Thread-I've asked the pain community to write letters to the @WhiteHouse ATTN: @FLOTUS or @Potus.
This is my own letter already sent re: how MY family's been impacted.
Now an #OpenLetter.
It will take all of us writing for #PainAwarenessMonth to make an impression. #ChronicPain
5/ This is the 'tone deaf' response referenced on the first page of my letter for #PainAwarenessMonth. I had written to #FLOTUS last yr about the plight of people in pain & the larger 'opioid' issue.
This is the 'post card' response I got several months later... #DesireeForever35
1-And to wrap things up today...
This is our Critical Analysis of fallout from the 'opioid crisis scam'.
Misattribution of Deaths: The lack of IMF testing until the mid-2000s falsely attributed overdoses to prescription opioids, inflating their perceived role.
#PainCareCrisis
2-It was clear by 2015, (due to more widespread testing upon death), IMF was the dominant driver of drug poisinings, yet policies like the CDC’s guidelines and DEA’s quota cuts continued targeting prescriptions, harming patients without addressing illicit markets.
3-Policy Overreach & the made up "overprescribing" narrative justified one-size-fits-all regulations; ignoring patient diversity. The CDC’s 2022 guideline update acknowledged harm from rigid limits-but the CHILLING EFFECT contines due to DEA scrutiny and pharmacy gatekeeping.
1-Continuing the conversation about how the 'opioid crisis' scam is harming and killing vulnerable patients with serious illnesses and injuries...
#PainCareCrisis
2-Harmful Outcomes: Forced tapering or discontinuation increases risks of suicide, mental health crises, and illicit drug use. A 2019 Health Affairs analysis linked restrictive policies to an 8% rise in suicides among chronic pain patients.
3-Some abandoned patients with debilitating conditions turning to fentanyl-laced street drugs after losing prescriptions, with one user on X stating, “Doctors abandoned me; the street was my only option.”
1-An overview of my conversation with @Grok, on how the 'opioid crisis' scam is harming vulnerable patients/ a scam that's led to policies which severely limit access to opioids, benzodiazepines, and ADHD medications, devastating patients who rely on them.
2-"Overprescribing" lacks a clear legal or medical definition. It is a made up term that emerged in the late 1990s and 2000s as a catch-all term to describe high prescription opioid volumes based on a medically baseless maximum 'morphine milligram equivalent', or MME.
3-The made up term was popularized by media, advocacy groups, and regulators to frame prescription opioids as the primary driver of rising overdose deaths, despite limited evidence isolating their impact from illicit drugs.
This is a cry for help!
Not because I’m considering suicide.
This is a cry for help for millions in pain. It’s a cry for those who are taking their own lives to end the agony they've been told that they just need to learn to accept.
#PainCareCrisis
2-It’s a rallying cry for people to start talking about what’s happening, what has been happening for years now, to people with serious illnesses & injuries in this country. Virtually no one is talking about this in the public forum-This is the other side of the ‘opioid crisis’.
3-There are people right now watching the news, rightfully outraged when they see profiling and discrimination, human rights abuses, violations of civil liberties and civil rights.
1-BEER
Imagine: Beer poisoning kills a few thousand.
Gov declares beer to be highly addictive & dangerous. They implement gov database monitoring of sales & restricting access to beer, you are monitored through your DL. DEA put restrictions on sales & commercial production...
2-There is evidence that deaths are not the beer from the store that's killing most people, although alcohol related deaths do include store bought beer. Some studies say deaths are from a new strong smuggled beer, and beer being made in garages.
3-Since it's difficult to discern which beer is killing people, the government lumps all beer under the 'highly addictive and dangerous' label, and declares that in order to save lives, we need to get people to stop drinking beer, and all alcohol for that matter.
The Pain Care Crisis: A Call for Compassionate Policy
The majority of people who rely on RX opiate medicines for chronic pain are being unfairly penalized and harmed due to policies aimed at 'misuse'.
Thread...1/
#PainCareCrisis
2-Deadly policies-touted as well-intentioned-have led to unintended consequences across the board, leaving millions of chronic pain patients struggling to access the medications they desperately need.
3-Personal responsibility plays a crucial role in in the safe use of medications. Patients should be empowered with informed consent, understanding risks and benefits of treatment options, rather than subjected to restrictive, gatekeeping measures.