Discover and read the best of Twitter Threads about #disability

Most recents (24)

Every night I wake up, heart racing.
It's always three hours since I fell asleep. Sometimes less. Ocassionally almost four.
I want a different tune in my head than Imagine Dragons' Radioactive.
Welcome to the new age...
"I'm waking up/I feel it in my bones
This is the apolcalypse/
Welcome to the new age, to the new age..."
It's day 1,329 of MY #quarantine. Since I was paralyzed. Same view out the same window every day since they brought me back from the hospital.
They roll you into your newly-set-up hospital bed in your house on a sheet like some magic trick. And then you are on your own.
Read 7 tweets
I spent 4 days researching, interviewing & writing 2 essential pieces: #COVID19 & MentalHealth; COVID19 & #disability. Both got cut for space due to revenue issues at my paper. @Will_Bunch is spot on here. Local weeklies & dailies are under financial threat. Yet so very critical.
The details in both my stories are fundamental for vulnerable communities. The experts I interviewed revealed serious issues with the mental health system. In the 2nd piece, how #disabled people are the canaries in the #COVID19 mine was starkly illumined. No ad revenue, no space.
So @Will_Bunch could not be more timely. One paper I report for has won many awards for beat and investigative journalism--as have I. These are stories we need to have. Just Thursday I unearthed stunning data on #COVID19 in Philly: 52% of cases are in folks 20 - 39.
Read 5 tweets
Hello, Friends... With sadness, I'm writing to let you know that I've decided to cancel all my March shows. 😢 I'm at a high risk of getting seriously ill from #COVID19 because of my #disability & small lung capacity, so it seems foolish for me to say "the show must go on".

1/11 Black and white picture of Gaelynn playing her violin upright like a tiny cello. At the top of the page in green cursive letters:
Furthermore, I want to set a good example in my community to protect others who are elderly, #disabled or immunocompromised. I'm frustrated by the message that "only the old & the chronically ill" are at risk of death, because so many people I care about are in these groups! 2/11
I don't want at-risk people to be viewed as expendable or collateral damage. We all know & care about at least one at-risk person, so we should all be limiting our unnecessary social interactions to minimize suffering... Unfortunately, I think concerts fit this description.

Read 11 tweets
Power has gone out in entire area. JFC this is stressful.
Always have your phones charged, folks. (Unlike me.) And if you are on an oxygen concentrator, ALWAYS have back-up oxygen tanks. If you need breathing treatments, you can turn a tank up to 6 to do a treatment with mask or the thing in your mouth.
Thank G-d the power is back. What a relief!!! 14k people were out, so a lot. Fortunately most people are sleeping,so may not have even known. But the lady at @PECOconnect who I talked to when I reported it and was crying about the oxygen was so nice. Very soothing.
Read 3 tweets
I started teaching composition online in 2008. Here are some things I've learned over the years (a thread). #onlinelearning #digped #teamrhetoric #WPAlife
There are REASONS why online courses have higher DWF (drop/withdraw/fail) rates. One huge reason is that these courses can feel impersonal. Another is a lack of feeling accountable. Anything we as instructors can do to the improve the affective element of the course is critical.
I make many choices in my online courses to humanize the student experience. One key element of my #pedagogy is to respond to students' work via screencasting. Screencasting allows students to hear my voice and see my screen as I am grading their papers/digital projects.
Read 56 tweets
PSA for #publichealth authorities & reporters working on #COVID2019.

Please think about people who are old, living with chronic illness and/or immunocompromised by medication.

