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Arianne Profile picture
@ravensspirit68
Sep 21, 2022 • 6 tweets • 5 min read • Read on X
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Thread-I've asked the pain community to write letters to the @WhiteHouse ATTN: @FLOTUS or @Potus.
This is my own letter already sent re: how MY family's been impacted.
Now an #OpenLetter.
It will take all of us writing for #PainAwarenessMonth to make an impression.
#ChronicPain
@WhiteHouse @FLOTUS @POTUS Page 2
Page 3
Page 4
5/ This is the 'tone deaf' response referenced on the first page of my letter for #PainAwarenessMonth. I had written to #FLOTUS last yr about the plight of people in pain & the larger 'opioid' issue.
This is the 'post card' response I got several months later...
#DesireeForever35
@threadreaderapp Can you work your magic and please unroll.

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More from @ravensspirit68

Arianne Profile picture
Apr 7
This is a cry for help!
Not because I’m considering suicide.

This is a cry for help for millions in pain. It’s a cry for those who are taking their own lives to end the agony they've been told that they  just need to learn to accept.

#PainCareCrisis Image
2-It’s a rallying cry for people to start talking about what’s happening, what has been happening for years now, to people with serious illnesses & injuries in this country. Virtually no one is talking about this in the public forum-This is the other side of the ‘opioid crisis’.
3-There are people right now watching the news, rightfully outraged when they see profiling and discrimination, human rights abuses, violations of civil liberties and civil rights.
Read 14 tweets
Arianne Profile picture
Mar 29
1-BEER
Imagine: Beer poisoning kills a few thousand.
Gov declares beer to be highly addictive & dangerous. They implement gov database monitoring of sales & restricting access to beer, you are monitored through your DL. DEA put restrictions on sales & commercial production...
2-There is evidence that deaths are not the beer from the store that's killing most people, although alcohol related deaths do include store bought beer. Some studies say deaths are from a new strong smuggled beer, and beer being made in garages.
3-Since it's difficult to discern which beer is killing people, the government lumps all beer under the 'highly addictive and dangerous' label, and declares that in order to save lives, we need to get people to stop drinking beer, and all alcohol for that matter.
Read 11 tweets
Arianne Profile picture
Jan 27
The Pain Care Crisis: A Call for Compassionate Policy
The majority of people who rely on RX opiate medicines for chronic pain are being unfairly penalized and harmed due to policies aimed at 'misuse'.
Thread...1/
#PainCareCrisis Image
2-Deadly policies-touted as well-intentioned-have led to unintended consequences across the board, leaving millions of chronic pain patients struggling to access the medications they desperately need. Image
3-Personal responsibility plays a crucial role in in the safe use of medications. Patients should be empowered with informed consent, understanding risks and benefits of treatment options, rather than subjected to restrictive, gatekeeping measures.
Read 6 tweets
Arianne Profile picture
Jan 6
1-Thread about the barriers to care for people in pain and what needs to change.
I. Addressing Chilling Effect
End Morphine Milligram Equivalent (MME)
Prescribing must reflect individualized patient need, considering benefits/risks for each patient.
#PainCareCrisis Image
2-Regulation of Prescription Drug Monitoring Programs (PDMPs):
Define clear & limited circumstances under which law enforcement can access PDMP data.
Protect healthcare providers from unjust prosecution based on PDMP data and require warrants for any LE investigation.
3-Rescind CDC Opioid Guidelines: Transfer oversight and guideline development to a specialized body of pain management and chronic pain experts, separate from the CDC and focus solely on medical health issues and pain management.
Read 9 tweets
Arianne Profile picture
Dec 27, 2024
Thread: Denying opiate medications to individuals who genuinely need them for pain management can lead to many serious health issues and so much more...
#PainCareCrisis #TheOutlawAdvocate Image
2-Increased Pain and Suffering:
The most immediate effect is an increase in pain, which can severely degrade the quality of life, making daily activities unbearable or impossible.
3-Mental Health Deterioration:
Chronic pain can significantly contribute to or exacerbate conditions like depression, anxiety, and suicidal ideation. The psychological toll of unrelieved pain can be profound.
Read 12 tweets
Arianne Profile picture
Nov 17, 2024
Kolodny laid out a detailed plan in how to reduce opioid Rxing in a meeting in NY, before guideline was even published.
@jmkillingnyc has so much information on how insidious this anti-opioid agenda was from inception in early/mid 2000s and even earlier I believe.
#PainCareCrisis
2-In order to fight back against draconian prescribing protocols, we need to understand how we got here & what's preventing change.
Changes in Standard of Care requires MDs to stay withing the bounds of restrictions.
Law enforcement in medicine has created a chilling effect.
3-With changes re: opioid Standard of Care, if MDs stray, Medical Boards can target them, DEA can charge them, jailing at worse, destroying their reputation and financial standing at the very least. Pts claiming harm by opioids have increased ability to sue for malpractice.
Read 8 tweets

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