Discover and read the best of Twitter Threads about #ChronicPain

Most recents (24)

THIS is #HealthCareInAmerica for patients with #ChronicPain due to @congressdotgov allowing @DEAHQ to regulate the Practice of Medicine through Intimidation, Coercion & unwarranted prosecution of Clinicians & Pharmacists.

Patients making arrangements for #VAD in Switzerland 😭 Image
We can hope that the @USSupremeCourt ruling today on the #Ruan case which required the government to prove beyond a reasonable doubt that the CSA was Knowingly or Intentionally violated will encourage a return to #PatientCenteredCare

supremecourt.gov/opinions/21pdf…
However, as long as the @DEAHQ, @CMSGov & Fraud Task Forces continue to target clinicians based on a subjective definition of medical treatment, many may still be hesitant to provide the treatment necessary to restore function & quality of life to patients with #RareDisease,
Read 7 tweets
The intrusion into the practice of medicine is based on race, gender, sex and disability discrimination.

1st target #Pain management
2nd target Gender Affirming Care
3rd target #Abortion
What will they target next?

#StopCriminalizingPatientCenteredCare The intrusion into the practice of medicine is based on race
Misinformation & propaganda is being disseminated by the government and still floods the media. The #Gaslighting of America has been extremely effective.
dovepress.com/misinterpretat…
Individuals with incurable chronic illnesses, #RareDiseases #Disabilities that involve severe pain as a component are being deprived of appropriate medical treatment.
Read 22 tweets
@ApprissHealth:.So those of us with inoperable skeletal defects or incurable chronic diseases like Sickle Cell Anemia, who have zero chance of any quality of life, career or healthy family relationships w/o opioid medications, are "abusive" due to the nature of their disease?🧵
Where, exactly, is your data to back up these cruel and insupportable statements?

How do you plan to "deploy" this analysis, & what recourse do patients have when they are harmed by the actions of healthcare professionals who uncritically rely upon it in their decision...
...to force patients off legal and appropriate medications?

Patients with these conditions are being slowly & tortuously euthanized by know-nothing technocrats, who somehow think an algorithm will straighten us right out: that spines held together soft-tissue-shredding...
Read 10 tweets
There is NEVER a justification for violence towards medical professionals.

Perpetuating Fear & #Stigma is NOT beneficial

It's rare for individuals in #Pain to strike out in violence at medical professionals.

Does it happen? Yes.

Should it? NO!
The ONLY way to prevent future occurrences is to understand WHY it is happening & avoid Fear Mongering & casting aspersions on a population of patients who are experiencing Systemic #Discrimination.

Under & Untreated patients experiencing unremitting pain are more likely to Image
Three cases of people committing such an extreme act of violence is NOT a trend & is NOT reflective of the #PainPatient population as a whole.

There are an estimated 50 million people living with #ChronicPain.

These cases are anomalies, the Root Cause needs to be addressed
Read 13 tweets
Personally, I find the entire outline of their Orthopedic program concerning from a patient's perspective.

In addition to the "72 hr Pain Free" follow up. It minimizes the potential for patients to experience post-op pain.

Unrealistic expectations shouldn't be advertised🤦‍♀️ Image
Make no mistake, I'm in suggesting this act was justified.

There is no, and can be no justification for striking out at medical professionals when a patient's expectations for treatment are not met.
There has been a lot of discussion regarding the Pain Patient's having unrealistic expectations for Pain Management.

For patients to have reasonable expectations, there must be clear honest discussion of the potential risks / benefits or any procedure including
Read 9 tweets
@ICARSBanRandS @NeuroClastic @unsilenced_now So this ONLY applies to children??? I'm still traumatized 8 yrs after being brutally manhandled & physically harmed due to my #EhlersDanlosSyndrome after going to a hospital for 'HELP' while having what I THOUGHT was a panic attack but I now know was a meltdown caused by ...
@ICARSBanRandS @NeuroClastic @unsilenced_now undiagnosed autism. I only discovered a year ago that I'm autistic & what's been happening to me are MELTDOWNS. After I got there, the bright fluorescent lights, painful hard furniture & COLD in the psych ER where I found out the hard way that, once u're there, u can't leave ...
@ICARSBanRandS @NeuroClastic @unsilenced_now until a psychiatrist gets around to seeing you, which was about 17 hours that time although nobody would tell me how much longer I had to wait & they take all ur clothes & shoes & have no pillows or blankets; just a one-ply hospital gown open in the back and non-slip socklets ...
Read 123 tweets
After years of my daughter receiving care at our local #hospital that is often based on #bias & is often subpar I have begun to reach out to different state agencies. The experiences that my daughter has had to experience over the last several years has been surreal 1/
I’ve attempted many times to engage with #patientservices w various staff in attempts to implement a plan which is based on her needs, recognizes the #medicaltrauma she has experienced & how it impacts her. I’ve attempted to explain how her diabetes works (to the extent I even 2
understand. Type 3 is brittle, it can shoot up or down for numerous reasons. I’ve tried to explain her complications based on her #AITTP but instead assumptions have been made and that what care has been based on. In reviewing her chart it’s truly horrifying their utter lack 3
Read 25 tweets
Record Numbers of Americans Dying of Overdoses. Instead of Justice, We Get Theater👨‍⚖️