They read/hear/watch your announcements, press conferences and news stories. They’re #Audience. 1/x
As you know, people who are old, living with chronic illness or immunocompromised by medication (POCII) and are infected by the COVID-19 virus have an elevated risk of slow recovery, complications and death. This routine context appears in most guidance and news stories. 2/x
So far, so good. But since POCII with #COVID19 are isolated, and unlikely to be professionally engaged with this pandemic, there’s a danger of marginalizing them in public discourse. The standard account of their relationship to the virus is unsatisfactory. 3/x
Read 15 tweets
In light of #AWP2020 and their sudden willingness of accommodate peoples' desire to telespeak, I'm sharing this piece @karriehiggins and I wrote a while back when they SCOFFED at such a request:…
@karriehiggins Karrie has already tweeted about this issue on here, go read about it. I just wanted to point out how much it hurts to see this issue embraced now, when it was such a (ridiculous) hurdle then.
@karriehiggins When #disabled writers needed accessibility, we were shamed by #awp. I will never go back until major things change when it comes to AWP and #criplit and those of us who write it. @GeorgesDryad @SFdirewolf
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I NEED HELP! I have 29 current diagnoses, have been fighting for SSI over 5 years, and I need to see 11+ doctors! I am undiagnosed with a lot of illnesses still, and I need many procedures and 4+ surgeries to help me live in less pain....
I have been mostly bedridden since 4/2018 and disabled since 12/25/2012. I am an ambulatory wheelchair user, but I am having to use my wheelchair more everyday. Walking, sitting, and laying all cause me pain. There's no way for me to be comfortable. I have not been....
able to work in 6 years due to my disabilities and chronic pain.  My husband is now an essential worker and his jobs are slowing down / coming to a halt ( he is a mobile mechanic ). For the past 5 years we have been together he has made under $2,000 a month....
Read 12 tweets
My parents, Bernie & Biden are the same age, same generation. My parents were (both died of #cancer, sadly) Socialists. For a while my father was a Communist. They were poor--very poor. Both went to college on scholarships & were Civil Rights workers. I admired them.
My maternal grandmother was my only grandparent to finish high school. The others all had to start working at 8th grade. My parents were dedicated to the Civil Rights Movement. We were stuffing envelopes as pre-schoolers. My parents never left to move to a white enclave.
I understand Bernie is an activist. But my parents, my family, were Civil Rights WORKERS. They never left the movement. They co-founded a Civil Rights group.Our church was all about the movement. Our family's friends were all about the movement. It was their life. Night & day.
Read 13 tweets
.@MedPageToday Your 3/1 illustration about #opioid tapering is so offensive I won't retweet it. #ChronicPain, not the medicine that relieves it, is the ball & chain millions drag behind us. I direct @headsUPmigraine. I know people who died after being forced off safe med. /thread
Shame on you for perpetuating the stigma & misinformation that's ruining & even ending people's lives. "When #pain meds are taken the right way, #addiction is very rare." #opioids #cpp #spoonie…
#CDC's Guidelines put the rate of non-problematic use of rx #opioids at average 96.97% w/ 3.03% including non-addictive "dependence." Brat 2018 reviewed 1+ million post-op patients & found rate of 99.4% unremarkable use; 0.6% included patients who refilled, @MedPageToday.
Read 9 tweets
🥳 We are celebrating 1 year of @ECHO_ERCproject 🤩

Started on 1st of March 2019, the project lead by Alberto Palloni has as the main objective to reformulate and generalize standard theories of human #health and #mortality.
💶: @ERC_Research 🇪🇺
🗓️: 5 years
#epidemiology #ERC
@ERC_Research @sebadaza @lauracilek @mathiasvoigt2 @Demografia_CSIC @CCHS_CSIC @Europeos_CSIC @REA_research @dordanovich During year 1, Alberto Palloni has:
-moved from @UWSoc 🇺🇸 ✈️ to @CSIC 🇪🇸
-set his own team of researchers and collaborators, specialised in #sociology, #demography, #geography, #epidemiology and #epigenetics👩🏽‍💻🧑🏻‍💼👨🏾‍💻👩‍🔬
-identified suitable health #databases & #longitudinal studies
@ERC_Research @sebadaza @lauracilek @mathiasvoigt2 @Demografia_CSIC @CCHS_CSIC @Europeos_CSIC @REA_research @dordanovich @UWSoc @CSIC @IEGD_CSIC Meet Alberto's team at @CCHS_CSIC!
-Diego Ramiro: Director of @IEGD_CSIC @Demografia_CSIC
-Sebastián Daza: Demographer and Social Data Scientist @sebadaza
-Mathias Voigt: Demographer @mathiasvoigt2
-Dariya Ordanovich: Geographer, GIS Specialist and Data Scientist @dordanovich
Read 9 tweets
A two-week #DisabilityRC hearing on healthcare for people with cognitive disability begins today.…
The hashtag to mute if you don't want to see our tweets about it is #DisabilityRC

