PBS ('Positive Behaviour Support') is a harmful ABA-based behavioural intervention used on vulnerable children.

Planned Ignoring is used as a tactic to 'manipulate the environment' of the victim, to change their behaviour.

Some of us know what that's like. 😥

On #PBSAwarenessDay, we need to be more aware of HOW and WHY PBS harms people, so that after we stop PBS, we don't implement any other methods which do the same thing in other ways.

Wherever we find parents and professionals pushing for ABA-based approaches like #PBS, we also see low support for the types of communication methods that nonspeaking autistic people say they find helpful.


October is #AACAwareness month. (AAC is Augmentative and Assistive Communication.)

In the UK, where PBS is particularly promoted, it is difficult to get support for the use of robust AAC.

Nonspeaking autistic people are often silenced and spoken over.

The UK's most famous AAC user, Dr. Stephen Hawking, is now dead.

But the gatekeepers haven't learned: Many thousands of autistic people in the UK are without communication, while PBS promotors focus on behaviour.

#PBSAwarenessDay should draw our attention to the harms of #PBS.
#PBSAwarenessDay should draw our attention to a pervasive practice in the autism industry: therapies that autistic people describe as harmful are imposed on autistic people without informed consent, as a standard practice. #PBSisABA
Our campaign against ABA and its derivatives (such as Positive Behaviour Support, or PBS) is supported by autistic survivors of behaviourist abuse, parents of survivors, and former behaviourist professionals who now campaign for human rights.
We urge those currently involved in PBS and other ABA-based methods, who would like to leave these professions yet continue to work with autistic people, to learn from autistic people with high support needs.

Many behaviourists have never even studied the writing of nonspeakers.
@jordynbzim's early years are typical of what happens to a nonspeaking autistic child who is forced into behaviourist therapies and classroom practices by people who don't #ListenToNonspeakers.

If you're still working in PBS, it's time to move out.

Jordyn, who is nonspeaking, is the chairperson of the board at @Communica1st, a civil rights organisation representing people with communication disabilities.

There are numerous other autistic AAC users on Twitter who have something to say.
Are you a PBS practitioner? Would you like to have a dialogue with autistic people?

What's the topic?

What's the goal of the discussion?

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More from @ekverstania

Oct 24
"Suicidally frustrated" seems to be one that's accurate for me at times— but it is not an expression that most people understand.

As soon as they hear "suicidal", they think
1. you're depressed, and
2. they must tell you that you're needed.

Neither of those are true for me.
I've actually blocked people for saying "Don't go, we need you," because that's a REALLY triggering expression for me when I am frustrated that people rely on me like this.
And then I have a friend who gets REALLY depressed about the meaningless of his existence combined with how awful and selfish most people are on the planet; but there's no psychologist or psychiatrist around here who understands EXISTENTIAL depression.

Read 22 tweets
Oct 23
The problem with many of the dialogues between people in #BehaviorAnalyst roles, and autistic people and their allies who support the #BanABA movement, is that there's a misalignment of goals.
Some of us don't want to talk to ABA people at all.

But those who are prepared to do so are doing it with the purpose of getting you to give up your ABA-based job and to shut down your whole industry.
We're prepared to help you work towards alternative revenue streams, but for many of you, having a different job to go to isn't your main concern; you believe in ABA and you're determined to make ABA work.
Read 15 tweets
Oct 23
I cannot imagine people in my country coming up with such a law. There's a niqab boutique less than 10 minutes from my home. Photo of women in various niqab outfits on a beach in Cape T
Most local Muslimahs are hijabis, not niqabis, and there are some who don't wear hijab either. I can't imagine our government wanting to stick its nose in there to decide who should wear what in public.
Read 7 tweets
Oct 10
Somewhere along the line, someone told parents that they can't take unhappy children out of school and teach them at home, because the children must stay in school to learn social skills.
So if the teachers hate you, the children bully you, the curriculum doesn't match your reality, and the walls and ceiling lights scream—you learn that hateful behaviour, cruelty and all manner of senselessness are... social skills.
And you'll learn to self-harm when you don't conform to that irrationality, because they teach you that you're worthy of harm.

And then you'll pass the learning on.
Read 53 tweets
Oct 9
Do any of you sensory optimisers use Cream of Tartar to keep #SensoryOverload at bay? I bought potassium pills, but misplaced them. I took Mg glycinate, but that's not enough. Then I realised that I have Cream of Tartar in the house, and it's cheap. Just took some now. Let's see.
DAY 2:

It worked. I recovered. Approx. two teaspoons of Cream of Tartar in water, after one magnesium glycinate tablet, then off to bed.
Read 4 tweets
Oct 8
This is very random, but I just have to put it out there sooner rather than later:

A few years ago, I said that there would be a revolution for autistic people, that will change their lives for the better worldwide, and that Black Africans would lead it.
Today has strengthened this belief.
I am not a soothsayer or a clairvoyant; I have rational reasons for this belief, but they'd take a lot of energy to explain.
Read 4 tweets

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