"Whole thing is kabuki theater, It ought to be about money" said Ausness. "About who pays what & instead they want to make Sacklers listen to people complain about them"
newsweek.com/record-numbers…
Guggenheim joined several other museums last week w/an announcement they are removing the Sackler nameplate from their arts center,

Once again victims are being offered busy work as though it were meaningful reform.
#opioids #medtwitter #sacklers #HarmReduction @praddenkeefe
We are in the midst of the opioid crisis, an addiction & overdose crisis fed by the ubiquity of illicit & deadly fentanyl in the black market,

over 108k people died from an opioid overdose in 2021,
npr.org/sections/healt… #opioids #addiction #news #twitter #CrimesAgainstHumanity
Read 27 tweets
Thread 🧵: Reflections of a Parent/Caregiver After Six Years Implementation of CDC Guidelines (warning long but I am very interested in feedback)

Since babies, my kids, have intimately known #pain. At one time their #pain was intermittent & #acute. Sadly, they now struggle 1/
#chronicpain & are young adults. Our kids 1st 13/16 years of life, our family had a #safetynet, their #pediatrician. He was highly intelligent, compassionate, he challenged the system & in the most authentic sense #partnered with families. #Pain was not a major concern when 2/
the kids were under his care. The nature of their disease often brought us to the ER & hospitalizations. The hospitalizations resulted due to inability to manage #pain, dehydration, & other issues caused by a flare in their #disease. My husband & I attempted to minimize the 3/
Read 45 tweets
1-Stop the, 'Over prescribing caused the opioid crisis.' narrative. I read article after article where 'liberal prescribing' is ascribed as the cause of the so called #opioidcrisis.
Many articles are written by people in our own community, self proclaimed pain pt ‘advocates’.
2-To this, I’d like to point out that in OC even a judge recently ruled:
"There is simply no evidence to show that the rise in prescriptions was not the result of the medically appropriate provision of pain medications to patients in need,"
#RxOpioidsSaveLives
#ChronicPain
3-Here is the link to that quote and ruling above: reuters.com/world/us/calif…
Read 15 tweets
SO WHAT if my pain is amplified by my psych, childhood trauma, or brain? Last time I checked my brain is part of my body, my abuse wasn’t my fault, and depression, anxiety is CAUSED by #ChronicPain not the other way around. If #opioids will stop me from using #MAiD, sUicIDe and…
More physical and mental health problems and disability isn’t that the role of medicine and Medicine? Is there supposed to be a risk VS reward calculation in Medicine? We use c19 vaxx bc risk for severe side effects is tiny but the benefits are life saving. My risk of OD = <1%…
Risk that I’ll be dead by years end by MAiD or my own hand? 90% Tbc it isn’t just adequate opioids that I’m being denied. Health Canada opiate policy and propaganda has so biased drs and pushed them to deny clinical judgment and compassion that I can’t get any healthcare anymore.
Read 4 tweets
Had to use #111nhs over Easter w/end for emergency scripts of my daily meds. After 2 calls & 21 hour wait dr rang. Immediately said "I cannot prescribe ANY controlled drugs." Thankfully, I knew this was an outright lie so I asked if we could discuss it & (1)
Would she look at my electronic notes. She did & then asked me why I was prescribed each med (fair) so I answered. She then said "Well it won't kill you to miss all these meds for 4 days". Think that was more shocking to me than her lie. Again I explained (2)
that actually it would be very dangerous for me to suddenly just stop all my meds for 4 days & that I would indeed end up in hospital. Reluctantly she did indeed prescribe my meds inc 2 CD's. She then said "I'll be calling not only your regular GP but (3)
Read 5 tweets
Ta-Da!🥳
For @townhallcom ✍️

