The problem with many of the dialogues between people in #BehaviorAnalyst roles, and autistic people and their allies who support the #BanABA movement, is that there's a misalignment of goals.
Some of us don't want to talk to ABA people at all.
But those who are prepared to do so are doing it with the purpose of getting you to give up your ABA-based job and to shut down your whole industry.
We're prepared to help you work towards alternative revenue streams, but for many of you, having a different job to go to isn't your main concern; you believe in ABA and you're determined to make ABA work.
So you're using these dialogues to find ways to make your ABA practice more woke-sounding. (Still ABA, but with superficial tweaks to make it soothe your conscience.)
This is not really what we're there for, though. You're misusing our precious energy to stay in business.
Here's something I thought we could agree on. I thought this one thing could be common ground.
Now, I'm speculating here, but I think I understand some of the main reasons why you're digging in your heels and why you really don't want to leave your known niche.
I'm not saying all of you; I know that some of you ARE prepared to leave. Some of my friends and allies are ex-ABA therapists, proselytes and apologists.
I don't think it's even just because you'd have to learn from scratch, which is naturally uncomfortable for someone who's invested in a certain body of knowledge.
I think what you're REALLY scared of is how the power dynamic would change if you had to follow a rights-based approach to therapy for autistic people.
More than the known territory of jargon and models and activities, you are accustomed to your cosy power.
So your brain keeps reinforcing the idea that what you're doing is good and needed. Because these ideas keep you safe. They protect you against the fear of losing power.
I don't think your ableism and preconceived ideas about autism are letting you get comfortable with the idea of a job in which a 19-year-old nonspeaking autistic man with loud, 'meaningless' vocal stims could be your BOSS—the person with whom you'd have to negotiate a raise.
Would it make a difference if he was older—say, 30? Same loud vocal stims, needs some help with going to the toilet and with self-care, occasional compulsion to hit his forehead with his fist—but still no speech—could you rely on someone like this for your salary?
This is perhaps why I'm seeing growing, genuine, meaningful and humble engagement with people from various allied health professions—OTs, SLPs, music therapists and art therapists, to name but a few:
But the resistance to genuine change and learning comes from those who rely on dominating people to be able to ply their trade. In education and psychology and elsewhere, it often goes that way, but it doesn't need to.
In EIBI, which is ABA, that's how it works. It's baked in.
So, you can transform Occupational Therapy, Medicine or Education to be rights-based.
But if you had to try the same in ABA, you'd have to stop most of what's happening out there.
I've actually blocked people for saying "Don't go, we need you," because that's a REALLY triggering expression for me when I am frustrated that people rely on me like this.
And then I have a friend who gets REALLY depressed about the meaningless of his existence combined with how awful and selfish most people are on the planet; but there's no psychologist or psychiatrist around here who understands EXISTENTIAL depression.
I cannot imagine people in my country coming up with such a law. There's a niqab boutique less than 10 minutes from my home.
Most local Muslimahs are hijabis, not niqabis, and there are some who don't wear hijab either. I can't imagine our government wanting to stick its nose in there to decide who should wear what in public.
On #PBSAwarenessDay, we need to be more aware of HOW and WHY PBS harms people, so that after we stop PBS, we don't implement any other methods which do the same thing in other ways.
Wherever we find parents and professionals pushing for ABA-based approaches like #PBS, we also see low support for the types of communication methods that nonspeaking autistic people say they find helpful.
Somewhere along the line, someone told parents that they can't take unhappy children out of school and teach them at home, because the children must stay in school to learn social skills.
So if the teachers hate you, the children bully you, the curriculum doesn't match your reality, and the walls and ceiling lights scream—you learn that hateful behaviour, cruelty and all manner of senselessness are... social skills.
And you'll learn to self-harm when you don't conform to that irrationality, because they teach you that you're worthy of harm.
Do any of you sensory optimisers use Cream of Tartar to keep #SensoryOverload at bay? I bought potassium pills, but misplaced them. I took Mg glycinate, but that's not enough. Then I realised that I have Cream of Tartar in the house, and it's cheap. Just took some now. Let's see.
DAY 2:
It worked. I recovered. Approx. two teaspoons of Cream of Tartar in water, after one magnesium glycinate tablet, then off to bed.
This is very random, but I just have to put it out there sooner rather than later:
A few years ago, I said that there would be a revolution for autistic people, that will change their lives for the better worldwide, and that Black Africans would lead it.
Today has strengthened this belief.
I am not a soothsayer or a clairvoyant; I have rational reasons for this belief, but they'd take a lot of energy to explain.