Discover and read the best of Twitter Threads about #cancer

Most recents (24)

A federal judge ruled the #AffordableCareAct--also known as #ACA & #Obamacare--unconstitutional because #GOPTaxBill removed the mandate.
I've written about ACA since it was devised in 2009 & signed in 2010. Here is a thread📌on what the law does & how it impacts you:
1/
Many Americans are confused about what the #ACA is--and this includes Trump and his #HHS Sect #AlexAzar. A vast array of complex #healthcare statutes are covered under the #AffordableCareAct (also known as #ACA & #Obamacare). So here's a primer to inform you on all points.
2/
The #AffordableCareAct is the comprehensive health care reform law enacted in March 2010 (sometimes known as #ACA or #Obamacare). The #ACA is NOT insurance. It is a LAW that stipulates, in part, what insurance companies provide in their #healthcare plans.
3/
Read 29 tweets
Tuesday was the prelim. Thursday is the main event.
Right now, I am resting between sprints.
Trying to breathe.
Inhale. Pray. Exhale.

The days and weeks ahead are going to be another life test.
(Pretty sure I learned this lesson already, but, okay, universe.)
1/😷
The outpouring of concern and love I have received on here has been so far beyond anything I could have imagined. I feel so supported and strengthened by all these messages--too many for me to respond to all of them, but deeply, deeply appreciated.

Thank you so VERY much.
2/❤️
There are currently 17M Americans with #cancer.
41% of us will get some form of cancer in our lifetimes.
That's nearly half of us.
Everyone knows someone with cancer.
So we have to be vigilant and we have to take care of ourselves--lower that stress, first and foremost.
3/😷
Read 10 tweets
This day has been so hard.
It's been a year since my last surgery.
I lost correct count of how many surgeries I have had, but it's close to two dozen over my life time.
So many scars on my body and psyche.
I am legit terrified of this next surgery.
I'm so shaky tonight, folks. 😷
People with #cancer are supposed to be brave and model courage for others, but the fact is, it's just the loneliest and scariest of journeys.
I have watched people I admired chart their slow deaths on here.
Quite simply, I don't want to be one of them.
Brave, yes.
Dying, no.😷
Watching #TonyBennett (yes, I am so freaked out I am watching a country #Christmas special, although it's had a lot of jazz for a country special & not much country) belt out tunes with Diana Krall at 92, I want that--decades more time. I want years more of my voice out there.
Read 6 tweets

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While you're focused on a holiday surprise from #Mueller, the president of the United States and his lame duck Speaker have officially been working toward eviscerating the #ACA before #NancyPelosi steps in to save everyone's #healthcare.

Please call your reps & tell them NO.
1/
I'm seriously ill--17M of us have #cancer; 131M have other chronic illnesses. This concerns me & you & people you love.
Like everything else, it's underhanded and under-the-radar.

New insurance guidelines would undermine rules of the #AffordableCareAct
washingtonpost.com/national/healt…
2/
"The Trump administration is urging states to tear down pillars of #AffordableCareAct, demolishing a basic rule that federal insurance subsidies can be used only by people buying health plans in marketplaces created under the law."

