1/x Several months ago, @katebingham2 drove the UK pandemic response. She is incredible ๐ฆธโโ๏ธ- thanks for your insight. But then she finished and something extraordinary happened. The Winter plan to protect the #immunocompromised was quietly dropped....๐ซ Why does it matter? ๐คท๐คทโโ๏ธ๐คทโโ๏ธ
2/x Because it had widespread clinical & academic backing for our 2022 Winter plan. Cohorts were identified & large teams of clinicians worked around the clock to work out which of #immunocompromised who don't have high levels of protection from vaccination could be protected ๐ฉโโ๏ธ
3/x This would have put us in line with 32 countries who were protected their #immunocompromised during the Winter months when COVID cases rise. If you don't respond to vaccines ๐, then your risk of hospitalisation, ITU admission & not recovering from COVID is ๐
4/x Unfortunately someone somewhere asked for the country to ignored the sound advice by @katebingham2 and many others. The Winter plan was stabbed and quietly shelved. The #immunocompromised were moved to be the #Forgotten500k โน๏ธ. And their protections removed....
5/x To make it worse, government data analytics like @ICNARC@ISARIC1@OpenSAFELY QCOVID and @UKCORONACANCER@ONS are all now showing the same thing. Whilst the risk is lower, many #immunocompromised patients are now driving COVID hospitalisation, ITU admissions and deaths. ๐ข
7/x. Incredibly, the UK policy is that if you are #immunocompromised and want protection this Christmas, you need to go to PRIVATE healthcare providers. The drug costs ยฃ1,000 but if you add on all the extra costs, you're looking at just shy of ยฃ3,000 for COVID protection... ๐
5/x #immunocompromised patients have rightly tried take to their virtual streets to ask for equality of protection from COVID-19 and want their proction by Christmas with antibody therapy, #evusheld. They are suffering from a mental health and physical health perspective.
6/x They are still shielding, there's 500,000 of them, they can't see family or hugged loved ones. They want to be protected from being hospitalised, ending up in intensive care or not recovering from COVID-19. They want it by Christmas. ๐๐คถ
8/x Clearly a bad decision was made but @katebingham2 confirms this was a known issue. The question is now how quickly will @RishiSunak and @SteveBarclay correct the wrong and follow the science from around the world. Will they do it by Christmas? ๐๐คถ๐งโ๐
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2/x Why did they do it? Because 1โฃ cancer patients are at high risk from covid ๐ 2โฃ Many don't get an immune response to vaccines ๐ 3โฃ They wanted to find the scale of the problem ๐ฅ. So they decided to go global! ๐
3/x. The team searched 3065 papers published from the start of vaccination to March 2022. They looked at third dose boosters ๐. They looked across all cancer types. They found 15 studies encompassing 1205 patients๐งโ๐คโ๐ง. The largest global review ๐
2/x The father unable to hug his teenage daughter ๐ซ, a retired nurse ๐ฉโโ๏ธunable to walk down the streets, the heartbreaking stories of the Britons with health conditions that mean they are still in self-isolation, shielding from COVID-19. They are the #immunocompromised โฅ๏ธ๐ค๐๐๐
3/x Imogen Dempsy said "my blood test show I have no protection against COVID-19". There is a drug that would provide protection to those that don't respond to the covid vaccines ๐ท๐. BUT...Evusheld is only available in the UK only to patients who are willing to pay for it. ๐ข
1/x ๐งต Regarding #Evusheld on Bupa. I am *BEYOND SHOCKED*. If you are immunocompromised with cancer, autoimmune disease, kidney disease or on immunocompromised want COVID protection, you won't get it on the NHS. Your only choice is to go to private healthcare ๐ฅ #forgotten500k
2/x It feels wrong that if you are #immunocompromised and wealthy ๐ธ, then you will get coronavirus protection, BUT... if you are #immunocompromised and poor ๐ช๐, you can't. This is going to cause equality based on how much you earn. This doesn't feel right or British. ๐ฌ๐ง
3/x Thanks @EnnalsEthan for unshielding this tactic to have covid protection only in the private, but not NHS. #immunocompromised patients just want to hug loved ones and see family ๐ซ. Do they have a valid choice? Does health need you to be rich? BIG QUESTIONS. @libdemdaisy
1/x ๐งต Regarding Evusheld on Bupa. It makes me sad that if you are immunocompromised with cancer, autoimmune disease, kidney disease or on immunocompromised want COVID protection, you won't get it on the NHS. Your only choice is to go to private healthcare. ๐ฅ
2/x It feels wrong that if you are #immunocompromised and wealthy ๐ธ, then you will get coronavirus protection, BUT... if you are #immunocompromised and poor ๐ช๐, you can't. This is going to cause equality based on how much you earn. This doesn't feel right or British. ๐ฌ๐ง
3/x Some hope? Maybe @RobertJenrick has not yet to be tested and maybe he might see the right solution here. After all, HEALTH ๐ชshould be for all, COVID PROTECTION ๐งโ๐should be for all, COMPASSION should be for all ๐ซ. This ad from today now seems much most apt๐๐๐๐ข
1/x ๐งตA friend sent me this asking what is this about? I found out. This is the story of what led to to this most public and most significant direct patient plea to @RobertJenrick I have not seen this EVER happen before. #forgotten500k
2/x It's coming from the 500,000 who are immunocompromised who are at risk from COVID-19. Still unable to work, see friends or hug loved ones. They are #forgotten500k, unheard and calling on us to notice. They have collected donations to ask for help from power. Hence all the ads
3/x They want protection that has been given to 32 other countries, but decision making has been stalled in the UK. They would like prophylactic antibody therapies to prevent them getting unwell with COVID as cases rise.
2/x What's the background? The pandemic continues. ๐พSome people are at excess risk and can't hug loved ones, see family or enter normal life ๐ข. We all believe they are the #immunocompromised, but what does the data show? ๐ป
3/x This data looked at 16โ208โ600 vaccined individuals across England๐ด๓ ง๓ ข๓ ฅ๓ ฎ๓ ง๓ ฟ, Scotland๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ, Ireland ๐ฎ๐ช and Wales ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ. i.e. EVERYONE. From Dec 8, 2020, and Feb 28, 2022, so it includes the OMICRON ERA, so relevant. Risk was very carefully defined.