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Emily Paige Ballou Profile picture
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Sep 14 • 3 tweets • 1 min read
I know a lot of #ActuallyAutistic folks here keep your accounts anonymous or are using a pseudonym, and God knows, I understand why that's necessary for a lot of us.

But please, please consider letting someone you trust know who you really are...
...Or someone in your life know how to let people know if something happens to you.
Since the start of the pandemic, there are instructions on my computer to make sure certain people get contacted if anything happens to me.

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More from @epballou

Emily Paige Ballou Profile picture
Apr 1
Happy April.

Almost eight years ago, the @nytimes published this article about "The Kids Who Beat Autism."

I still think about these kids a lot.

nytimes.com/2014/08/03/mag…
They'd be in their 20's now.
I wonder how they are.
I wonder if anyone involved here still thinks that they're actually non-autistic.

I wonder if they do.
I wonder if anyone's thought to follow up with them. I wonder if @ruthpadawer has.
Read 11 tweets
Emily Paige Ballou Profile picture
Feb 8
chavisory.wordpress.com/2016/04/27/the…

Because I was just having an interesting discussion with a special ed teacher about this before I got blocked, and because my old post about telling your kids they're autistic is going around again...
KIDS often don't understand things, because they are kids. They haven't been alive that long. But non-disabled kids are assumed to be capable of gaining in understanding.
It's okay if autistic and disabled kids don't always understand things. It's not okay to leave them out of information about their own lives.
Read 4 tweets
Emily Paige Ballou Profile picture
Feb 6
Incidentally, the KF-94 is literally the only mask I can wear without some kind of hack or modification, although it's somewhat more onerous to take on and off, and for some reason it keeps getting caught in my eyelashes...
Cloth masks I have to sew on a metal nose strip. KN-95's have to have a piece of gaff tape over the row of perforations below the nose strip to keep my glasses from fogging.

N95's and the 3M Aura are completely unwearable to me.
Surgical masks are a no-go both for sensory reasons and because they're impossible to fit correctly to my face. The nose strip isn't strong enough to prevent fogging and you can't really sew another one on.
Read 4 tweets
Emily Paige Ballou Profile picture
Feb 5
I suspect a lot of it's coming from people wearing masks under a very different set of circumstances than others.

For instance, it's not just going to the grocery store for me. It's not just if I go see a movie or something...
I sometimes have 12-hr workdays, and I have to be in a mask for all of it.

By hour 7 or so, I just hurt.
Even when the indoor mask mandate was (pretty briefly) suspended for vaccinated people, all of my workplaces kept theirs.

I don't have a car, I ride the subway to work.

Living here means walking, a lot, carrying your laundry and groceries home, etc.
Read 9 tweets
Emily Paige Ballou Profile picture
Mar 22, 2021
Okay, so.... I think we've been watching #TheXFiles "My Struggle" episodes wrong.

At least I have been.

The implications are leaving me both more and less frustrated, with MSIV especially. 1/
(This thread should be considered to contain major spoilers for seasons 10 & 11, if you haven't watched those all the way through yet.) 2/
So I started wondering about this when I was thinking particularly of MS2 and how the whole ep. was a hallucination, and almost nothing in it really happened, but what it revealed was what Scully feared and thought and felt (esp. about Einstein). 3/
Read 44 tweets
Emily Paige Ballou Profile picture
Mar 3, 2021
Okay, trying once again to find something out that I did not manage to find out last year...

In the Midwest, hot cross buns seem to be an Easter thing, and you can pretty much only get them during Holy Week, and you eat them on Easter Sunday...
In NYC, hot cross buns are a Lent thing, and if you wait until Holy Week, or God forbid, Easter, to try to get them, you will not get any.

I kept making this mistake until I figured this out...
Does anyone know the origin of or reason for this difference?

I asked around all over the place last year, and never found an answer. Though I did introduce several people to hot cross buns who had never had a hot cross bun before.
Read 4 tweets

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