They want to take the #healthcare you need.
3/
Read 10 tweets
My oxygen machine just shut off and sent out a long beep and now I am somewhat panicked about not having air.
I called the medical equipment company, but it's a long time till morning when they come and bring another one.
I have two tanks = 6hrs.
#chronicillness is so terrible.
And the people who are on call are not very nice.
They always seem very put-out that you need to be able to breathe.
So The Wife just called--she teaches in another state on Wednesdays. She said yes, we do have several oxygen tanks at the office, which she will pick up on the way home. And one of my doc friends on here sent me a fix-it vid for her for when she gets home to check the machine.
Read 5 tweets
[thread] #cancer du sein et tamoxifène : mauvais choix pour certaines femmes. Comment savoir ? #pharmacogénétique
Le tamoxifène est utilisé sous forme orale mais il n’est pas d’emblée actif. C’est une sorte de « prodrogue ». Il doit être transformé en métabolites actifs (endoxifène et 4-OH-tamox). Une enzyme hépatique est essentielle pour ça : le cytochrome P450 2D6 (#CYP2D6).⤵️
L’activité du CYP2D6 est variable : 2 personnes sur 30 ont en enzyme inactive (métabolisme « lent »). 1 sur 30 un métabolisme ultrarapide (activité 2D6 très élevée). Pour le tamoxifène, on commence à voir le problème : il ne sera pas activé en endoxifène chez 2 femmes sur 30 !
Read 13 tweets
In late-August of 2010, my dear first-cousin was diagnosed with inoperable, non-curable, small-cell lung #cancer. He and I were raised like #siblings and cared for one another as brother and sister, a very close-knit family.
My #cousin was an amazing man, husband, and father to twin boys; who were only 14 when he died in September 2017. He died at his home, surrounded by his family and friends…just how he’d wished.
Of course, he only had these wishes after his experiences spending extended periods of time in clinics, hospitals, and laboratories. Blood draws, lung scans, injections, medications, #chemotherapy, hospitalizations, emergency room visits from all the awful side-effects of his...
Read 27 tweets
Tough medical day.

Many of you have very kindly asked how I am doing.

An additional diagnosis in recent weeks has been difficult. And I've had to fight with my health insurer for basic services they are now denying. This has made everything harder, of course.
1/
I am hoping to postpone new surgery until January, so the holidays aren't wrecked for us. Not sure how that will go.

The best thing that's happened is #NancyPelosi's re-election. Anyone who has a chronic illness like #cancer cheered this. We can count on her protection.
2/
The path to wellness should NEVER have to go through fear and fighting for care, but that's how it is for millions of Americans like me.

We need #MedicaidForAll. For now, protecting the #ACA is essential.

Thanks again for all your support.
#ProtectOurCare
3/
Read 3 tweets
My continuing saga of the black hat #hackers who stalk me relentlessly... last week, we showed you how the #DepartmentofLabor was hacking me - and I’ve proven how the #DOD, #DNI, and #CIA are hacking me too. But now, let’s dive a bit deeper into this, shall we?
This number continually calls me on my #ministry #prayer line. Yes, my number is public knowledge for the ministry - it’s NOT my personal number for a reason. However, “Defense Infomr” is directly tied to the #DOD. Makes you wonder why the @DeptofDefense is stalking a CIVILIAN.
I wonder if the @DoD_IG knows about how much money #Trump and his goons spend of TAX-PAYER dollars to stalk and harass me? A #minister. Who has #cancer, no less. Can you say desperate? I am a CIVILIAN and YES, I have a high level #security clearance as a civilian but I am NOT
Read 8 tweets
Somebody hire me to write about what it's like to actually live in poverty.

I can write about it from myriad vantage points:

▪As a late middle-aged woman (women 50+ are the poorest segment of US population)
▪As a #lesbian(employment discrimination is huge among lesbians)
1/
▪As a chronically ill person (131M Americans have chronic illnesses from #cancer to #asthma that interfere with employment)
▪As a #disabled person (#disabled are the largest minority group in the US, but are most un- and under-employed)
2/
Every time I pitch poverty as a topic, I get an eye-roll.

Poverty was barely mentioned in 2016 Hillary raised it a few times; Sanders talked about "the ghetto" and Trump said he would cut taxes, but he actually cut entitlements.