Dear Elon Musk, For the Sake of Freedom of Speech in the Public Town Square, buy Twitter ASAP!💰🐦
townhall.com/columnists/pet… @elonmusk #elonmusk #ElonMuskBuyTwitter #ElonMusktwitter #musk #elon @SophiaNarwitz @ItalianxComedy @chadfelixg @BlueBoxDave
yes i know the title is a mouthful lol
Read 28 tweets
Thread...How people in pain are being abused.
Let us count the ways.
1-Emotional Abuse:
Invalidation of person's lived experience
Distrust
Gaslighting
Ridicule
Threats
Constant monitoring of activities
Judgment/punishment
#ChronicPain #WeWillNotStaySilent
2-Intellectual Abuse
Being forced to prove your abuser wrong
Mind games
Making the person in pain feel stupid
Attacking the person in pain's ideas or wishes
Manipulation of information, even in medical records
Power Imbalance
3-Financial Abuse
Forcing person to attend needless appointments
requiring co-payments, transportation costs, paying for 'alternative' modalities, Coerced into costly surgeries and 'minimally invasive' procedures, endless lifelong drug testing.
Read 10 tweets
🧵So it begins. The time of night my pain meds wear off. When #SuicideDue2Pain is almost all I can think about. Except tonight the pain is joined by an even deeper sense of hopelessness. Bc you see once you are a chronic pain patient, apparently nothing matters about your health.
I have a new set of symptoms. A completely diff and excruciating painful condition. Today I didn’t go to my doc for the opioids SHE is obsessed with. Just standard healthcare. Ya know a physical exam, appropriate tests, a referral if she’s stumped or unequipped. A question or two
But I’ve been trying for a year for a doc to listen, to take me seriously, to do some doctoring. Today was doc #4. Today the resident did listen to all of it. The first doc to listen to details w/o cutting me off. I was received w empathy. I even allowed myself a moment of hope.
Read 11 tweets
Voy a relatar brevemente mi semana pasada haciendo un mini 🧵, teniendo en cuenta que en breve comienza la selección #MIR2022, para que sepáis cómo se vive la #Anestesiologia de la mano de un Jefe de Servicio joven (bueno, ya no tanto) 😂…
El lunes comenzó con un largo viaje hasta #Cartagena (no con el tren extremeño, si hubiera sido así, aún estaría de viaje). Viaje que habitualmente utilizamos para seguir trabajando (si, los jefes trabajamos también ☺️😉). Hasta algún NO APTO se otorgó entre las vías…
El martes compartí con los compañer@s del servicio de Anestesiologia del Hospital Santa Lucìa, una actualización-2022 sobre #Fluidtherapy. Una sesión corta, pero enriquecedora. Fisiología, Farmacología, Bioquímica… #BackToBasic
Read 14 tweets
Thread...
My daughter Desiree.
Forever 35
#IllicitFentanylPoisoning
#DrugWarCasualties
#SafeSupplySavesLives
2-Cut down in the prime of life.
Victims of #IllicitFentanylPoisonings.
Deaths happening due to a deadly drug supply, deaths that could have largely been prevented.
These are people, people who were loved, not statistics.
#SafeSupplySavesLives

3-And more #DrugWarCasualties, a direct result of prohibition like policies and practices and draconian legislation that has painted a target on both physicians and people in pain alike...
thomasklinemd.medium.com/opioidcrisis-p…
#SafeSupplySavesLives
#RxOpioidsSaveLives
Read 9 tweets
Most people accept that the feeling of love exists.

Each person having their own experience.

That love exists then, despite being invisible.

So why when people say they are in pain, is there disbelief?

Why are some people dismissed?

🧵 #thepaincoach #chronicpain
If they said that they were hungry, would they be believed? You cannot see hunger.

If you laugh, where is the funny? You can’t see it.
What is it about pain that makes some people not take the person describing their experience seriously?

It is most certainly not an issue with the person describing their pain.

It is certainly a limitation of the disbelieving person.
Read 5 tweets
1/🧵 I think Chris Rock wouldn't have made a joke about Jada's illness if more folks were educated about the high prevalence of autoimmune & other chronic disorders.

#chronicillness #Spoonies #autoimmune #Alopecia #women #health #ChronicPain #chronic #illness #SickNotWeak
2/ As a woman who lives with multiple immune-related disorders, when a comedian makes a joke about chronic illness, I feel unseen...not just for me, but for all my fellow #chronicfolks. Does Chris Rock have any idea what Jada goes through to live with alopecia? Probably not.
3/ As a country, we need to create more dialogue around chronic illness, and especially autoimmune diseases. They are so prevalent yet they are usually talked about in whispers....'Oh, she has Crohn's.' Cancer used to be spoken about in hushed words, too.
Read 5 tweets
.@Womenworking Essential reading for:

All in healthcare
All in education
All employers
All leaders

All.

@gabriellecj
@emilyhwilson

(1)
Having worked with so many women suffering persistent pain, it has long been an area I wanted to understand and have been studying.

The narratives, the biology, the sociocultural dimensions and importantly, how they interact and unify as the lived experience.

(2)
Read 4 tweets
What the biomedical model does… 🧵

Well or unwell.

Mind or body.

Healthy or sick.

#thepaincoach #chronicpain

1. #thread
Fortunately more and more clinicians are noticing that despite being trained to think this way, it does not work. Why?
Because it’s not the experience we have as humans.

Take pain as an example.
Read 9 tweets
Real.

#thread 🧵

Many people have been led to believe that we need to look for something to blame for our pain.

A single cause.

A body part or system perhaps.

Blame the bit that hurts.

#thepaincoach #chronicpain

1.
Yet it is not that bit that is in pain. You are, the person.

The person feels pain, not the body part or the brain.

We want something tangible to blame. Something you can point at—‘there it is; the cause.’
But that’s not how it works.

The body state is one thing: objective. Our experience of the body is another: subjective.

When you have this insight, you can understand your experience. How pain and other feelings vary and change. Nothing is permanent.
Read 7 tweets
Why does my pain persist?

There is a kind of stuckness.

Not that each pain experience is the same — this cannot be, because each moment is new.

A #thread 🧵by #thepaincoach #chronicpain 👇
There was an expectation of getting better but the reality was different. Things you tried did not work. Perhaps your timelines were inaccurate: it often takes longer than you think.
There comes a point when the expectation switches to pain rather than getting better.
Read 7 tweets

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