The witness list is here:…

The livestream will be here:

#DisabilityRoyalCommission #OurRoyalCommission
Today, @gdevera and @bluntshovels will be kicking off the live tweets for our team. Later on you might hear from @FrancesPWDA and more from this account, too.

You should also be following @CIDvoice!

#DisabilityRC #DisabilityRoyalCommission #OurRoyalCommission
Read 63 tweets
In our long journey with our chronic illnesses and disablities we will pass through difficult twists in our lives;we may fall,get into frustrations,repeated relapses and supsequently almost losing hope.
No doubt,it's not as easy as talking for sure.
But there are only two options and we should to decide either to recollet our strength after every fall and get up to continue our struggle for our lives or simply to give up waiting for an uncertain fate.
In the first choice,we many not get all what we want or even need but we may be able to live with the little we get.We may be able to steal a smile from sadness.
Read 5 tweets
Read sad story last night about Dr. Bucci, 50 year old Phychology & Brain Sciences Dept. Chairman, at Dartmouth that committed #Suicide 11 months after a lawsuit was filed by graduate #students in his department. He
2/ was NOT accused of sexual misconduct, but named in the suit for knowing about the professors’ inappropriate behavior as the Chair.I share many of the same feelings he expressed to friends and colleagues in his emails before he took his own life like: the case was deeply
3/ personal; reputation had been damaged; physical health diminished; false portrayal of his actions; being blamed unfairly; allegations & process “unfair”; how can they ever undo what they did to me & #wronglyaccused. Similarly, how I had reported the #disability
Read 30 tweets
Watching @AllRiseCBS because I am writing about #disability on TV shows and this #disabled character is trying to explain to a non-disabled attorney the awful line disabled people have to "walk" to try and avoid being abused/taken advantage and the attorney doesn't get it.
He can't imagine what it would be like to have someone else bathe him, have physical power over him at his most vulnerable.
There is a #disabled actor in the role--I have seen him in something else. Will check imdb and add his name to this thread.
The actor is Michael Patrick Thornton. He was #disabled at 24 after a couple of strokes (!!!). He is 41. He's been a character on a number of series.

Read 5 tweets
This is #InspirationPorn and thus #ableist.

This tweet names only one actor pictured (Shia LaBeouf), and completely erases the other (Zack Gottsagen).

It paints treating a visibly disabled person with basic human decency as something heroic - which also implies it‘s optional.
Some things that don’t make you a hero:

- treating a disabled person well
- existing in the same space as a disabled person
- working with a disabled person
- employing a disabled person
- helping a disabled person

Try seeing disabled people as of equal worth as abled people.
It is a sad testament to how society sees disabled people, when treating us as equals to abled people is considered special, optional...

You don‘t deserve a cookie for treating disabled people well.