Yet 1 in 7 Americans lives in #poverty.
3/
Read 11 tweets
Clear like my Dad's understanding of how daylight savings works ( #spoiler, not clear at all). Buckle up while we unpack this #cancer fear-mongering, and FDA conspiracy (1/6)
1st issue, Dr. Melnick doesn't disclose he is the author of the studies in the article body. He frames it FDA vs NTP, when its FDA vs his own work. It doesn't invalidate everything, but its not very honest to the readers who think they are getting impartial expert opinion (2/6)
The next issue is the studies themselves were designed to test toxicity and not to establish if human use was dangerous. co-author John Bucher has said the dose of radiation was way above human exposure. (3/6)
Read 6 tweets
🚨 THREAD 🔥 Spread the word. 👍🏼
Woolsey Fire Burns Nuclear Meltdown Site that State Toxics Agency Failed to Clean Up
Statement by Physicians for Social Responsibility - Los Angeles (@psrla)
#SSFL #WoolseyFire #SimiValley #OakPark #BellCanyon
⚠️🔎 indybay.org/newsitems/2018…
The #WoolseyFire began on the property of the contaminated Santa Susana Field Laboratory. #SSFL, a former nuclear and rocket engine testing site, is one of the most contaminated sites in the nation.
#SimiValley #OakPark #VenturaCounty #BellCanyon #WestHills #SFV
"Santa Susana Field Laboratory (#SSFL / #Rocketdyne) burned in the #WoolseyFire, threatening toxic exposures from contaminated dust, smoke, ash & soil. The Department of Toxic Substances Control (DTSC) denies risk that it created by delaying the long promised cleanup." -@PSRLA
Read 18 tweets
Il cancro rappresenta il paradigma dell'immortalità. Se nelle cellule sane esiste un meccanismo 'salvifico' di apoptosi, le cellule cancerose non vogliono morire. Mai come adesso ricerca e nuove tecnologie sono in grado di combattere ad armi pari. Quattro esempi. #OneGiantLeap
Cancer-fighting nanorobots programmed to seek and destroy tumors.
Study shows first applications of DNA origami for nanomedicine.

#cancer #nanorobots #nanomedicine #DNA #origami
sciencedaily.com/releases/2018/…
Google’s Machine Learning Model can Detect Cancer in Real-Time.

#cancer #MachineLearning #ML #ArtificialIntelligence #AI
analyticsvidhya.com/blog/2018/04/g…
Read 8 tweets
I was going to do this hours ago. Then I thought about stories from my life and I was overwhelmed.

Also I hate to being up problems without talking a little about solutions.
So toward the end I'll talk about some things I've tried to fight back with varying levels of success.
Read 56 tweets
'The government applied that label to people like Osama bin Laden & other Islamic jihadists. But now the Obama administration has removed all references to Islam from terror training materials, & instead the term “terrorist” is being applied to large groups of American citizens.'
Chomi Prag
"Is gang stalking prohibited under law? Yes, it may not be spelled out as "gang stalking" per se but the methods and tactics perpetrators use against their victims or targets is not allowed by law."
Article Source: EzineArticles.com/7947300

ezinearticles.com/?Gang-Stalking…
Once the government is committed to the principal of silencing opposition it has only one way to go & that is down th path of increasingly repressive measures until it becomes a source of terror to all its citizens & creates a country whr all live in fear vimeo.com/288238708
Read 10 tweets
A5. From decades of activism through my other identities & my cultural background, it’s easier for me to see how everything is related.

Illnesses that are portrayed in media anywhere in the ballpark of properly get attention & research.
#MedTraumaChat
A5. There’s so much silence around #cancer that we only see one small sliver on tv.

And that one small sliver tends to correspond to the outsider view people have.
#MedTraumaChat
A5. Invisible disabilities have almost zero visibility. And when we tell the stories ourselves & via insiders like with @jenbrea in #Unrest we get accurate narratives that illuminate.

#MedTraumaChat
Read 7 tweets
You know what's great? When you grow up and your Dad is your buddy.

Just got off the phone with him a while ago. He let me vent & then I listened to his venting & I'm cheered all the way up.
Like, as a grown up I now have the language to say "I haven't called because I was depressed and feeling useless because I can't work & one little pill could change that. But the anti-depressant is kicking in and I'm getting better.
And I felt safe because instead of being scolded or disappointed in me for all the time I haven't called? He's just glad I feel better. Like a friend.
Read 8 tweets
Okay so provisional ballot aren't *automatically* thrown away. (Never said they were but not the point.)

