alt text and image descriptions is really easy, especially on Twitter. When you upload an image to Twitter it'll prompt you to add alt text (or you can click edit to do so). 3/7
Read 10 tweets
I promised I would write more about our time at @HeronIsle from a #disability access perspective. It won't be professional, it wont cover all. It will be an insight into how it worked for us. I will unroll it at the end with Thread Reader App for those who find it easier.
#inclusion starts the second you meet the 1st staff member and we certainly started off well. The first check in member took one look at my chair and said 'you will do ok on the island'. I was unsure. When you are nervous positivity makes a difference. Positivity breeds culture.
The experience of getting on the boat was seamless. No insisting on help not wanted. No 'oh gee not sure about this'. Just a simple 'you know what you are doing, tell us how to help' from the deckhand. Qualifying the disabled person as the expert. Love it.
Read 15 tweets
CN: institutionalisation

I think a lot about how group homes treat people with I/DD. I used to support Sam, who has chronic leg pain and sometimes has stress headaches. They'd tell staff that their leg hurt every day, so it was labelled a behaviour and staff were to ignore it.
This had a flow on effect. Every single time Sam is in pain of any kind, it is now written on the behaviour chart and ignored.

Stomach cramps? Behaviour.
Headache? Behaviour.
All Sam's pain is behaviour. None of their pain is real to staff.
Sam has PRN paracetamol. I was the only staff who would ever administer it. Sam would go months without the most basic pain relief. I would have to argue with staff to give it.

"It's just a behaviour!"

I brought it up with my supervisor. Again, it was just a behaviour
Read 10 tweets
On Jul 1, Mexico's Congress passed a new copyright law that pasted in the worst aspects of US and EU copyrights. The law passed without debate or consultation, as part of Donald Trump's #USMCA trade deal.

1/14

eff.org/deeplinks/2020… Image
Then, a month later, Mexico's Human Rights Commission stopped the law (temporarily), referring it to the Mexican Supreme Court on the grounds that it could violate the Mexican Constitution.

2/14

eff.org/deeplinks/2020…
They're right to worry. The US's digital copyright system - the #DMCA - is 22 years old and over that time, it has been a disaster for human rights. We should know. We've been fighting it since it was just a bill, working its way through Congress.

3/14

eff.org/issues/dmca
Read 14 tweets
Now we know Trump mocked a man's #disability because he feels "disgust for those who have suffered." As president, he told staff "not to include wounded #veterans" in an event because “Nobody wants to see that."

Trump's views of #vets: reporting from @TheAtlantic (thread)
.@FoxNews @AP & other media organizations have verified @TheAtlantic's reporting that Trump lied when he said he couldn't reach a French cemetery to honor America's war dead. In fact, "he feared his hair would become disheveled in the rain."
“Why should I go to that cemetery? It’s filled with losers," Trump told senior staff members," referring to America's WWI fallen. During the same 2018 trip, he referred to the "more than 1,800 marines who lost their lives at Belleau Wood as 'suckers' for getting killed."
Read 22 tweets
How anyone who respects #vets wouldn't crawl thru mud to #VoteBiden is beyond me.

After reading Trump's shameful comments, I Googled the name of the #POW whose name I wore on my wrist for years. What I learned couldn't stand in starker contrast to @realDonaldTrump.
#POW Cpt Lynn Guenther was shot down & spent 14 months in the infamous Hanoi Hilton. He said the experience taught him "the real meaning of tolerance and love - tolerance for those around us and love for the country and world we live in" (link below). nara.getarchive.net/media/former-p…
.@realDonaldTrump You didn't avoid #Vietnam b/c you were a Conscientious Objector. You cooked up a #bonespur because you're a coward & have no commitment to serving others. Here's the #POW whose name I wore on my wrist during the War. nara.getarchive.net/media/former-p…
Read 16 tweets
We will be transporting the powered wheelchair from Calgary to Leduc hopefully in the next week!

We also have some goodies to include w#in our special care package for the woman who is in need of this wheelchair! This is life changing for her!!!
We @HarvestHillsYYC are so grateful for all the community support and we are still a tad bit short of our fundraising goal so if you could please help...contact Jennifer at: 403-608-7224 for more info.
Read 3 tweets
When i was evaluating options for returning to work, i wrote down all possible jobs.

Not probable, just possible.

I wanted to raise #HissingCockroaches in the attic but the [now] ex said NO.

Sometimes i wonder...how would my life be different if i had done that.
I thought about being a cook but i figured that people would die.
I thpught about breeding #snakes too but the [now] ex hated snakes. And spiders. And bugs. And and and.

Me, i am #earthy.
Read 9 tweets
Finally, The #Five can Agree on one subject 🌹
Nothing like a Flower to grow Common Ground
So Uncommon in the #Twitterverse 🤦‍♀️
@FLOTUS deserves praise for her renovations of #RoseGarden
#Disability Access the Most praiseworthy.
Greg, don’t forget co-occurring #Suffrage100 🗳
@DanaPerino Respectfully, some of us are confined by disability or circumstance. @Twitter admittedly a cesspool of craziness.If you wade through enough,it can be a great communication tool.I visit with friends day and night. Sending Good thoughts,Sharing prayer at virtual Church.
Unfortunately, the Bias of the Swamp Meister @jack is like running into an alligator 🐊 or a water moccasin 🐍. I try to report Negative, Rude, Obscene, Disrespectful and Election Candidate Interference. Then I block all trolls. Unfortunately, Melania Trump is Dissed Constantly!
Read 5 tweets

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