Disabled people don‘t exist so abled people can feel good about themselves.
Read 8 tweets
Today we launch the @ECHO_ERCproject online!🥳
ECHO is lead by Alberto Palloni & financed by the @ERC_Research #H2020 programme🇪🇺
The project started on March 2019 and will run until 2024, hosted at the Institute of Economy,Geography and Demography of @CCHS_CSIC #Madrid
@ERC_Research @CCHS_CSIC What we want to do?🧐
👉🏾 reformulate and generalize standard theories of human #health and #mortality
👉🏾propose new formal models and a systematic agenda to empirically test hypotheses that link developmental #biology, #epigenetics and adult human illness, #disability mortality.
@ERC_Research @CCHS_CSIC Together with Alberto Palloni, the team is joined by demographers, geographers and technicians:

The more, the better! @ECHO_ERCproject also collaborates with other scientists who provide knowledge and expertise to achieve the ambitious research programme
Read 6 tweets
Why is the @BernieSanders #disability plan so good? Let's go over some of the highlights. Because trust me, I'd be a lot less openly enthused if this were a bad plan. (THREAD) 1/?
Let's start off with firsts: it acknowledges disability rights as civil rights off the bat. This might sound as a "duh", but in a world where disability is often seen as this tragic thing where we lack in voices, this is a BFD.
My favorite topic is mental health, coming from the perspective of being a self advocate with bipolar disorder who takes a crap load of pills to stay semi-tethered to reality. Here @BernieSanders acknowledges MH as a disability issue, and not as some separate tragedy...
Read 8 tweets
Here's my latest* update to my vetted collection of Twitter Disability and Chronic Illness hashtags. Please share it!

Thank you :-) Graffiti background. Foreground in black letters on a  white background to the left reads “Twitter Disability and Chronic Illness Hashtags”<br />
This collection is current as of 01.30.20, previous Twitter update 09.11.19.

There's a PDF version coming up this weekend, to be posted to my Kofi profile. I'll add the link toward the end when it goes up, after the questions, where you can also sign up for email updates.
This version has added

- community suggestions,
- mental health hashtags,
- Medical crowdfunding hashtags,
- and a section for cancer-related hashtags.
Read 84 tweets
Thread: #autism #employment statistics are unreliable but 44 years of working has taught me this: #autistic people struggle to reach their full potential unless organisational culture and environmental issues are addressed.
I once did some work on job design and evaluation for the NHS. In attempting to improve #employment outcomes for #autistic people we often start in the wrong place. It’s no good trying to fit people into roles that are unsuitable, and this applies to working environments too.
A degree of mutual adaptation is possible, but true workplace inclusion begins with design.
We have plenty of information about common challenges experienced by autistic people - our #sensory and #communication differences are well-defined.
So what seems to be the problem?
Read 19 tweets
Long thread in which I over-share on the internet to complain about a gap in the #bioethics literature because I'm feeling introspective and also kind of bored /1

#Disability #medicalhumanities
I recently got a feeding tube.

I went into it kicking and screaming - I desperately didn't want it and I put it off longer than I should have. And it really sucked at first. It still kind of sucks now, but honestly it's not that bad. It got better. /2
The tube is temporary, but I'll almost certainly be faced with the choice again in the future. And when I am, I'll be much less reluctant. My attitudes and preferences have changed, having had the experience. /3
Read 14 tweets
Trumps never miss an opportunity to punch down. Attacking Biden for his stutter is ableist and harmful to #disabled kids. FIVE PERCENT of kids go through a period of stuttering and 1% never overcome the disability. Still more have cerebral palsy &Tourette's. Vile.
Biden is a politician. This may make his stomach flip over as it did mine, but he isn't harmed by it. But I think of my friend's kid with cerebral palsy, how he struggles to speak do to his spasticity and #disability and how this gross #ableism harms kids like him.
Read 3 tweets
Remember this ad? Well since the deadline on Monday 6th Jan, we have had more production companies confirmed for the scheme. If you didn't make that deadline apply now at by Monday 20th Jan

More details to follow
If you've already applied, you don't have to do anything. Hurrah! You will be contacted about your application, & if successful in getting to our workshop stage, you’ll be sent the full list of production companies taking part & asked to select one to talk about at the workshop.
You have two weekends to apply starting today! So here's your homework research the full list of @PactUK production partners:
South Shore (new TV company search @DuckDuckGo or other search engines)
Read 15 tweets

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