But they are thrown away if you can't do the follow-up legwork.

Some people literally can't. Or don't know.
And those tampering with voter registration know this. #GOTV
Who can't?

It once took me nine months of active coordination and effort to be treated by an oncologist.

Between transportation, being well enough to ride in the car & financial issues.
Read 36 tweets
Beautiful
(A microburst Twitter essay--to be finished before I'm done with my cough drop)

I just had an epiphany: #beautiful has become my new favorite word. That may seem strange given my circumstances. In June 2017 I was diagnosed with incurable stage IV #lungcancer.
I naively thought that maybe my lifetime of being a health and fitness junkie would insulate me from such a medical fate. Wrong. And So here I am, fifty-one years old and not sure how much time I have left on earth. I know I could, or maybe should, feel angry, cheated, jaded.
But I don't. I have this epiphany that my new favorite word is beautiful and I'm not sure why. There is nothing beautiful about what I've gone through since my diagnosis--lots of physical and emotional distress to be sure. But yet, I keep find
Read 15 tweets
I gotta tell you, folks, I have been so sick for the past 2wks, I have really been scared.

Sept 22 House GOP passed their new cuts to Social Security Medicaid and Medicare out of committee. $1.2T in cuts.

That's the safety net.

I've always hoped I could fall there. No more.
I had to call my bestie today to have her come up and stay with me while The Wife is teaching.

Even with the oxygen, hard to breathe.

I had to cancel interviews for tomorrow, a radio appearance for Friday.

Chronic illness like #cancer is incapacitating at times.
We need to do better for sick and #disabled Americans.

It is so hard to work and be sick.

Never getting better sick.
Read 4 tweets
When low-dose aspirin is not only a bust, but is associated with higher all-cause mortality, #cancer, and more bleeding in healthy elderly
nejm.org/doi/full/10.10…
3 @NEJM papers of a randomized trial of >19,000 people by @JohnMcNeil6 @ASPREE_aus and colleagues
The results on lack of any cardiovascular benefit but increase in bleeding nejm.org/doi/full/10.10… @NEJM
Congratulations to the @ASPREE_aus investigators for taking on this important endeavor, not accepting dogma, and publication of the unexpected results with lucidity.
Read 5 tweets
Sometimes you can just take a bizarre statement about its logical conclusion. And that can be your answer.
An example from real life:

Me: "So instead of going to the doctor to rule out the #cancer being back, your solution is to do nothing and let me suffer through these symptoms? And risk dying?"

Him: "No?"

Me: "Okay."
The fear that your loved one may due is real. And acceptable. And reasonable.

But the solution is never "let's ignore your equally real pain & suffering & see if it goes away."
Read 5 tweets
I had this ugly exchange with a self-styled resister today that left me very upset
and reminded me yet again that #lesbians are barely tolerated by many str8 women.

But it never ceases to be painful when the reality comes at you with the force of a metaphoric slap.
Stress is a killer.

It's vital we protect ourselves from toxic situations and people.

This is especially true for those of us with #cancer or other chronic illness.

Self-care includes blocking people who undermine your goals and who attack you. They don't deserve your energy.
Folks on here who came to my defense/supported me yesterday? You are the best of Twitter.

I got hundreds of messages of care and concern. It helped remind me that toxic exchanges can hurt us deeply but the people who matter build us up.

Thank you so much for your support. 💜🌿
Read 3 tweets
.@SarahbaxterSTM's argues that #fibromyalgia, #mecfs, #lupus, #depression, self-harming and #anorexia are caused by female ambition and fragility.

What's c. 1880 is new again.

thetimes.co.uk/article/kirsty…
This is just so silly. In the 19th century, there was a panic in the medical profession (and among social commentators) about women becoming ill with neurological and "nervous" conditions because they were overworking their brains/nerves, which were naturally weaker than men's.
This “fact” was used to bolster the argument in favor of stopping women's formal education after age 16 and most certainly not letting them enroll in university.
Read 26 tweets

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